Vitamin E

[Guest guest]

I also have a son with a severe peanut allergy. These kids with

food allergies are more vulnerable and have immune systems that kick

into overdrive when something considered " foreign " comes in. What

lots of folks don't realize about food allergies is that you can eat

the offending item several times before it causes a severe

reaction. So they give their 2 year old peanut butter 2, 3 times

and then on time #4, they get hives and worse. Another thing to

note: the best allergists recommend that if you have a food allergy

in your family that you hold off on the biggest offenders until the

child is 5!!! That means no peanuts, tree nuts, eggs and shellfish

until 5. Other items - like dairy, wheat and soy - should be

introduced very carefully and watched. I cringe every time I see

someone feeding their kid peanut butter at 2. Why? Because - in

all likelihood - if I hadn't exposed my son to it so early, he

wouldn't be allergic to it. Some kids - like ours - need a while to

allow their immune systems to fully mature. Another thing to note:

peanuts and treenuts are generally transported and processed in the

same facilities. That's one of the main reasons why people allergic

to one don't eat the other. All it takes is 1/10,000th of a peanut

to cause anaphylactic shock.

As for the rarity of food allergies, it's definitely on the rise.

How much so no one really knows until the studies are produced

several years later. I can tell you that we are in a VERY small

district - perhaps 700 primary students in 3 different schools - and

there are at least 9 epipen carrying kids that I know of (and we

find each other pretty quickly). Even the pharmacists comment on

how many more epipens they dole out now. Who really knows why -

perhaps it's the environment, perhaps it's the increased amount of

odd additives in topical products, perhaps it's the increased

exposure to varieties of foods at an earlier age. My theory is a

combination of all 3. Check the labels of the high-end baby

products - many of them have peanut oil in them. Tide reportedly

USED to use ground peanut shells in their powdered detergent to give

it loft. I give them credit (if it's true) for being " green " but

even now with the better labeling laws, they need not report it.

Did you know that aquafresh toothpaste is not ok for peanut allergic

folks? And dog biscuits? And the list goes on...

Did you know that one of the fastest growing food allergies

internationally is to sesame seeds - particularly in Asia? There

must be some clues there.

As for whether or not " our kids " with neuro-dev issues are more at

risk, I believe they are. I belong to lots of lists and there's

always a handful of us with kids with anaphylactic food responses.

The ratio is too high for it to be a coincidence. Also, when I told

my allergist's office that my son had special needs before coming

in, they told me that a really high ratio of their patients are SN.

My son who is allergic to peanuts has a communication disorder - not

apraxia (that's my older son). Talk about vulnerable. We can't

even explain it to him so he can self-regulate his own food because

all he knows is that " peanuts will make me sick " - he doesn't have

the understanding (yet) for us to go into detail. Nor could he tell

me that his throat felt itchy or weird or anything for years. It

was and remains very scary.

Food allergies are nothing to mess with or downplay. A few signs to

watch out for:

1. excema as an infant

2. frequent vomiting - particularly in restaurants as they get

older. We left more restaurants in shame than I can tell you.

unexplained hives

3. kids complaining that they " don't like " entire categories of

foods. They know how it makes them feel.

4. Odd breathing patterns. I had my son in to several specialists

at our local children's hospital - they even scoped him - because he

had strange breathing patterns as an infant. Later, we took him to

the ER 2x for hyperventilating for no reason. We were told that it

was because there was alot going on at our house (it was 2 days

before xmas). NOooooooooooooooooooooo - it was because he had eaten

cookies my mom had made with traces of peanuts in them. He was

having difficulty breathing. No one caught it.

5. having a family history of allergies - any allergies. Though

it's known that food allergies run in families, it is also known

that genetically, you pass on the gene to have an allergic

response. WHAT you are allergic to is all based on exposure. So,

you're allergic to ragweed...what will your child be allergic to?

