Re: Questions from Memphis - chronic CP from SOD; Fatigue; Enzymes

[Guest guest]

Sheila

I couldn't help but do a " double take " of your note! You sound

exactly like a " clone " of myself as far pancreatitis goes! I will

try and answer your questions as I have chronic CP from SOD.

Fatigue.........Sheila that is my main complaint now and has been

since about the summer of 2000. It is a fatigue like I have never

experienced. The docs somehow can't get that it has to do with CP.

They have checked everything else and nothing shows. I know it is

from pancreatitis!. There are days when I literally cannot get out

of bed or put a foot in front of the other. I have had the fatigue

hit me while driving some place and had to call hubby or son to come

and get me! I don't know what the fatigue is all about but it

definitely is real! I have often wondered if it is dehydration. I

know I stay chronically dehydrated no matter how much I drink. I

never leave the house w/o something to drink preferably bottled

water. My husband is very good about making sure I have something

to drink with me even if he is not with me. Its kind of like

the " checklist " to go out. Ha-ha. I guess after all that long

post, bottom line...........yes CP and fatigue or should I say

chronic debilitating fatigue go together.

Enzymes........Mine do whatever they want to do. Sometimes I can be

sick and they won't be elevated and sometimes, I feel fine and my

enzymes are off the wall to the point of alarming the docs and I

feel no pain (asymptomatic pancreatitis). I have also noticed that

if I get sick and go to the hospital and they are elevated, the keep

elevating for a copule days and then " peak out " abou the second day

and then start to decline. Its just like clock work. Some folks

are so far along in this that their enzymes never elevate.

As far as them not checking your enzymes while in the hospital, are

you sure they gave you all your lab work? If you don't ask

specifically, sometimes they pull a copule lab reports just to " shut

you up. " I am going to post a note talking about asking for medical

records and what to ask for i.e. personal use and SSD. I was a

medical transcriptionist for 25 years and for about 7, I did the

correspondence job in Medical Records that is resaponsible for

getting the records out! Believe me, it not cut and dry and folks

are not getting what they need.

When you get lab results, there will be those they obtained from

urine and those they obtained from blood. That is the first thing

you need to check. If they only gave you the ones from urine, you

wouldn't have the amylase and lipase. You might have the

creatinine. Also pay attention to the dates. If they took blood

every day and you only have say two days worth, you know they didn't

give them all to you. The standard though most of the time is that

they draw amylase/lipase levels every day while hospitalized for

pancreatitis.

I hope this answers some of your quesstions and did not totally bore

you. Feel free to ask anything. I know there are probably more

questions, and it is hard to remember them all at one time.

Take care

Kaye