Re: Off Topic - Our special 'Board'

[Guest guest]

I have a bit of an annoyance.

I joined the Auditory Processing Boad on thinking that I would hear about

the things that the parents were doing and possibly offer some input. All of

the parents there seem to be using 'one product' which is an extremely

expensive, hard to get program called FastForward. It requires a therapist or a

school systems approval to obtain. The board is moderated by an audiologist so

I thought I might learn something.

This one poor mom after months of fighting with the system finally got the

program and tried to get her son to use it (75 minutes per day is required for

success! - yikes!); he thought it was boring and refused to comply.

I sent in a post advocating books on tape, digit spans, The Listening Program

and any other alternatives for stimulating auditory I could think of.

The moderator would not post the message. That was not the first time this has

happened on that board. I realized that Auditory Processing board is being used

for the purpose of 'selling' these parents this product and really not

introducing them to any thing else.

This really made me angry. These parents/kids should be able to get 'the best

help' from many products not just being 'duped' into thinking that only one

thing works for our kids.

It truly makes me appreciate our board and the dyspraxia families board where

all information is shared in an open, trusting and do what's best for your

child, way.

Thank you 'whoever moderates this board'! You have enabled 'free speech' and

free sharing of ideas and created a special place where we can get our kids

better using the knowledge and experience of others as our guide. I don't know

who you are but you are GREAT!

Janice

[Guest guest]

Thanks Janice -I too believe in free speech. I'm the group owner and

there are 10 moderators who have children with various diagnosis and

who don't share all of my views. Nobody is perfect and all

should be challenged -that includes me. Sometimes people complain to

me offlist about why there isn't more talk about this or that (like

therapy) and I always say that this group has a mind of it's own and

if one wants to talk about something -then just post about it and see

if others want to talk about it too. We all have things to teach and

things to learn -that's how we grow and best help our children

overcome!

About the problem with that board -Dr. Tallal is one of the advisors

to both CHERAB

http://www.cherab.org/information/speechlanguage/phonologicalawareness

activities.html and Speechville

http://www.speechville.com/bios/tallal.html and she was one of the

creators of FastForWord. Do you want me to share this with her and

get a response you can post to this group?

=====

[Guest guest]

I don't want to create a 'stink' but I do feel sorry for those parents and their

children who mistakenly believe that this program is the ONLY way to help their

kids. A lot of the stuff we can do for our children is accessible to all and

doesn't require spending all of your family resources. While some $$$ is useful

to purchase the latest in technology, it doesn't have to be a requirement for

helping your child successfully.

I was indeed disappointed to find that my posts advocating other ideas and other

potential solutions have mostly not made it to that board. In the end, it makes

me appreciate what a special place our board is.

I say it again. You have created a WONDERFUL place where I can trust that we

will hear a wide variety of viewpoints, opinions and sharing of what works for

our little ones without censureship. Our children are so precious and we are

all so dedicated to helping them. I have learned so much here and hopefully

have taught much too.

I came on to this board knowing a lot of therapy techniques but little about the

importance of vitamins and resolving the 'gut' issues. It is the first place I

come to for my morning coffee!

So, a heartfelt THANK YOU is in order! We moms on this board have found peace

and comfort in sharing our wisdom and we owe it all in great measure to you....

Janice

[sPAM] [ ] Re: Off Topic - Our special 'Board'

Thanks Janice -I too believe in free speech. I'm the group owner and

there are 10 moderators who have children with various diagnosis and

who don't share all of my views. Nobody is perfect and all

should be challenged -that includes me. Sometimes people complain to

me offlist about why there isn't more talk about this or that (like

therapy) and I always say that this group has a mind of it's own and

if one wants to talk about something -then just post about it and see

if others want to talk about it too. We all have things to teach and

things to learn -that's how we grow and best help our children

overcome!

About the problem with that board -Dr. Tallal is one of the advisors

to both CHERAB

http://www.cherab.org/information/speechlanguage/phonologicalawareness

activities.html and Speechville

http://www.speechville.com/bios/tallal.html and she was one of the

creators of FastForWord. Do you want me to share this with her and

get a response you can post to this group?

