Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 hi little update here for you well sunday night husband threw out his back and doctor put him on some heavy pain killers and i did not feel comfy leaving the other two kids with him so hunter did not go in i have to reschedule that one. devin was in till thursday and boy they really changed his eating schedule i now have to feed him at 8 11 2 5 8 11 2 5 the eight oclock ones have about ten things that i have too do and then lotion four times a day to his whole body for his dry skin bath every other day with specail lotion and site care three times a day with peroxide and bactroban when he eats his baby food i have too take four differnt kinds one ounce each and if they are too thin mix to pudding thickness with rice cereal so that gets to be alot i am so wore down already and its only been two days so far grr sp there is the update take care heather hope everyone is doing well and we are swithcing peds i asked her to do the dna study for cf she wont do it and my four year old id having bowl trouble and she says it is just jealousy what ever and then on top of that they switched devin's feeding schedule and he gained two pounds and they turned us in fpr neglect what a bunch of pooey the reason he gained so much is cuz they changed it and added so much more stuff to it makes me so mad so now we will doctor in albert lea for priamry and st paul's children's hospital for the major things Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 , You poor thing. How can they say you've neglected him for not gaining weight. If that's the case nearly all cf parents have neglected their child. Eilish gains weight in hsp. as she cant be as active as at home. Common sense really. I hope it works out for you. (Australia) devin update hi little update here for you well sunday night husband threw out his back and doctor put him on some heavy pain killers and i did not feel comfy leaving the other two kids with him so hunter did not go in i have to reschedule that one. devin was in till thursday and boy they really changed his eating schedule i now have to feed him at 8 11 2 5 8 11 2 5 the eight oclock ones have about ten things that i have too do and then lotion four times a day to his whole body for his dry skin bath every other day with specail lotion and site care three times a day with peroxide and bactroban when he eats his baby food i have too take four differnt kinds one ounce each and if they are too thin mix to pudding thickness with rice cereal so that gets to be alot i am so wore down already and its only been two days so far grr sp there is the update take care heather hope everyone is doing well and we are swithcing peds i asked her to do the dna study for cf she wont do it and my four year old id having bowl trouble and she says it is just jealousy what ever and then on top of that they switched devin's feeding schedule and he gained two pounds and they turned us in fpr neglect what a bunch of pooey the reason he gained so much is cuz they changed it and added so much more stuff to it makes me so mad so now we will doctor in albert lea for priamry and st paul's children's hospital for the major things Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2003 Report Share Posted January 19, 2003 I haven't been keeping up with the messages lately, but it sounds like you're having a really tough time. I am sorry to hear about that. My granddaughter also eats every three hours. She is gaining nicely and has gone from the 3% range to the 50% range. She also has to have her food thickened. She has trouble swallowing. Hang in there. Gale > hi little update here for you well sunday night husband threw out > his back and doctor put him on some heavy pain killers and i did not > feel comfy leaving the other two kids with him so hunter did not go > in i have to reschedule that one. > devin was in till thursday and boy they really changed his eating > schedule i now have to feed him at 8 11 2 5 8 11 2 5 the eight > oclock ones have about ten things that i have too do and then lotion > four times a day to his whole body for his dry skin bath every other > day with specail lotion and site care three times a day with > peroxide and bactroban when he eats his baby food i have too take > four differnt kinds one ounce each and if they are too thin mix to > pudding thickness with rice cereal so that gets to be alot i am so > wore down already and its only been two days so far grr > sp there is the update > take care heather > hope everyone is doing well > and we are swithcing peds i asked her to do the dna study for cf she > wont do it and my four year old id having bowl trouble and she says > it is just jealousy what ever and then on top of that they switched > devin's feeding schedule and he gained two pounds and they turned us > in fpr neglect what a bunch of pooey the reason he gained so much is > cuz they changed it and added so much more stuff to it makes me so > mad so now we will doctor in albert lea for priamry and st paul's > children's hospital for the major things Quote Link to comment Share on other sites More sharing options...
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