6. an interesting question on allergist's questionaires: are there

any incidents of unexplained infant/child mortality in your

families? Sure enough, my grandmother had 12 children. 1 of them

died from influenza, 3 live now, and the rest died as infants or in

early childhood. None of them made it past 4, and most made it only

to 1 or 2. My father - her 5th child - has a bizarre reaction to

tree nuts - mostly walnuts - but his developed later in life.

How did we finally learn? He pulled a peanut butter sandwich (his

2nd) apart and put it on his face. His eyes swelled shut and his

lips blew up. My husband called the doctor's office and I gave him

a HUGE dose of benedryl out of instinct. It saved his life.

Don't mess with food allergies. It's a HELL of alot easier to keep

them away from shrimp and PB & Js until they're 5 than it is to spend

the rest of their lives grilling waitresses and fighting schools for

proper accomodations. Believe me.

> >

> > I'm not debating that food allergies are on the rise -they could

> > have gone from 1% of the population up a few points -but they

are

> > still rare. I do know that in all the years that my children

have

> > been in school -including preschool -there's only been one child

> > that has been in my one son Dakota's kindergarten class with a

> > severe food allergy to nuts which all of the parents in the

class

> > were made aware of so that we didn't send any foods into the

school

> > with nuts. (Dakota is now in 7th)

> >

> > Tanner in 1st grade had a child in his class who had severe

> > allergies to bee stings and she needed to have an epipen with

her

> at

> > all times -but not sure if that counts in food allergies.

(Tanner

> is

> > now in 4th)

> >

> > By the US food and drug administration food allergies are

> considered

> > to be " rare but risky "

> > " true food allergies affect a relatively small percentage of

> people:

> > Experts estimate that only 2 percent of adults, and from 2 to 8

> > percent of children, are truly allergic to certain foods. "

> >

http://www.cfsan.fda.gov/~dms/wh-alrg1.html

[Guest guest]

, just to update you on our little guy's red bumps, since I did ask your

help with them. After all this time, they are still coming and going. We saw

the pediatrician again, and still he does not know what they are. They are not

petechiae and there is no bruising. And the pediatrician says not to worry

about them. Easier said than done, but like you said, since our son is

otherwise happy and not bothered by it, mostly we are just observing them and

hoping they will eventually disappear.

Thank you so much, , for taking the time to answer my earlier query about

the red bumps. I wanted to wait until after that next appointment to answer

your question about whether they are petechiae. I thought not at the time but

wanted to be sure before I replied to this.

So again, thank you so very, very much.

Suzanne

[ ] Re: Vitamin E

Do the red bumps disappear when you press on them? Does your

pediatrician think they are petechiae??? This is probably the only

thing I would worry about. Bruising as a sign of vit E effect from

vitamin E (which you shouldn't see at the dose you are using). But

ironically ph had chronic petechiae (red dots on his chest that

would eventually fade to be replaced by more of them)...but they

have gone away on vit E supplements. Petechiae is usually a sign of

platelet problems (which prevent bleeding). Vit E is actually pretty

important for normal platelet function.

But not having seen the rash...I have no idea. It could be totally

unrelated to the supplements. Many childhood rashes are the result

of viruses. It could also be allergic to new clothes, detergent or

soap etc. Is your pediatrician concerned? If the child is happy and

not bothered by it, and its not bruising or petechiae... I wouldn't

worry about it too much. -claudia

> Having been evaluated as having several verbal and oral apraxia in

> July, we started our son (who is 27 months old now) a few weeks

later

> on ProEFA and then three weeks after that began Vitamin E 400 IU

with

> 300 mg gamma. All this is, of course, thanks to this wonderful

group

> and all the invaluable information you provide.

>

> Then all of a sudden, we were surprised to see some red bumps, like

> pimples,I guess, on his chest. And you know how it goes, you get

that

> awful lump in your throat and you are thinking, oh, no, what next.

> This started about 6 weeks after we first began the ProEFA and

about

> 2½ weeks after starting him on Vitamin E. The bumps began to fade,

> and we thought that was the end of it and were so relieved. Then

more

> started to appear in different areas of his chest. They, too,

began

> to fade until it looked again like this was clearing up. Now with

> most of the earlier bumps gone, he is getting a few more again.

