Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 <PRE>Did anyone see the episode of 7th heaven it brought tears to my eyes and my 10 year old when Katelynn was talking about how she feels about having CF was say Yep that's right Mom that's how I feel. I thought it was GREAT! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 The dad's comments about his heart breaking into a thousand pieces got me. I loved at the end her horse back riding.... would have been coughing!!!!!!! Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for this - TOBI after their medication! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2003 Report Share Posted January 20, 2003 ---Yes Amber and I did watch it and it was very good, and it brought tears to my eyes too, but didn't let her see that. Margo In cfparents , gdattig5@a... wrote: > <PRE>Did anyone see the episode of 7th heaven it brought tears to my eyes and my > 10 year old when Katelynn was talking about how she feels about having CF was > say Yep that's right Mom that's how I feel. I thought it was GREAT! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 I am so upset. my daughters and i went to the mall. and we missed it..... patty, mom of 2 dayghtgers Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 In a message dated 1/21/2003 12:10:22 AM Central Standard Time, libra_83301@... writes: > ---Yes Amber and I did watch it and it was very good, and it brought > tears to my eyes too, but didn't let her see that. > > Margo > Yep! I did the same thing Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 I loved it!! I also cried but more because she was beautiful and optimistic. I was a little worried going into it that it would be like the episodes I've seen on ER where they are losing their battle so this was really wonderful. 7th Heaven didn't disappoint. Christy N. Mom of Wyatt 7wcf and Hunter 2.5 wocf > <PRE>Did anyone see the episode of 7th heaven it brought tears to my eyes and my > 10 year old when Katelynn was talking about how she feels about having CF was > say Yep that's right Mom that's how I feel. I thought it was GREAT! Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 She probably was Rosemary and they just edited it out so it looked perfect Don't you wish sometimes we could just edit out the coughs? Christy N. > The dad's comments about his heart breaking into a thousand pieces got me. I > loved at the end her horse back riding.... would have been > coughing!!!!!!! > > > > Rosemary in New York with 3 children with CF - they are 12, 10, 6...I coined > the phrase " BREATHE DAMMIT " ; and now we have a dog named - are you ready for > this - TOBI after their medication! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 AAAWWW how sweet . hates that show (bad acting, stupid characters, insipid story lines) but I used to like it and kind of still do. So I made her watch it with me and she didn't really say anything except (sarcastically), " OK she's in the hospital for one day on IV's and the next day she is out riding her horse with no IV line (we don't know, maybe she has a port--but I didn't point that out) and she isn't coughing at all. " Well this is true, but they did handle CF better than most TV shows do, probably (DUH) because the girl who played Katelyn really has CF. oh well, Its good to see CF getting attention on a popular TV show anyway. love, M Re: Re: 7th heaven What was really cool im our house is that Milan was all over the place for all the other story lines but as soon as she so much as heard one of the girl's voices, she was in front of the TV in a flash as did not move a muscle until the commercial. Every time they said CF or Cystic Fibrosis, she would look up and tell me " I have that. " Tucker Mom of Milan 4 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 I watched the show, and sap that I am, started crying before the show even started -- all it took was the voice-over talking about the show being inspired by a true story. I agree with -- 7th Heaven has " bad acting, stupid characters and insipid story lines " -- even when it isn't about CF. I was a disappointed that Reverend Camden's lines sounded like they were taken straight from a promotional brochure from the CFF. To add a bit of realism, at least he could have explained to his daughter just how he happened to know so much about CF. Aside from the program itself, just out of curiosity -- remember the hospital scene? Katelyn was hooked to an IV but I don't remember where the line lead to -- was it into her arm, like a PICC, or higher up, like a line leading to a port? And if it was a PICC, I'm wondering if people can still ride horses with a PICC line in place? Wouldn't using the reigns tug your arm and possibly compromise a PICC line? has only had a PICC once (knock wood), and they told him no heavy lifting or anything that might tug the arm while the line was in place. Any CF equestrians out there that can answer this? It didn't bother me that she was only in-patient a couple days; I know some people get PICCs put in on an out-patient basis, then have a home care nurse come draw blood to check peak and trough levels to take back to