Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 , I'm not sure if you were annoyed by my post or what, as I can't quite understand the tone of yours. If I am being overly sensitive, I appologize in advance. I premised those statements with " most likely " for 3 reasons....1, because of exactly what you say....millions of people do suffer from these issues, and naturally this won't be the cause for everyone...2, because the limited number of people contributing to this thread seem to feel stongly that their children have a metal/yeast/viral/intolerance problem going on and THEY are who I was addressing...and 3, because I don't have the time to get into the entire explanation of why I believe that to be true or site the science to support it. I simply put it out there...If someone wants to pursue that, they are free to research for themselves and/or simply ask. They are also free to completely ignore it. I have belonged to this board for 3 years, and I couldn't agree with you more that the tone and topics change all the time. For most who do biomed, it is a springboard to the other boards that go more in depth about it. You seem to be implying that by discussing biomed we are somehow making parents not opting to go that route feel guilty, and should therefore not discuss it? Or that we should censor ourselves more? Please clarify, as I'm not sure what you're saying. I do not claim to have all the answers to getting all children well, and I never have. Naturally a child off of milk who isn't benefitting from it probably shouldn't have it restricted. None of these interventions are universal...what works for one child may not work for another. Hence, the word, " likely " . But I must say, without the introduction to biomed from this very list, I might never have gotten my own daughter better. It would be a shame to limit our discussions of it to protect people's feelings. I never did anything verbatim based on what anyone here told me, and I never felt guilty for not taking someone's advice. My listmates simply opened the doors for me to do my own research to find what worked for MY child. No parent or list member should do otherwise. -------------- Original message -------------- From: " karen_peikert " <jkpeikert@...> The following statements seem a little broad, particularly that they are premised by " most likely " . Eczema/Red cheeks...most likely a yeast problem caused by a metal problem. Red Ears....most likely a phenol intolerance. Black eyes....most likely a leaky gut problem, evidence of food intolerances. Literally tens of millions of people have eczema - worldwide. It seems unlikely that they all have metal problems. Maybe dietary insufficiencies? For the person who has had their child off of milk for a full year but there has been no improvement, is there a good reason to then stay off the milk? Many of these issues - like milk intolerance - make an appearance on the boards in regular cycles. One person thinks it has helped their child to go off milk, and then many either think they need to go off milk or feel guilty because they don't. Being GFCF has been around in the autism circles for quite some time - if it were universally beneficial, we would certainly know about it. Some children are helped, some are not. When a certain 'tpye' of discussion dominates the board, many begin to feel that they are the only ones who are not pursuing a particular route. Usually it is the other way around - when a topic is of relevance and interest to your child, a small group of people are completely engaged in the conversation. The majority are then quiet until a new topic starts to gain steam. Right now the topics seem to be GFCF, milk, flouride, yeast, gut issues, etc. If past experience is any indication, next month, it will probably be something completely different. Eczema/Red cheeks...most likely a yeast problem caused by a metal problem. Red Ears....most likely a phenol intolerance. Black eyes....most likely a leaky gut problem, evidence of food intolerances. -------------- Original message -------------- > From: Liz <lizlaw@...> > Is this a metal thing, a milk thing, or some other thing? Both kids had > this. We thought it was a teething thing (the cheeks) .My reading tells > me it is not a typical teething thing. I think in our case the cheeks > were a metal thing exacerbated by the milk, and then the metal was > trapped from the tylenol given. The red ears I could never get an answer > on. We left those alone. The eczema was left alone in daughter. In son > they gave us, gulp, steroid cream. I now think the big eczemaoutbreak > was an infection from a farm visit. It took a long time to go away and > the first strong cream given made it worse. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 , I can say personally you opened my eyes to what is in front of me. I suppose diet and fish oil and multivitamin fall under biomed so that is what I am doing. Others have to go further, to chelation and other methods. I am thankful that so far, that does not seem to be where we are headed but who knows? I have had no true regression yet and things seem brighter. However, any parent of one of our kids can tell you that can change and for unknown reasons. I feel metal was the missing piece of our puzzle and perhaps the biggest piece. I found it by accident and by help, yours and this list's and for that I am eternally grateful! Liz julieobradovic@... wrote: >, > >I'm not sure if you were annoyed by my post or what, as I can't quite understand the tone of yours. If I am being