=====

[Guest guest]

Janice...I am on that board too and I have had a different experience. My first

introduction email was answered by several people with lots of advice...mostly

books to read. Also, I learned from the audiologist who moderates the board

that children in preschool can be tested for APD. That was definitely of

interest to me because I had always been told they had to be 6 or 7. Actually

no one tried to sell me Fast Forward either. It is not anywhere near as active

as this board but I have gotten answers to any questions I have asked. I

definitely agree with you though about this board. It is special. ) Aggie

[ ] Re: Off Topic - Our special 'Board'

I have a bit of an annoyance.

I joined the Auditory Processing Boad on thinking that I would hear

about the things that the parents were doing and possibly offer some input. All

of the parents there seem to be using 'one product' which is an extremely

expensive, hard to get program called FastForward. It requires a therapist or a

school systems approval to obtain. The board is moderated by an audiologist so I

thought I might learn something.

This one poor mom after months of fighting with the system finally got the

program and tried to get her son to use it (75 minutes per day is required for

success! - yikes!); he thought it was boring and refused to comply.

I sent in a post advocating books on tape, digit spans, The Listening Program

and any other alternatives for stimulating auditory I could think of.

The moderator would not post the message. That was not the first time this has

happened on that board. I realized that Auditory Processing board is being used

for the purpose of 'selling' these parents this product and really not

introducing them to any thing else.

This really made me angry. These parents/kids should be able to get 'the best

help' from many products not just being 'duped' into thinking that only one

thing works for our kids.

It truly makes me appreciate our board and the dyspraxia families board where

all information is shared in an open, trusting and do what's best for your

child, way.

Thank you 'whoever moderates this board'! You have enabled 'free speech' and

free sharing of ideas and created a special place where we can get our kids

better using the knowledge and experience of others as our guide. I don't know

who you are but you are GREAT!

Janice

[Guest guest]

Aggie,

Just about every message I had posted informing and advocating other techniques

and technologies did not made it to the board.

(I put a lot of time and thought into those posts) At any rate, I'll just stick

close to 'our home'.

Janice

[ ] Re: Off Topic - Our special 'Board'

I have a bit of an annoyance.

I joined the Auditory Processing Boad on thinking that I would hear

about the things that the parents were doing and possibly offer some input. All

of the parents there seem to be using 'one product' which is an extremely

expensive, hard to get program called FastForward. It requires a therapist or a

school systems approval to obtain. The board is moderated by an audiologist so I

thought I might learn something.

This one poor mom after months of fighting with the system finally got the

program and tried to get her son to use it (75 minutes per day is required for

success! - yikes!); he thought it was boring and refused to comply.

I sent in a post advocating books on tape, digit spans, The Listening Program

and any other alternatives for stimulating auditory I could think of.

The moderator would not post the message. That was not the first time this has

happened on that board. I realized that Auditory Processing board is being used

for the purpose of 'selling' these parents this product and really not

introducing them to any thing else.

This really made me angry. These parents/kids should be able to get 'the best

help' from many products not just being 'duped' into thinking that only one

thing works for our kids.

It truly makes me appreciate our board and the dyspraxia families board where

all information is shared in an open, trusting and do what's best for your

child, way.

Thank you 'whoever moderates this board'! You have enabled 'free speech' and

free sharing of ideas and created a special place where we can get our kids

better using the knowledge and experience of others as our guide. I don't know

who you are but you are GREAT!

Janice

[Guest guest]

Janice,

Thanks for your observation I just started with one

that seems to be kinda " selling products " too.

I want to thank everyone on this board too- I am so

appreciative of all the responses to my questions-

particularly about the ABA, dosing..... . I have felt

very alone with - who has no diagnosis, but I

feel so much " at home " with this amazing board and it

has given my husband and I such hope and encouragement

to keep going!!!!

Thanks to all,

Kathy

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Building a website is a piece of cake. Small Business gives you all the

tools to get online.

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[Guest guest]

Just wanted to make a Fast Forward comment. An excellent sensory OT

in our area said that The Therapeutic Listening program should be

used before the Fast Forward program. She has seen quite a few kids

not benefit from Fast Forward until she took them back to

the " basics " and had them do The Therapeutic Listening program.

M.

>

> I don't know Janet. I've only posted a few times to that board but

they always posted and I was satisfied with the answers. The last

time, I asked some questions about my grandson and the doctor emailed

me off the board because of confidentiality reasons. I liked him a

lot and I am probably going to make an appointment with him. He

seems like he knows a lot about young children and APD. I am trying

to figure out whether he is in network or not. I'm sorry that

happened to you. This board does have a very knowledgeable group of

people who are very willing to share. Aggie

> [ ] Re: Off Topic - Our special 'Board'

>

> I have a bit of an annoyance.

