Re: Why don't doctors know?

[Guest guest]

while I understand your frustration, I don't think it is a bad idea

to bring in information for your docotr...especially if he/she is

receptive. I have another condition, called " fibromyalgia " that is

just now getting a little recognition and respect...most doctors

ascribe to the theory that this is an " all in your head " kind of

condition that only depressed, anxious or hysterical women have.

It has been repeatedly proven to be a condition of neuro-hormonal-

chemical basis...there is something wrong in our wiring that reports

pain that " isn't there " ...by that I mean, it creates a pain signal

for simple touch, even just a pat on the fanny can be excruciatingly

painful, or if you step on something barefooted you would swear it

was a knife up inside your foot...

I cannot stand to have many fabrics next to my skin...I cannot wear

lace or tweed or wool...my skin perceives them as painful. I cannot

sit with my arm resting on a " tweed " couch, I have to have something

soft between my arm and the arm of the couch. Same with sleeping...I

cannot rest my arms on the blankets...it's very uncomfortable, so I

have learned to make the bed with another sheet on top of the

blanket, so my arm rests against the sheet...

I bring articles to my doctor all the time...he appreciates me

keeping him informed of all the latest techniques and research going

on out there. There aren't enough hours in the day for the doctors

to read every single article and every single website out there...

it's enough for them to keep current with the new meds that are being

developed all the time...we can help them by bringing in the latest

information. We have to work as a team...doctors cannot be expected

to " fix me " without my assistance....whether by following the

prescribed diet or regimen of meds or getting the right amount and

kind of exercise...

Just my two cents worth...

Jeannine

>

> I suppose in some way I can understand why doctors don't take the

time to learn > about the pancreas but it's no excuse. We shouldn't

have to bring information > to the doctor so they can treat us, all

we should have to bring is our bodies! This makes me angry, can you

tell? > > Peace,>

[Guest guest]

HI STACY

you know in your own mind how much you drink, you stick to

your guns if they try going down that alley like me and dont

be afraid to ask questions if you dont understand something

ask him to explain hope it all goes well.

ANDY

[Guest guest]

HI PATTY

after reading your mail to stacy and seeing my surgeon the

other day i have come to the conclusion that is so true i

had my MRI scan shown up nothing but he said my op was a

success ? ducts are not blocked but because of this he now

wants to do endoscope well if his op was a success why did

i have another attack so in other words like you they dont

know half has much as they think and we are the guinea pigs

sorry dont mean to sound negative but makes you think that

sometimes

hope you are well

ANDY

[Guest guest]

Good Morning Andy

1st off, any word from you loved one's fighting the " SAD MAN INSANE " that

what Cassie called him the 1st Gulf war. I hope all finds then well.

Cassie recently was seen at Boston childrens for the 1st 1ime. After a much

anticipated wait for results we were told other than having SPINK1 they could

find nothing wrong. But yet they were all gun-ho about doing surgery,

Sphinctorotony even though nothing showed the need to do so. Cassie, Mike

and I discussed this along wiht her PCP (primary care physician). If it's

not broke they aren't going to try and fix it on her. Her ERCP when done in

Jabuary 2991 threw her into the worst attack she had to daye. Since then

every attack worse. NO Way.

hope you are having agood day. God Bless America and God Save the Queen

Patty Hurst

Bangor, ME

Maine State Rep

PAI

[Guest guest]

HI PATTY

I have heard from my brother but he seemed a bit down when he sent a letter but

now that sadam has fled bagdad i hope that the main part of the war is over and

all will be home soon,on the other note i agree that once had suergery that my

pancreas was worse has i had no effects only the actual attacks but now i have

more days with upset stomache and pain most of the time where i had none before

my surgeon could not belive this when i told him ? what a strange part of our

body this pancreas is hope every one is well

ANDY

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