overly sensitive, I appologize in advance. > >I premised those statements with " most likely " for 3 reasons....1, because of exactly what you say....millions of people do suffer from these issues, and naturally this won't be the cause for everyone...2, because the limited number of people contributing to this thread seem to feel stongly that their children have a metal/yeast/viral/intolerance problem going on and THEY are who I was addressing...and 3, because I don't have the time to get into the entire explanation of why I believe that to be true or site the science to support it. I simply put it out there...If someone wants to pursue that, they are free to research for themselves and/or simply ask. They are also free to completely ignore it. > >I have belonged to this board for 3 years, and I couldn't agree with you more that the tone and topics change all the time. For most who do biomed, it is a springboard to the other boards that go more in depth about it. You seem to be implying that by discussing biomed we are somehow making parents not opting to go that route feel guilty, and should therefore not discuss it? Or that we should censor ourselves more? Please clarify, as I'm not sure what you're saying. > >I do not claim to have all the answers to getting all children well, and I never have. Naturally a child off of milk who isn't benefitting from it probably shouldn't have it restricted. None of these interventions are universal...what works for one child may not work for another. Hence, the word, " likely " . > >But I must say, without the introduction to biomed from this very list, I might never have gotten my own daughter better. It would be a shame to limit our discussions of it to protect people's feelings. I never did anything verbatim based on what anyone here told me, and I never felt guilty for not taking someone's advice. My listmates simply opened the doors for me to do my own research to find what worked for MY child. No parent or list member should do otherwise. > > > > > >-------------- Original message -------------- >From: " karen_peikert " <jkpeikert@...> >The following statements seem a little broad, particularly that they >are premised by " most likely " . > >Eczema/Red cheeks...most likely a yeast problem caused by a metal >problem. >Red Ears....most likely a phenol intolerance. >Black eyes....most likely a leaky gut problem, evidence of food >intolerances. > >Literally tens of millions of people have eczema - worldwide. It >seems unlikely that they all have metal problems. Maybe dietary >insufficiencies? For the person who has had their child off of milk >for a full year but there has been no improvement, is there a good >reason to then stay off the milk? > >Many of these issues - like milk intolerance - make an appearance on >the boards in regular cycles. One person thinks it has helped their >child to go off milk, and then many either think they need to go off >milk or feel guilty because they don't. Being GFCF has been around in >the autism circles for quite some time - if it were universally >beneficial, we would certainly know about it. Some children are >helped, some are not. > >When a certain 'tpye' of discussion dominates the board, many begin to >feel that they are the only ones who are not pursuing a particular >route. Usually it is the other way around - when a topic is of >relevance and interest to your child, a small group of people are >completely engaged in the conversation. The majority are then quiet >until a new topic starts to gain steam. Right now the topics seem to >be GFCF, milk, flouride, yeast, gut issues, etc. If past experience >is any indication, next month, it will probably be something >completely different. > > > >Eczema/Red cheeks...most likely a yeast problem caused by a metal >problem. >Red Ears....most likely a phenol intolerance. >Black eyes....most likely a leaky gut problem, evidence of food >intolerances. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Try the Paleolithic diet. I am starting to lean that way.. _____ From: [mailto: ] On Behalf Of atwood Sent: Tuesday, August 21, 2007 10:55 AM Subject: Re: [ ] Red cheeks, red ears, eczema I don't know. I took him to the dr. yesterday and I asked him and he wouldn't tell me what one thing could be that problem.. He said it could be a huge number of things that causes it. He also said that it is very hard to eliminate everything b/c so many of the tings it could can be in almost everything he eats. Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote: Could be lactose is not the problem but something else in the milk. atwood wrote: >I had to replace his milk with lactose free dairy. My son still has problems with it. > > Zeissler <hzeissler@frontiern <mailto:hzeissler%40frontiernet.net> et.net> wrote: I am not a medical professional. > >We are also off of soy and wheat. 1 of our speech therapists has her own >kids off of citrus. > >What did you replace the milk with? > >We did water with occasional glasses of rice/almond milk. I then cook with >the rice/almond milk. > > > >We are not on any sort of infant formula. He is still breast fed. