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Re: cough...noncf

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-Hi,

Have the doctors checked for a loose larnix or tracia. Or

neighbours little girl coughs quit a bit and the doctors found that

her larnix is loose and should tighten as she grows. And if it

doesn't they can sergically ajust it. It is just a thought, hope it

helps.

Kim mom of Kiefer 4 ncf and Wyatt 2 wcf

-- In cfparents , RSBRT@a... wrote:

> We are going crazy with s(12 cf carrier) cough. This is

getting out

> of hand. He has been coughing since October and no one can help

us.

> 's(9w/cf & ds) lung dr saw him and his pfts were great so the

cough is

> not coming from the lungs. We then saw an allergest and he is

allergic to

> alot ....so we cleaned his room, no sterilized his room and put

covers on

> pillows and mattress. We have tried everything and he still

coughs. Even

> the codeine no longer helps him. Any suggestions would be greatly

> appreciated. It is a barky, gaggy cough that makes him shudder.

Thanks.

>

> Sally

> Mom of Bri, & 9 w/cf & ds

>

> -Sally-

>

>

>

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I am sorry to hear about your son, and I understand how this type of

thing can start to wear on you.

My 4 yr old son Jack (non cf - not sure if a carrier) is constantly

coughing during the winter months as well. He is prone to croup -

which his doctors tell us a tightening of the trachea in response to

viral illness. Every time anyone in the house gets so much as a

runny nose - he will wake up in the middle of the night with a barky

cough which is sometimes so bad he vomits while gasping for air. A

residual cough lingers for weeks. It seems as if he is never without

a cough. My husband has had him in dozens of times - no asthma, some

allergies, lungs are always clear. What they have us do is albuterol

and 3 days of prednisone if the initial attack is severe.

It all started just after he got a viral bronchiolitis (probably RSV)

at about 18 months, though I'm not sure

it's related. My sympathies are with you - but I can't be of much

help - this is our third winter of this, and we're just out of ideas.

Does it sound familiar?

R

Mom to 6 wocf, Jack 4 wocf, and Eleanor 1 wcf

> We are going crazy with s(12 cf carrier) cough. This is

getting out

> of hand. He has been coughing since October and no one can help

us.

> 's(9w/cf & ds) lung dr saw him and his pfts were great so the

cough is

> not coming from the lungs. We then saw an allergest and he is

allergic to

> alot ....so we cleaned his room, no sterilized his room and put

covers on

> pillows and mattress. We have tried everything and he still

coughs. Even

> the codeine no longer helps him. Any suggestions would be greatly

> appreciated. It is a barky, gaggy cough that makes him shudder.

Thanks.

>

> Sally

> Mom of Bri, & 9 w/cf & ds

>

> -Sally-

>

>

>

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Sally,

If you find anything to help with the cough, pleeeease let me know! Sounds a

lot like me! Seems I am allergic to about everything in the air and on

surfaces. And a double carrier of CF mutations.

Aunt B

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Thanks everyone for your replies regarding 's cough. We had the

methacholine test and he definitely tested positive for asthma. They

immediately put him on Pulmicort and nebulized albuterol, seems that the

propellent in the mdi albuterol was making his cough worse. He will start

his injections next week and hopefully we are on the right track. Even with

all his coughing he still won second place in his spelling bee. Thanks again

- Sally -

Mom of

Bri 14 JV All star amazing best cheerleader

12w/asthma

9w/cf & ds

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In a message dated 1/22/03 6:21:08 PM Eastern Standard Time, blruf@...

writes:

> It all started just after he got a viral bronchiolitis (probably RSV)

> at about 18 months, though I'm not sure

> it's related. My sympathies are with you - but I can't be of much

> help - this is our third winter of this, and we're just out of ideas.

>

> Does it sound familiar?

>

>

R - this definietly sounds familiar. too had RSV and

bronchiolitis when he was 18 mos. Hasn't been the same since. We had

several years of cough, pneumonias, streps, etc. Turns out he had immune

deficiency. Hopefully this winter will be better for you.

- Sally -

Mom of

Bri 14 JV All star amazing best cheerleader

12w/asthma

9w/cf & ds

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In a message dated 1/23/03 12:34:58 AM Eastern Standard Time,

cyxty5rss@... writes:

> If you find anything to help with the cough, pleeeease let me know! Sounds

> a

> lot like me! Seems I am allergic to about everything in the air and on

> surfaces. And a double carrier of CF mutations.

>

Aunt B - was allergic 4plus,plus,plus to alot of things. MAybe the

two of you could live in a bubble!!

- Sally -

Mom of

Bri 14 JV All star amazing best cheerleader

12w/asthma

9w/cf & ds

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CONGRATS!! what a fine wonderful thing for him. I know you all are so proud

of him--------as well you should be.....with or without the cough:):):):)

lots of love coming you & your families way

May this do the trick & he start feeling better very soon

LOVE & HUGS< GRANDMOMBEV

Re: Re: cough...noncf

Thanks everyone for your replies regarding 's cough. We had the

methacholine test and he definitely tested positive for asthma. They

immediately put him on Pulmicort and nebulized albuterol, seems that the

propellent in the mdi albuterol was making his cough worse. He will start

his injections next week and hopefully we are on the right track. Even with

all his coughing he still won second place in his spelling bee. Thanks

again

- Sally -

Mom of

Bri 14 JV All star amazing best cheerleader

12w/asthma

9w/cf & ds

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