>

> I joined the Auditory Processing Boad on thinking that I

would hear about the things that the parents were doing and possibly

offer some input. All of the parents there seem to be using 'one

product' which is an extremely expensive, hard to get program called

FastForward. It requires a therapist or a school systems approval to

obtain. The board is moderated by an audiologist so I thought I might

learn something.

>

> This one poor mom after months of fighting with the system

finally got the program and tried to get her son to use it (75

minutes per day is required for success! - yikes!); he thought it was

boring and refused to comply.

>

> I sent in a post advocating books on tape, digit spans, The

Listening Program and any other alternatives for stimulating auditory

I could think of.

>

> The moderator would not post the message. That was not the first

time this has happened on that board. I realized that Auditory

Processing board is being used for the purpose of 'selling' these

parents this product and really not introducing them to any thing

else.

>

> This really made me angry. These parents/kids should be able to

get 'the best help' from many products not just being 'duped' into

thinking that only one thing works for our kids.

>

> It truly makes me appreciate our board and the dyspraxia families

board where all information is shared in an open, trusting and do

what's best for your child, way.

>

> Thank you 'whoever moderates this board'! You have enabled 'free

speech' and free sharing of ideas and created a special place where

we can get our kids better using the knowledge and experience of

others as our guide. I don't know who you are but you are GREAT!

>

> Janice

>

>

[Guest guest]

We also looked into Fast Forword at one point. I talked with a therapist who

administers the program and posted on another special needs board to get advice.

The program is very expensive and all the moms who posted on the special needs

board said it did help some but felt for the money it wasn't really worth it.

Thankfully we have seen much progress with other, more affordable solutions,

many of which have been recommended here. Add my " thanks " to all the others,

both for the board and for all the dedicated moms out there willing to share

what they have learned. You ladies are awesome!

Kim with 4 cuties

elmccann <elmccann@...> wrote:

Just wanted to make a Fast Forward comment. An excellent sensory OT

in our area said that The Therapeutic Listening program should be

used before the Fast Forward program. She has seen quite a few kids

not benefit from Fast Forward until she took them back to

the " basics " and had them do The Therapeutic Listening program.

M.

>

> I don't know Janet. I've only posted a few times to that board but

they always posted and I was satisfied with the answers. The last

time, I asked some questions about my grandson and the doctor emailed

me off the board because of confidentiality reasons. I liked him a

lot and I am probably going to make an appointment with him. He

seems like he knows a lot about young children and APD. I am trying

to figure out whether he is in network or not. I'm sorry that

happened to you. This board does have a very knowledgeable group of

people who are very willing to share. Aggie

> [ ] Re: Off Topic - Our special 'Board'

>

> I have a bit of an annoyance.

>

> I joined the Auditory Processing Boad on thinking that I

would hear about the things that the parents were doing and possibly

offer some input. All of the parents there seem to be using 'one

product' which is an extremely expensive, hard to get program called

FastForward. It requires a therapist or a school systems approval to

obtain. The board is moderated by an audiologist so I thought I might

learn something.

>

> This one poor mom after months of fighting with the system

finally got the program and tried to get her son to use it (75

minutes per day is required for success! - yikes!); he thought it was

boring and refused to comply.

>

> I sent in a post advocating books on tape, digit spans, The

Listening Program and any other alternatives for stimulating auditory

I could think of.

>

> The moderator would not post the message. That was not the first

time this has happened on that board. I realized that Auditory

Processing board is being used for the purpose of 'selling' these

parents this product and really not introducing them to any thing

else.

>

> This really made me angry. These parents/kids should be able to

get 'the best help' from many products not just being 'duped' into

thinking that only one thing works for our kids.

>

> It truly makes me appreciate our board and the dyspraxia families

board where all information is shared in an open, trusting and do

what's best for your child, way.

>

> Thank you 'whoever moderates this board'! You have enabled 'free

speech' and free sharing of ideas and created a special place where

we can get our kids better using the knowledge and experience of

others as our guide. I don't know who you are but you are GREAT!

>

> Janice

>

>