Re: Nissen Fundoplication-

[Guest guest]

Hi ,

I'm sorry that your son is having problems with throwing up again.

We have had a few issues that are related to 's fundo. Since

about 2 or 3 months after the surgery, she has been able to throw

up. I don't know if I would say that she still has reflux, sometimes

it acts like it, like when she has been on monitors the first sign of

a gagging episode would be a drop in her heart rate and then a few

seconds later she would start the gagging and sometimes throw up.

Usually, it does require quite a bit of effort for her to bring

something up. She had a bronc done last fall which showed that she

has been aspirating. This would either be from swallowing or

reflux. She eats and incredibly tiny amount, really is 100% tubed,

and hadn't had a bite to eat in the 8 days she had been in the

hospital before the test. On her upper GI, she threw up the barium,

but surgeons say it was because they gave her too much and that you

could see that her wrap was still intact. I would go for the too

much arguement if I hadn't seen her throw up on a continuous drip

before. Her ph probe came back negative for reflux although it did

show at least one episode (that isn't enough). So that is what is

going on with the throwing up with .

One of the other issues, and MUCH bigger is that she doesn't tolerate

enough food. She is now just under three years old and doesn't weigh

quite 18 lbs. She tolerates 13 ounces of formula a day. If I give

her any more than that, she screams all night. I don't understand

why she cries all night when she gets the food during the day, but I

have tried over and over and over to increase the food and I get the

same result. She will cry between 3 and 8 hours every night and just

lay around during the day. This problem started around the same time

as the surgery. I can't say for absolute certainty that the fundo

caused it though. She was on TPN for about 3 months time straddling

the surgery for a variety of reasons and it was when we tried to get

her off that things were WAY worse than when we started the tpn.

There were a few things in there though that could have possibly

caused the problems, but the far most likely is the nissen.

The other issue is her blood sugars. Like I said before, she did

have problems before the surgery. She had a hypoglycemic seizure

while on a continuous g-tube drip. No reason for that was ever found

at the time. She was put on TPN for a while to " fatten her up " a bit

and keep her sugars up before her nissen. But it was written off as

just a total flukey thing. Almost a year later, after a few low

blood sugars on labs, we started really looking into the blood sugar

problem again and she was diagnosed with Dumping Syndrome. This is

common after stomach surgery in children. It is possible that she

got it from her g-tube insertion which was before the seizure, but it

seems that the problems became much more of an issue after the

nissen. She got to where she couldn't be off the pump for more than

30 minutes at a time without getting very hypoglycemic. She has

never seized again, I think that was probably a combination of things

that caused that. We tried treating the dumping pretty agressively.

We did twice a day injections of a medication called Octreotide

without much success. We are giving her uncooked cornstarch to try

to slow down digestion. We have recently started back to tiny bolus'

every 45 min to an hour but obviously that isn't working since her

blood sugar was 39 within 30 minutes of a feed yesterday. Once

again, I can't say for sure that the nissen caused any problems here,

there was obviously a problem before but it definately seems worse

since the surgery. And if you look up dumping syndrome, the primary

cause in children is Nissens.

Good luck with your son, I hope that this was a little helpful. If

you have any other questions please ask,

Georgianna

> Dear Georgianna,

> I don't know if you read my reply to this post, but, I was

interested in knowing more about your child and this dumping syndrome

because my son also had the nissen done and we are scheduled for a

G.I. study in Feb. because though he had it done about 5mths. ago, he

is now having issues again with vomiting. I just wanted to know more

about what you have encountered with your child's " wrap " .

> Thanks...

> Sincerely, (28nocf mommy of Mateo-11mths. w/cf)

>

> --- message from " Georgianna Blanchard <dgblanchard@e...> "

<dgblanchard@e...> attached:

>

> _____________________________________________________________

> Sign up for FREE Premium Webmail from Vegas Mega Site!

http://www.vegasmegasite.com

>

>

>