Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 I am new to the list. My daughter, Savannah, is 10 months old. She was diagonosed with CF at 3 months of age. She has been doing very well and has not been in the hospital since her diagnosis. We went to see the doc a few days ago due to a new cough and they did chest x rays, etc. and determined she has bronchitis. But her weight is up, we have finally reached 15lbs!!! The main reason I joined this group is to find out from other parents how they juggle the demands of CF (meds, doctor appointments, insurance issues, emotional situations), work, daycare/nannies, family life, etc. We have decided for our daughter that one of the best approaches we can take is to try and give her a normal life. Of course we make her take the meds and do her CPT. But we do place her in a private daycare ( less than a mile from our office )so she can be exposed to other kids, etc. We seem more easy going than a lot of other parents we know that have kids with CF. Anyway, I am curios how other families seem to juggle everything effectivly... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.