Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Gale, I actually said to a person once " why did you think she would have two heads? " . This person has never bothered with us but was terribly anxious to see a photo of Eilish, of which I lied and said I didn't have one. Re: Doctors ignorant of Cf I've heard people say " She looks so well " , but they say it as if they thought that she would look otherwise. You just wonder what they expected her to look like. Grandmother to Abby, Gale > can I ask what is wrong with people saying she looks so well? She is well, she is not sick unless she has flue or cold etc, she wasnt born unwell she was just born with CF. Thats how I view Liams situation I guess thats just the way I can handle it. I really appreciate when people say he looks well and good, I just agree because he is. > > Doctors ignorant of Cf > > > We went out to dinner this evening with my boss and his wife who are > both GP's. My bosses son (ENT Surgeon), his wife (GP), other son > (Orthopaedic surgeon) his wife (Ortho. surgeon). They chatted to me > about cf and were very interested to find out things. Even the GP's > said they don't know much about Cf, as most cf kids go through the > clinics. So I got a chance to tell them about the enzymes and salt > powder as I was doing it. I still heard the usual " she looks so good, > so much energy. So that saying never stops. At least I got a chance to > speak with (Eilishs ENT) about when her surgery would suit us (have > to have some perks). My parents came also. My dad got a free > consultation, which is good for him. If one of us had a heart attack > we'd be crushed in the stampede. > > Also one of the usual dr's that come didn't come. Their son was > diagnosed three months ago with inoperable cancer of the and he is in a > wheel chair and cant talk. They expect him to die any day. That was > very sad and made me appreciate Eilish all the more. You just never > know what's around the corner. This poor guy passed his dr's > examination 2 months ago while he was lying dying in a hsp bed. > > Anyway sorry about that depressing story. Just wanted to remind myself > actually how lucky we are. Even though I hate Cf and would do anything > to remove it, things could be worse. > > > > > Quote Link to comment Share on other sites More sharing options...
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