Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 I was told by our physical therapist at U OF Iowa Hospitals, that in order to qualify for the vest the child's chest must measure +23 inches when they take a deep breath. Peyton is almost 3 years old, but has a very small frame. Although she is getting taller and gaining weight, we have been stuck at a 19 inch chest for almost a year now. I read a post from someone that mentioned their daughter got a vest very young, they had it custom made for her. Do you think Peyton could qualify for something like this? We have a check-up scheduled tomorrow and I want to bring up the subject again, but I don't want them to blow me off and simply say she is still too small. ~Wendi Mom to Peyton 2 wcf Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 My daughter was the one who received the vest at 14 months old. I spoke to a representative at the vest company at our annual cf parents meeting at the local children's hospital. I was telling her how much I was looking forward to my daughter being able to wear the vest when she was older since she won't sit still for treatments. The representative told me that they working on custom fitting toddlers and also working on vests for newborns. I contacted the company and they were very easy to work with. It was only then that I mentioned the vest to my daughter's doctor. I didn't ask my daughter's doctor about it, I just asked him if he would write the prescription. My daughter at 18 months doesn't mind the treatments at all. It is wonderful how much more time we have since she can use the nebulizer with the albuterol and pulmozyme as she has on the vest. Sharon > I was told by our physical therapist at U OF Iowa Hospitals, that in > order to qualify for the vest the child's chest must measure +23 > inches when they take a deep breath. Peyton is almost 3 years old, > but has a very small frame. Although she is getting taller and > gaining weight, we have been stuck at a 19 inch chest for almost a > year now. I read a post from someone that mentioned their daughter > got a vest very young, they had it custom made for her. Do you think > Peyton could qualify for something like this? We have a check-up > scheduled tomorrow and I want to bring up the subject again, but I > don't want them to blow me off and simply say she is still too small. > > ~Wendi > Mom to Peyton 2 wcf > Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 In a message dated 1/23/2003 11:14:18 AM Central Standard Time, wendi_manley@... writes: > > > I was told by our physical therapist at U OF Iowa Hospitals, that in > order to qualify for the vest the child's chest must measure +23 > inches when they take a deep breath. Peyton is almost 3 years old, > but has a very small frame. Although she is getting taller and > gaining weight, we have been stuck at a 19 inch chest for almost a > year now. I read a post from someone that mentioned their daughter > got a vest very young, they had it custom made for her. Do you think > Peyton could qualify for something like this? We have a check-up > scheduled tomorrow and I want to bring up the subject again, but I > don't want them to blow me off and simply say she is still too small. > > ~Wendi > Mom to Peyton 2 wcf > Iowa Wendi, My youngest was not quite 2 when she got her first vest. She didn't have any problems with it. Maybe your not talking to the right person. Who have you talked to at the University of Iowa? Deb A from Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2003 Report Share Posted January 23, 2003 Hi Wendi, and Sharon, We are working on a Vest for toddlers and newborns. That will be one of our new products. We can customize a Vest to fit a smaller child. We have fit Vests on children as small as 17 inches. It will be no problem. All you need to do is get a precription from your MD and we'll take ut from there. If you let me know where you live, I can have your local person contact you and help you with the process. It is very simple. I hope this helps. Let me know if there is anything else I can do. Randy Advanced Respiratory (f.k.a. American Biosystems) 1- Re: The Vest My daughter was the one who received the vest at 14 months old. I spoke to a representative at the vest company at our annual cf parents meeting at the local children's hospital. I was telling her how much I was looking forward to my daughter being able to wear the vest when she was older since she won't sit still for treatments. The representative told me that they working on custom fitting toddlers and also working on vests for newborns. I contacted the company and they were very easy to work with. It was only then that I mentioned the vest to my daughter's doctor. I didn't ask my daughter's doctor about it, I just asked him if he would write the prescription. My daughter at 18 months doesn't mind the treatments at all. It is wonderful how much more time we have since she can use the nebulizer with the albuterol and pulmozyme as she has on the vest. Sharon > I was told by our physical therapist at U OF Iowa Hospitals, that in > order to qualify for the vest the child's chest must measure +23 > inches when they take a deep breath. Peyton is almost 3 years old, > but has a very small frame. Although she is getting taller and > gaining weight, we have been stuck at a 19 inch chest for almost a > year now. I read a post from someone that mentioned their daughter > got a vest very young, they had it custom made for her. Do you think > Peyton could qualify for something like this? We have a check-up > scheduled tomorrow and I want to bring up the subject again, but I > don't want them to blow me off and simply say she is still too small. > > ~Wendi > Mom to Peyton 2 wcf > Iowa ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 In a message dated 1/24/2003 9:19:54 AM Central Standard Time, wendi_manley@... writes: > Deb- > We have been working with Beth in the Physical Theraphy Department > (not Beth Dowd). We go back this afternoon and now I am armed with > new information, so I am on a mission to get Peyton a vest! > Wendi, You just tell her that Deb Attig's daughter Natalynn had a vest before she was 2 so why can't my son have one! And she did find with it. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 Deb- We have been working with Beth in the Physical Theraphy Department (not Beth Dowd). We go back this afternoon and now I am armed with new information, so I am on a mission to get Peyton a vest! > In a message dated 1/23/2003 11:14:18 AM Central Standard Time, > wendi_manley@b... writes: > > > > > > > > I was told by our physical therapist at U OF Iowa Hospitals, that in > > order to qualify for the vest the child's chest must measure +23 > > inches when they take a deep breath. Peyton is almost 3 years old, > > but has a very small frame. Although she is getting taller and > > gaining weight, we have been stuck at a 19 inch chest for almost a > > year now. I read a post from someone that mentioned their daughter > > got a vest very young, they had it custom made for her. Do you think > > Peyton could qualify for something like this? We have a check-up > > scheduled tomorrow and I want to bring up the subject again, but I > > don't want them to blow me off and simply say she is still too small. > > > > ~Wendi > > Mom to Peyton 2 wcf > > Iowa > > Wendi, > My youngest was not quite 2 when she got her first vest. She didn't have any > problems with it. Maybe your not talking to the right person. Who have you > talked to at the University of Iowa? Deb A from Iowa > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2003 Report Share Posted January 24, 2003 HI! My daughter was only 14 months old when she got her vest and she is still very tiny and they had hers made just to fit her and now she is 3 ,i would ask .It never hurt to ask. mother of a 3wcf karen Quote Link to comment Share on other sites More sharing options...
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