Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 Hi everyone,Just wanted to introduce myself, I am Stormy, and from where I stand all signs of my health (and my 2 children) are pointing us to Mito. We are in the process of making appointments to see Dr. Shoffner here in Atlanta and Dr. Mark Korson in Boston. I have a long history of problems................aches, pains, jerks, trmbling, HA, IBS, muscle pain/tiredness, etc I have been tested for all sorts of things and was finally diagnosed with Fibromyalgia which I personally believe was an answer they gave me to " make me feel better " . My 6 yr old son has hemophilia and several yrs of leg/knee pain with no apparent reason and my 11 yr old daughter has recently began to have severe pain in her legs and arms. FINALLY after becoming good friends with a family in Boston who have this disease I was able to get my sons hematologist to run a metabloic panel on him and found that he has Carnitine defficiency so now we are on our way to making some appts happen....................lots of paperwork for insurance company, as neither doc is on the preferred list!!!!!!! To make this a bit shorter, I just wanted to say that I am tired of hurting and feeling bad and not really feeling like those close to me understand or for that matter truly believe me! It will be nice to be able to share here and ask questions! I feel like I am alwasy trying to convince others and maybe even myself that what I feel is real! Thanks so much! In Him, Stormy in GA Quote Link to comment Share on other sites More sharing options...
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