the lab. And it didn't bother me that she wasn't coughing while riding the horse or in the hospital because lots of people with CF don't cough all the time... But did you see the dust flying when Kately and -- what's that youngest Camden girl's name? -- got on the horses at the beginning of the show? I thought that sudden wind and flying dust was surely the foreshadowing that Katelyn would land in the hospital. But when Rev. Camden called to see if his daughter could visit Kately in the hospital, we learn that this was basicall tune-up time. Kim AAAWWW how sweet . hates that show (bad acting, stupid characters, insipid story lines) but I used to like it and kind of still do. So I made her watch it with me and she didn't really say anything except (sarcastically), " OK she's in the hospital for one day on IV's and the next day she is out riding her horse with no IV line (we don't know, maybe she has a port--but I didn't point that out) and she isn't coughing at all. " Well this is true, but they did handle CF better than most TV shows do, probably (DUH) because the girl who played Katelyn really has CF. > > oh well, Its good to see CF getting attention on a popular TV show anyway. > > love, > M > > > Re: Re: 7th heaven > > > > What was really cool im our house is that Milan was all over the place for all the other story lines but as soon as she so much as heard one of the girl's voices, she was in front of the TV in a flash as did not move a muscle until the commercial. > Every time they said CF or Cystic Fibrosis, she would look up and tell me " I have that. " > > > Tucker > Mom of Milan 4 wcf > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 --- Well, I think any thing that will help people be more aware of CF helps. You know, some people that I have told about Amber having CF, say (what is CF). So even if this got to a few people, its better then none. Margo In cfparents , " paynekimj <kimpayne@c...> " <kimpayne@c...> wrote: > I watched the show, and sap that I am, started crying before the show > even started -- all it took was the voice-over talking about the show > being inspired by a true story. > > I agree with -- 7th Heaven has " bad acting, stupid characters > and insipid story lines " -- even when it isn't about CF. > > I was a disappointed that Reverend Camden's lines sounded like they > were taken straight from a promotional brochure from the CFF. To add > a bit of realism, at least he could have explained to his daughter > just how he happened to know so much about CF. > > Aside from the program itself, just out of curiosity -- remember the > hospital scene? Katelyn was hooked to an IV but I don't remember where > the line lead to -- was it into her arm, like a PICC, or higher up, > like a line leading to a port? > > And if it was a PICC, I'm wondering if people can still ride horses > with a PICC line in place? Wouldn't using the reigns tug your arm and > possibly compromise a PICC line? > > has only had a PICC once (knock wood), and they told him no > heavy lifting or anything that might tug the arm while the line was in > place. > > Any CF equestrians out there that can answer this? > > It didn't bother me that she was only in-patient a couple days; I know > some people get PICCs put in on an out-patient basis, then have a home > care nurse come draw blood to check peak and trough levels to take > back to the lab. > > And it didn't bother me that she wasn't coughing while riding the > horse or in the hospital because lots of people with CF don't cough > all the time... > > But did you see the dust flying when Kately and -- what's that > youngest Camden girl's name? -- got on the horses at the beginning of > the show? I thought that sudden wind and flying dust was surely the > foreshadowing that Katelyn would land in the hospital. But when Rev. > Camden called to see if his daughter could visit Kately in the > hospital, we learn that this was basicall tune-up time. > > Kim > > > > AAAWWW how sweet . hates that show (bad acting, > stupid characters, insipid story lines) but I used to like it and kind > of still do. So I made her watch it with me and she didn't really say > anything except (sarcastically), " OK she's in the hospital for one day > on IV's and the next day she is out riding her horse with no IV line > (we don't know, maybe she has a port--but I didn't point that out) and > she isn't coughing at all. " Well this is true, but they did handle CF > better than most TV shows do, probably (DUH) because the girl who > played Katelyn really has CF. > > > > oh well, Its good to see CF getting attention on a popular TV show > anyway. > > > > love, > > M > > > > > > Re: Re: 7th heaven > > > > > > > > What was really cool im our house is that Milan was all over the > place for all the other story lines but as soon as she so much as > heard one of the girl's voices, she was in front of the TV in a flash > as did not move a muscle until the commercial. > > Every time they said CF or Cystic Fibrosis, she would look up and > tell me " I have that. " > > > > > > Tucker > > Mom of Milan 4 wcf > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 i also enjoyed the show. As