CF Education update at CHOP

[Guest guest]

,

You indicated in your note to that you were going to the CF

parents update at CHOP tonight. I couldn't go to the CF parents update

tonight. My husband is out of town and I don't have anyone that can do

Emma's therapy or deal with her night feeds so I couldn't go. Did they

cover anything good? Anything on nutrition? I would love to know what

they covered if you wouldn't mind a quick update. I'm glad to hear

is back at home. I hope he is doing well.

Thanks,

- mom to Emma 2 1/2 years old w/cf and Isabelle 4 years old wo/cf

________________________________________________________________

Sign Up for Juno Platinum Internet Access Today

Only $9.95 per month!

Visit www.juno.com

[Guest guest]

Hi ,

Its ashame you couldnt be there, there was a doc who talked of nutrition

alot, the different studies they are doing, and how important good nutrition

is for these kids. Maybe your doc could get you some notes, I am not sure if

anyone was taking any, but there was good info for you. How is Emma and

Isabella??? Hope everyone is good, take care, sending hugs to the girls.

Take care,

, mommy of 4, 3 wcf, a g-tube and his wonderful personality,

, 17, Caleb, 7, and , 6

[Guest guest]

Hi and ,

This may be interesting for you and others who go to CHOP.

Peace

Torsten

8-Jan-03

Children's Hospital of Philadelphia Again Ranked Top in U.S. by Child

Magazine

Description: Child magazine has, for the second consecutive time,

ranked

The Children's Hospital of Philadelphia the best children's hospital

in

the United States. Child magazine also ranked Children's Hospital's

cardiac and oncology centers as the best in the nation.

Contact: Peggy Flynn

Child Magazine Names The Children's Hospital of Philadelphia

the Number One Children's Hospital in the U.S.

Second Consecutive Number One Ranking for Institution

Philadelphia -- Child magazine has again ranked The Children's

Hospital

of Philadelphia the best children's hospital in the United States.

This

is the second consecutive time Child magazine has ranked Children's

Hospital number one. Child magazine also ranked The Children's

Hospital

of Philadelphia's cardiac and oncology centers as the best in the

nation

and the Newborn/Infant Center ranked second highest in the nation.

" We are proud to be named America's best children's hospital, " says

M. Altschuler, M.D., president and chief executive officer of

The

Children's Hospital of Philadelphia. " We recognize our

responsibility as

a leader in providing patient care, innovative research and quality

education to train tomorrow's pediatric specialists. "

The Child magazine survey is based on hard data rather than subjective

opinions. It is the result of a comprehensive data-based study of

children's hospitals across the United States. The study looked at

depth

and breadth of clinical outcomes, research activities, various support

services provided to children and families, and the amount of

government

research funding hospitals receive.

" The ranking can be attributed to all the dedicated employees,

talented

physicians, and exceptional nurses and support staff who tirelessly

care

for and cure sick children every day -- and to those involved with

groundbreaking research that will improve the quality of life for

tomorrow's children, " says Dr. Altschuler. " Our ultimate mission is to

cure all pediatric diseases. We conduct research that seeks to have

daily

clinical impact, bringing the latest discoveries from the lab bench to

the patient's bedside. "

The Cardiac Center at The Children's Hospital of Philadelphia is an

established provider of multidisciplinary care for children with

acquired

and congenital heart disease and houses an internationally renowned

program in cardiothoracic surgery, as well as the East Coast's largest

heart and heart/lung transplantation program. The Cardiac Center

performs

more than 900 cardiac surgical procedures a year, including 500

pediatric

open heart surgeries, and provides cardiac evaluation and treatment in

more than 17,000 outpatient visits annually. The Center's extensive

experience in cardiac catheterization techniques has helped foster its

expansion from solely a diagnostic tool to its use as a therapeutic

modality. Cardiac Center surgeons are leaders in the use of pioneering

techniques for minimally invasive cardiac surgery in children,

including

the modification of instruments for use in pediatric patients. The

Fetal

Heart Program, a subspecialty within the Cardiac Center, provides

earlier

diagnoses that lead to earlier treatment interventions and improved

outcomes overall. It specializes in the detection, evaluation and

ongoing

management of congenital heart disease. It performs more than 1,200

fetal

echocardiography studies annually, making it among the largest

programs

of its kind in the nation.

The Oncology Program at The Children's Hospital of Philadelphia is

one of

the nation's largest cancer programs exclusively dedicated to

children,

and is home to an international center for pediatric cancer research.

The

institution's oncology unit consists of 31 inpatient beds including a

bone marrow transplant unit and a dedicated outpatient oncology

clinic.

The Oncology Program admits 400 new cancer patients each year, and

provides follow-up care to an additional 3,600 children. Researchers

in

the Oncology Program are leading the way in classifying and treating

neuroblastoma, the most common solid tumor in children, and the

Hospital

is at the forefront of developing new therapies to treat pediatric

brain

tumors.

Additionally, researchers here have pioneered a study of the long-term

effects of treatment on survivors of childhood cancer, and developed

the

first long-term follow-up program in the nation for childhood cancer

survivors.

The 50-bed Newborn/Infant Center (NIC) is equipped to provide for the

complete range of neonatal and infant critical illnesses including all

types of respiratory, surgical, cardiac, genetic, renal neurological,

hematological and metabolic diseases. The NIC receives approximately

900

admissions per year and serves as a primary referral center for other

neonatal intensive care units. Infants with certain problems, such as

those with severe lung disease or surgical abnormalities identified

prenatally, are frequently referred on both the national and

international level to the NIC for highly specialized care. The Center

for Fetal Diagnosis and Treatment established in 1995 is one of only

two

comprehensive centers worldwide to offer technologically advanced,

multidisciplinary care for unborn babies with genetic or anatomical

abnormalities and collaborates with the NIC team to provide optimal

continuum of care for these newborns post-partum.

Child magazine began its investigation by looking at more than 100

hospitals that are full members of the National Association of

Children's

Hospitals and Related Institutions. It then narrowed the field to 54

by

tracking the evaluations the hospitals received from the Joint

Commission

on Accreditation of Healthcare Organizations, an independent agency

that

examines treatment protocols, record keeping and dispensing of

medication. Those 54 finalists were asked to submit a comprehensive

survey developed by Child magazine's medical advisory board. The

survey

addressed crucial life issues ranging from cancer survival rates to

the

extent of the hospital's programs for the emotional needs of patients

and

evaluated performance records, the percentage of board certified

physicians in pediatrics, research capabilities and community

outreach.

Child magazine provides young mothers with cutting-edge news and

information on raising happy, healthy children in today's fast-paced

world.

Founded in 1855 as the nation's first pediatric hospital, The

Children's

Hospital of Philadelphia continues to be ranked as the best pediatric

hospital in the nation by a comprehensive Child magazine survey. Its

pediatric research program is among the largest in the country,

ranking

second in National Institutes of Health Funding. Children's Hospital

operates the nation's most comprehensive pediatric healthcare network,

including eight outpatient specialty care centers, four inpatient

units

at community hospitals, and 26 Kids First pediatric and adolescent

practices in Pennsylvania, New Jersey and Delaware.

To schedule an interview with Dr. Altschuler, or to request a

comprehensive news kit, including information about the subspecialties

mentioned in this release, contact Peggy Flynn, .

[Guest guest]

Yes, we are very lucky to have our children treated at this excellent

hospital. Kudos to the docs, nurses and staff at CHOP. They deserve it!

Jen, mom to Emma 15 months