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Hope this makes it's way on to you at your new home as I would like wish you

the best as far as a definitive diagnosis. Good Luck and God Bless, Dolores

klaga5 klaga5@...> wrote:Hi, I just moved, and don't have internet

service yet, so have only

been on line when I can get to the library. I hope you're all doing

well.

I'm still waiting for results of the electron microscope study of my

muscle, and the genetic tests.

Both Dr Schoffners office and Dr Cohens offices have contacted me about

going there. Ohio is closer for me, but I would see an associate of Dr

Cohen, not him. Do any of you know any of the other doctors in his

office, and if they're good.

If my outstanding tests yeild a diagnosis, I may not need to go to

either, but I don't know yet.

Also, if my outstanding tests do yeild a diagnosis, is there benefit to

getting a fresh biopsy to get a more exact diagnosis? Would it change

the suppliments given? Do I need to go to one of them no matter what

to get the best treatment? It does seem the docs in this area aren't

very familiar with these diseases or their treatments.

Thank you in advance for your opinions.

Kim

Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

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Kim

Suppliments are mainly trial and error. I wouldn't start anything

without a docs approval, but some of the MDA docs could do this.

I hope you get your computer on-line soon.

laurie

> Hope this makes it's way on to you at your new home as I would like wish you

the best as far as a definitive diagnosis. Good Luck and God Bless, Dolores

>

> klaga5 klaga5@...> wrote:Hi, I just moved, and don't have internet

service yet, so have only

> been on line when I can get to the library. I hope you're all doing

> well.

> I'm still waiting for results of the electron microscope study of my

> muscle, and the genetic tests.

> Both Dr Schoffners office and Dr Cohens offices have contacted me about

> going there. Ohio is closer for me, but I would see an associate of Dr

> Cohen, not him. Do any of you know any of the other doctors in his

> office, and if they're good.

> If my outstanding tests yeild a diagnosis, I may not need to go to

> either, but I don't know yet.

> Also, if my outstanding tests do yeild a diagnosis, is there benefit to

> getting a fresh biopsy to get a more exact diagnosis? Would it change

> the suppliments given? Do I need to go to one of them no matter what

> to get the best treatment? It does seem the docs in this area aren't

> very familiar with these diseases or their treatments.

> Thank you in advance for your opinions.

> Kim

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>

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