Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 My son also uses Ace. also know as mucomyst .It smell like rotten eggs .He also uses Pulmozyne . And yes we live in the state of Louisiana.So still in the states they use this and since 2000 he has never been at the club at all so it works wonders for the lungs. Debbie mom to Sharon 17 ncf, 11 ncf & 3 wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hi , welcome to the list! You and your hubby will find hundreds of people here to show you that you are really not alone. Grapefruit seed extract is a natural antibiotic. Some parents from Germany use it with success, but I have not given it to my daughter yet. Acetylcysteine is the generic name of Mucomyst. It's used either in inhaled form as a mucolytic or orally to prevent intestinal blockages. Fiona takes 10 ml a day since her dx, it's part of the german CF standard treatment. Peace Torsten, dad of Fiona 5wcf e-mail: torstenkrafft@... Re: Mucus lightens with GSE > Hi, my name is Wickman and i have a 9yr old daughter named > Miah with cystic fibrosis. I'v never heard of liquid grapefruit or > of Accetyl Cystein, how does it work? Miah has a GI tube in her > stomache and we put all her liquid meds thruough it. We live in > Alaska and have to travel to Seattle WA. everytime we need a clean- > out or check up. My husband and i just joined this sight because we > needed to know we were'nt alone. Thanxs for letting me chat. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 That rotten egg smell of Mucomyst is because N-Acetyl-Cysteine (NAC) is derived from cysteine, an amino acid. Amino acids are protein building blocks; there are 22 known amino acids, but cysteine is one of the few that contains sulfur. Sulfur contributes to fat digestion. Also, the body also makes taurine from cysteine, and taurine is necessary for proper fat absorption. Sulfur amino acids (proteins) are found in meat, poultry, beans, dairy products, eggs, garlic, onions, brussel sprouts, brocolli, kale and many other foods. So it's the sulfur that gives NAC that " rotten egg " smell. But rest assured, the sulfur is a very good thing indeed! For those of you who have ever ventured to Myaka State Park in south Florida and have sampled the water from the water fountains and smelled that strong rotten egg smell, you know you're drinking sulfur-rich water. Kim Mom of (23 1/2 with asthma and cf) and (20 asthma no cf) > My son also uses Ace. also know as mucomyst .It smell like rotten eggs .He > also uses Pulmozyne . And yes we live in the state of Louisiana.So still in > the states they use this and since 2000 he has never been at the club at all > so it works wonders for the lungs. > > Debbie mom to Sharon 17 ncf, 11 ncf & 3 wcf > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 Hey Torsten, What are you using to disguise the taste of the Mucomyst for Fiona? We always use Coca-cola. (CF diets! Coco-cola for breakfast!!) - Mum to Cate 10yrs wocf and Sian 6yrs wcf, asthma, GERD and ADD? Canberra Australia- Quote Link to comment Share on other sites More sharing options...
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