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My Boy

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JC broke my heart last night. He wouldn't come to me when it was time to do

" pat-pats " . I asked him several times and he wouldn't come get in my lap.

So I sent him to his room for a few minutes and then called him back out.

He climbed up in my lap and said " When I get so big, I won't have to do

pat-pats anymore. " Oh, I wanted so bad to tell him he was right. Instead I

had to explained how he will always have to do pat-pats but one day maybe

he would have a vest to make it easier.

Angie (Ma to JC, almost 3 yo, wcf)

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This is so touching.

Last night we were eating and my older son and I were talking about

high cholesterol. Little wanted to know if his cholesterol

was high. I told him, no, people with cf need extra calories and fat

and they don't have high cholesterol.

He asked, " When my cf is gone will I have high cholesterol? "

I started to answer him, but then stopped. Could I really bring

myself to say it would never be gone?

No. I could not. I said, even when they find a way to treat your

lungs, so they don't have so much mucus, you will still probably have

some digestion problems and will need enzymes and extra calories.

It was just a little conversation, but I still have a little ache in

my heart remembering it.

Lenora

>JC broke my heart last night. He wouldn't come to me when it was time to do

> " pat-pats " . I asked him several times and he wouldn't come get in my lap.

>So I sent him to his room for a few minutes and then called him back out.

>He climbed up in my lap and said " When I get so big, I won't have to do

>pat-pats anymore. " Oh, I wanted so bad to tell him he was right. Instead I

>had to explained how he will always have to do pat-pats but one day maybe

>he would have a vest to make it easier.

>

>Angie (Ma to JC, almost 3 yo, wcf)

>

>

>

>

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dear Lenora, You handled that so well. I am glad you shared that as I am

positive that type of conversation will come up for others ... it is very

helpful to hear how others handle it ------AND you did it so well

Hope business has picked up for you too:):):)

LOVE & HUGS,

GrandmomBEV

Re: My Boy

This is so touching.

Last night we were eating and my older son and I were talking about

high cholesterol. Little wanted to know if his cholesterol

was high. I told him, no, people with cf need extra calories and fat

and they don't have high cholesterol.

He asked, " When my cf is gone will I have high cholesterol? "

I started to answer him, but then stopped. Could I really bring

myself to say it would never be gone?

No. I could not. I said, even when they find a way to treat your

lungs, so they don't have so much mucus, you will still probably have

some digestion problems and will need enzymes and extra calories.

It was just a little conversation, but I still have a little ache in

my heart remembering it.

Lenora

>JC broke my heart last night. He wouldn't come to me when it was time to

do

> " pat-pats " . I asked him several times and he wouldn't come get in my lap.

>So I sent him to his room for a few minutes and then called him back out.

>He climbed up in my lap and said " When I get so big, I won't have to do

>pat-pats anymore. " Oh, I wanted so bad to tell him he was right. Instead

I

>had to explained how he will always have to do pat-pats but one day maybe

>he would have a vest to make it easier.

>

>Angie (Ma to JC, almost 3 yo, wcf)

>

>

>

>

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