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RE: Re: RANDY - The Vest

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Randy -

Is the company you are with, the only company that makes " vests " ?

Re: The Vest

My daughter was the one who received the vest at 14 months old.

I spoke to a representative at the vest company at our annual cf

parents meeting at the local children's hospital. I was telling her

how much I was looking forward to my daughter being able to wear the

vest when she was older since she won't sit still for treatments. The

representative told me that they working on custom fitting toddlers

and also working on vests for newborns. I contacted the company and

they were very easy to work with. It was only then that I mentioned

the vest to my daughter's doctor. I didn't ask my daughter's doctor

about it, I just asked him if he would write the prescription. My

daughter at 18 months doesn't mind the treatments at all. It is

wonderful how much more time we have since she can use the nebulizer

with the albuterol and pulmozyme as she has on the vest.

Sharon

> I was told by our physical therapist at U OF Iowa Hospitals, that

in

> order to qualify for the vest the child's chest must measure +23

> inches when they take a deep breath. Peyton is almost 3 years old,

> but has a very small frame. Although she is getting taller and

> gaining weight, we have been stuck at a 19 inch chest for almost a

> year now. I read a post from someone that mentioned their daughter

> got a vest very young, they had it custom made for her. Do you

think

> Peyton could qualify for something like this? We have a check-up

> scheduled tomorrow and I want to bring up the subject again, but I

> don't want them to blow me off and simply say she is still too

small.

>

> ~Wendi

> Mom to Peyton 2 wcf

> Iowa

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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There is another company called MedPulse. They make a device similar to

ours. When you look at their device, compare the price vs. services

provided for each device, look at their warranty vs. ours, look at their

customer support vs. ours, and, most impotantly, ask them how much research

has actually been done on their own device. You also might want to ask them

what happens when your child outgrows their current vest or their

replacement policy on their accessory items. Also, ask them how many

representatives they have in the field to help patients and how many of

their reps have a clinical background (RT, PT or RN).

Their website is www.electromed-usa.com.

We think competition is healthy and it keeps us on our toes. I encourage

you to check their product out and do a head-to-head comparison. If you or

your insurance company are going to spend the money to get you a machine,

then you should get the best value available. Like the old saying goes,

" You get what you pay for " .

I hope this helps. Take care and let me know if I can do anything else.

Randy

Re: The Vest

My daughter was the one who received the vest at 14 months old.

I spoke to a representative at the vest company at our annual cf

parents meeting at the local children's hospital. I was telling her

how much I was looking forward to my daughter being able to wear the

vest when she was older since she won't sit still for treatments. The

representative told me that they working on custom fitting toddlers

and also working on vests for newborns. I contacted the company and

they were very easy to work with. It was only then that I mentioned

the vest to my daughter's doctor. I didn't ask my daughter's doctor

about it, I just asked him if he would write the prescription. My

daughter at 18 months doesn't mind the treatments at all. It is

wonderful how much more time we have since she can use the nebulizer

with the albuterol and pulmozyme as she has on the vest.

Sharon

> I was told by our physical therapist at U OF Iowa Hospitals, that

in

> order to qualify for the vest the child's chest must measure +23

> inches when they take a deep breath. Peyton is almost 3 years old,

> but has a very small frame. Although she is getting taller and

> gaining weight, we have been stuck at a 19 inch chest for almost a

> year now. I read a post from someone that mentioned their daughter

> got a vest very young, they had it custom made for her. Do you

think

> Peyton could qualify for something like this? We have a check-up

> scheduled tomorrow and I want to bring up the subject again, but I

> don't want them to blow me off and simply say she is still too

small.

>

> ~Wendi

> Mom to Peyton 2 wcf

> Iowa

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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i was just curious because we are suppose to be getting a call from someone

about my 4 year old getting a vest, and wondered who would be calling.

melinda

Re: The Vest

My daughter was the one who received the vest at 14 months old.

I spoke to a representative at the vest company at our annual cf

parents meeting at the local children's hospital. I was telling her

how much I was looking forward to my daughter being able to wear the

vest when she was older since she won't sit still for treatments. The

representative told me that they working on custom fitting toddlers

and also working on vests for newborns. I contacted the company and

they were very easy to work with. It was only then that I mentioned

the vest to my daughter's doctor. I didn't ask my daughter's doctor

about it, I just asked him if he would write the prescription. My

daughter at 18 months doesn't mind the treatments at all. It is

wonderful how much more time we have since she can use the nebulizer

with the albuterol and pulmozyme as she has on the vest.

Sharon

> I was told by our physical therapist at U OF Iowa Hospitals, that

in

> order to qualify for the vest the child's chest must measure +23

> inches when they take a deep breath. Peyton is almost 3 years old,

> but has a very small frame. Although she is getting taller and

> gaining weight, we have been stuck at a 19 inch chest for almost a

> year now. I read a post from someone that mentioned their daughter

> got a vest very young, they had it custom made for her. Do you

think

> Peyton could qualify for something like this? We have a check-up

> scheduled tomorrow and I want to bring up the subject again, but I

> don't want them to blow me off and simply say she is still too

small.

>

> ~Wendi

> Mom to Peyton 2 wcf

> Iowa

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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Melinda,

If you don't hear something by Monday, please let me know so I can follow-up

for you. Sorry about my lengthy answer.

Randy

RE: Re: RANDY - The Vest

i was just curious because we are suppose to be getting a call from someone

about my 4 year old getting a vest, and wondered who would be calling.

melinda

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