for the coughing from the dust and stuff at the stables. My dd that does not have cf rides and we take our 3 yr old ds that has cf with us all the time. He has had no problems. He doesn't cough while we are there or once we get home. He goes in the barns, runs all over the place and plays in the dirt. We havew also taken him to a couple of horse shows. He loves being around all the animals and dirt. He also goes to my moms who lives on 26 acres and has 7-8 horses and it hasn't bothered him yet. My sister went to school with a boy that has cf and he rode horse and did barrel racing. He coughed but my sister says he is a great rider. My mom has seen him at a couple of fairs. He rides wonderfully. I just a post my experience with horseback riding and cf. mom to Breanna 11yr old wocf and Noah 3 wcf > AAAWWW how sweet . hates that show (bad acting, stupid characters, insipid story lines) but I used to like it and kind of still do. So I made her watch it with me and she didn't really say anything except (sarcastically), " OK she's in the hospital for one day on IV's and the next day she is out riding her horse with no IV line (we don't know, maybe she has a port--but I didn't point that out) and she isn't coughing at all. " Well this is true, but they did handle CF better than most TV shows do, probably (DUH) because the girl who played Katelyn really has CF. > > oh well, Its good to see CF getting attention on a popular TV show anyway. > > love, > M > > > Re: Re: 7th heaven > > > > What was really cool im our house is that Milan was all over the place for all the other story lines but as soon as she so much as heard one of the girl's voices, she was in front of the TV in a flash as did not move a muscle until the commercial. > Every time they said CF or Cystic Fibrosis, she would look up and tell me " I have that. " > > > Tucker > Mom of Milan 4 wcf > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 omg that is so cute . i just seen you web page she is so pretty patty mom of 2 daughters with cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 I also cried, watching it in the hospital while your child is getting i.v.s and chest p.t. makes you cry at everything, especially if it's CF related. told me to stop or she was going to change the channel because I was embarrassing her. Teenagers (LOL)! mom to 14 w/cf, Cody 11 wocf, Zoey 4 wocf, Evan 4mnths w/cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2003 Report Share Posted January 21, 2003 ---My daughter Amber w/cf also rides, we have two horses of our own. She does have problems sometimes if the Arena is dusty or if she is in a stall too long. But her doctor said, she has to live a normal life and have fun. If she gets to coughing to much we just stop. We go to fair every yr and she shows her horses, they keep the stalls pretty clean. The riding seems to help loosen things up, and I always make her come home after a long ride and do her flutter. I see it as therapy, kind of like the vest. Margo In cfparents , " <jleffler9499@y...> " <jleffler9499@y...> wrote: > i also enjoyed the show. As for the coughing from the dust and stuff > at the stables. My dd that does not have cf rides and we take our 3 > yr old ds that has cf with us all the time. He has had no problems. > He doesn't cough while we are there or once we get home. He goes in > the barns, runs all over the place and plays in the dirt. We havew > also taken him to a couple of horse shows. He loves being around all > the animals and dirt. He also goes to my moms who lives on 26 acres > and has 7-8 horses and it hasn't bothered him yet. My sister went to > school with a boy that has cf and he rode horse and did barrel > racing. He coughed but my sister says he is a great rider. My mom > has seen him at a couple of fairs. He rides wonderfully. I just a > post my experience with horseback riding and cf. > > mom to Breanna 11yr old wocf and Noah 3 wcf > > > > AAAWWW how sweet . hates that show (bad acting, > stupid characters, insipid story lines) but I used to like it and > kind of still do. So I made her watch it with me and she didn't > really say anything except (sarcastically), " OK she's in the hospital > for one day on IV's and the next day she is out riding her horse with > no IV line (we don't know, maybe she has a port--but I didn't point > that out) and she isn't coughing at all. " Well this is true, but > they did handle CF better than most TV shows do, probably (DUH) > because the girl who played Katelyn really has CF. > > > > oh well, Its good to see CF getting attention on a popular TV show > anyway. > > > > love, > > M > > > > > > Re: Re: 7th heaven > > > > > > > > What was really cool im our house is that Milan was all over the > place for all the other story lines but as soon as she so much as > heard one of the girl's voices, she was in front of the TV in a flash > as did not move a muscle until the commercial. > > Every time they said CF or Cystic Fibrosis, she would look up and > tell me " I have that. " > > > > > > Tucker > > Mom of Milan 4 wcf > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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