>

> They don't itch. They aren't hives—his pediatrician doesn't know

what

> is causing them. They don't burst.

>

> We can't imagine what is causing them. The only new things in his

> life are the ProEFA and the Vitamin E, so naturally we are

wondering

> if it could be related to one of those. Since we doubled the

ProEFA 2

> weeks ago and didn't see any increase in the bumps, we are kind of

> thinking it must not be the ProEFA.

>

> I know you are so busy, , but with all your expertise on

> Vitamin E, I am wondering if you know of any side effects or

> conditions caused by Vitamin E, either too much or too little, that

> sound anything at all like this. He hasn't been on it all that

long.

> I wonder, also, if it could be due to some other ingredient in the

> Vitamin E.

>

> Strange symptoms of something, and it is so worrisome, as the bumps

> shouldn't be there. And strange that they come and go. I worry

that

> they are a sign of something else going wrong somewhere in his

little

> body. I have to admit that when I saw those first bumps, trying to

> figure out what in the world they could be, that I even wondered

if it

> might be chickenpox. This all started about 2½ weeks ago.

>

> Has anyone else had anything like this happen? With all that

> knowledge in this group I'm hoping that maybe someone has some

ideas

> about this.

>

> I know this sounds so weird. I wish the bumps would just go

away. I

> didn't want to bother anyone with this problem. I know it is so

> trivial compared to the many real problems that our kids have. But

> they keep coming back, and they do worry me, so I finally had to

post

> this to see if anyone has any answers.

>

> Thanks so much for your help.

> Suzanne

>

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[Guest guest]

I have not heard of the Vitamin E supplement until I joined this group. I

understand how the fish oil works but not this. My son who is 2 1/2 and

non-verbal is on 1 capsule of the NN Pro Efa. How much and what brand is

suggested of Vitamin E. I read one post about a child who it seemed to help the

sensory issues. That would be very helpful.

---------------------------------

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Play Sims Stories at Games.

---------------------------------

Shape in your own image. Join our Network Research Panel today!

[Guest guest]

I think any good quality brand is OK, but get natural E, not

synthetic. d-alpha is natural, but dl-alpha is synthetic. Tricky!

We use 100% Natural 400IU Vitamin E and High Gamma Tocopherols, both

from Vitamin World. We take one of each at breakfast and again at

dinner. We had TONS of extra sensory issues upon introduction, but

they went away after a week or two.

For us, it's hard to say if the Vitamin E is working. My son's motor

skills have definitely improved since starting the E, but that may be

from similar increases in fish oil, or therapy, or maturity, or

something else entirely. It is so hard to isolate!

Our listmate is the one who made the vitamin E discovery and

is trying to get funding for a study. Until that happens, we won't

know why it works for some and not others, what the proper dosage is,

etc. It's trial-and-error time.

There are probably archives that describe it better. Use and

Vitamin E as search terms.

in NJ

>

> I have not heard of the Vitamin E supplement until I joined this

group. I understand how the fish oil works but not this. My son who

is 2 1/2 and non-verbal is on 1 capsule of the NN Pro Efa. How much

and what brand is suggested of Vitamin E. I read one post about a

child who it seemed to help the sensory issues. That would be very

helpful.

>

>

>

> ---------------------------------

> Moody friends. Drama queens. Your life? Nope! - their life, your

story.

> Play Sims Stories at Games.

>

> ---------------------------------

> Shape in your own image. Join our Network Research Panel

today!

>

>

[Guest guest]

From " Healing the New Childhood Epidemics " (which is a great reference for

supplements and what they do)

Vit E

- is an important antioxidant

- makes B-12 more effective in removing toxins from the body

- boosts sulfation (which is a detoxification process the body uses)

- helps prevent EFAs from being oxidized

- helps restore damaged cells in the liver (an organ that helps remove toxins)

- helps protect against the damage done by saturated and oxidized fats

- reduces susceptibility of children to neuromuscular diseases

- helps boost immunity

Kim

bigcheech91 <bigcheech91@...> wrote:

I think any good quality brand is OK, but get natural E, not

synthetic. d-alpha is natural, but dl-alpha is synthetic. Tricky!

We use 100% Natural 400IU Vitamin E and High Gamma Tocopherols, both

from Vitamin World. We take one of each at breakfast and again at

dinner. We had TONS of extra sensory issues upon introduction, but

they went away after a week or two.

For us, it's hard to say if the Vitamin E is working. My son's motor

skills have definitely improved since starting the E, but that may be

from similar increases in fish oil, or therapy, or maturity, or

something else entirely. It is so hard to isolate!

Our listmate is the one who made the vitamin E discovery and

is trying to get funding for a study. Until that happens, we won't

know why it works for some and not others, what the proper dosage is,

etc. It's trial-and-error time.

There are probably archives that describe it better. Use and

Vitamin E as search terms.

in NJ

[Guest guest]

Yes, I agree with that you should do a search for and

Vitamin E to learn all you can about it. 's first post about

the benefits she saw in her son is message #50746.

We are one of the families that were blessed that Vitamin E did help

our child - and there is no question for us that it is the Vitamin E

helping. Some have dramatic changes like we did. Others have more

subtle changes. You can search on " fkewatson " messages to see our

stories.

> >

> > I have not heard of the Vitamin E supplement until I joined this

> group. I understand how the fish oil works but not this. My son who

> is 2 1/2 and non-verbal is on 1 capsule of the NN Pro Efa. How much

> and what brand is suggested of Vitamin E. I read one post about a

> child who it seemed to help the sensory issues. That would be very

> helpful.

> >

> >

> >

> > ---------------------------------

> > Moody friends. Drama queens. Your life? Nope! - their life, your

> story.

> > Play Sims Stories at Games.

> >

> > ---------------------------------

> > Shape in your own image. Join our Network Research Panel

> today!

> >

> >

[Guest guest]

Hi :

Here is the Vitamin E information that is in the links section.

Hope you find this information helpful,

Tina

EFAs and Vitamin E

Archived message: Scroll to the bottom for answers to frequently

asked questions about Vitamin E.

/message/52516

Information to start vitamin E

Information re: doses and which kind of Vitamin E to use

/message/55922

Linus ing Institute at Oregon State University

Information on Vitamin E, function, and dieficiency

http://lpi.oregonstate.edu/infocenter/vitamins/vitaminE/

Question about Vitamin E in ProEFA

Answer from Dr. Marilyn Agin

/message/20612

The beginning of vitamin E

's first message about her discovery of vitamin E helping her

son with global apraxia/dyspraxia

/message/50746

Upper limits of Vitamin E

Archived message: 's response to this question - Children's

safe vitamin E levels-where did you find?

/message/56893

Vitamin E Info

Archived message: This post has a lot of information all put into one

message that you would find in several archived messages on Vitamin

E.

/message/63144

Vitamin E and Behavior

Archived message: Changes you may see in behavior using vitamin E.

/message/53049

Vitamin E and Omega Info

Archived message: Answer to doses for omegas and vitamin E, how

omegas and vitamin E help with speech, symptoms of vitamin E

deficiency that overlap with symptoms of apraxia.

/message/52976

Vitamin K

High doses of Vitamin E can effect Vitamin K. Information on adding

Vitamin K.

/message/54249

>

> I have not heard of the Vitamin E supplement until I joined this

group. I understand how the fish oil works but not this. My son who

is 2 1/2 and non-verbal is on 1 capsule of the NN Pro Efa. How much

and what brand is suggested of Vitamin E. I read one post about a

child who it seemed to help the sensory issues. That would be very

helpful.

>

>

>

> ---------------------------------

> Moody friends. Drama queens. Your life? Nope! - their life, your

story.

> Play Sims Stories at Games.

>

> ---------------------------------

> Shape in your own image. Join our Network Research Panel

today!

>

>