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Very well said! _____ From: [mailto: ] On Behalf Of julieobradovic@... Sent: Tuesday, August 21, 2007 12:43 PM Subject: Re: [ ] Re: Red cheeks, red ears, eczema , I'm not sure if you were annoyed by my post or what, as I can't quite understand the tone of yours. If I am being overly sensitive, I appologize in advance. I premised those statements with " most likely " for 3 reasons....1, because of exactly what you say....millions of people do suffer from these issues, and naturally this won't be the cause for everyone...2, because the limited number of people contributing to this thread seem to feel stongly that their children have a metal/yeast/viral/intolerance problem going on and THEY are who I was addressing...and 3, because I don't have the time to get into the entire explanation of why I believe that to be true or site the science to support it. I simply put it out there...If someone wants to pursue that, they are free to research for themselves and/or simply ask. They are also free to completely ignore it. I have belonged to this board for 3 years, and I couldn't agree with you more that the tone and topics change all the time. For most who do biomed, it is a springboard to the other boards that go more in depth about it. You seem to be implying that by discussing biomed we are somehow making parents not opting to go that route feel guilty, and should therefore not discuss it? Or that we should censor ourselves more? Please clarify, as I'm not sure what you're saying. I do not claim to have all the answers to getting all children well, and I never have. Naturally a child off of milk who isn't benefitting from it probably shouldn't have it restricted. None of these interventions are universal...what works for one child may not work for another. Hence, the word, " likely " . But I must say, without the introduction to biomed from this very list, I might never have gotten my own daughter better. It would be a shame to limit our discussions of it to protect people's feelings. I never did anything verbatim based on what anyone here told me, and I never felt guilty for not taking someone's advice. My listmates simply opened the doors for me to do my own research to find what worked for MY child. No parent or list member should do otherwise. -------------- Original message -------------- From: " karen_peikert " <jkpeikert@sbcglobal <mailto:jkpeikert%40sbcglobal.net> .net> The following statements seem a little broad, particularly that they are premised by " most likely " . Eczema/Red cheeks...most likely a yeast problem caused by a metal problem. Red Ears....most likely a phenol intolerance. Black eyes....most likely a leaky gut problem, evidence of food intolerances. Literally tens of millions of people have eczema - worldwide. It seems unlikely that they all have metal problems. Maybe dietary insufficiencies? For the person who has had their child off of milk for a full year but there has been no improvement, is there a good reason to then stay off the milk? Many of these issues - like milk intolerance - make an appearance on the boards in regular cycles. One person thinks it has helped their child to go off milk, and then many either think they need to go off milk or feel guilty because they don't. Being GFCF has been around in the autism circles for quite some time - if it were universally beneficial, we would certainly know about it. Some children are helped, some are not. When a certain 'tpye' of discussion dominates the board, many begin to feel that they are the only ones who are not pursuing a particular route. Usually it is the other way around - when a topic is of relevance and interest to your child, a small group of people are completely engaged in the conversation. The majority are then quiet until a new topic starts to gain steam. Right now the topics seem to be GFCF, milk, flouride, yeast, gut issues, etc. If past experience is any indication, next month, it will probably be something completely different. Eczema/Red cheeks...most likely a yeast problem caused by a metal problem. Red Ears....most likely a phenol intolerance. Black eyes....most likely a leaky gut problem, evidence of food intolerances. -------------- Original message -------------- > From: Liz <lizlaw@...> > Is this a metal thing, a milk thing, or some other thing? Both kids had > this. We thought it was a teething thing (the cheeks) .My reading tells > me it is not a typical teething thing. I think in our case the cheeks > were a metal thing exacerbated by the milk, and then the metal was > trapped from the tylenol given. The red ears I could never get an answer > on. We left those alone. The eczema was left alone in daughter. In son > they gave us, gulp, steroid cream. I now think the big eczemaoutbreak > was an infection from a farm visit. It took a long time to go away and > the first strong cream given made it worse. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 Lactose intolerance is usually found in adults. If kids have problems with dairy it is usually the protein -- casein -- that is causing them problems. It can cause almost addictive behavior in some kids. In others it causes the villi in the GI tract to be damaged. IMO -- dairy should be avoided by all children until 1 year old. Then gradually introduce and test to see if they can tolerate consuming it on a regular basis. Is > >this a metal thing, a milk thing, or some other thing? Both kids had > >this. We thought it was a teething thing (the cheeks) .My reading tells > >me it is not a typical teething thing. I think in our case the cheeks > >were a metal thing exacerbated by the milk, and then the metal was > >trapped from the tylenol given. The red ears I could never get an answer > >on. We left those alone. The eczema was left alone in daughter. In son > >they gave us, gulp, steroid cream. I now think the big eczemaoutbreak > >was an infection from a farm visit. It took a long time to go away and > >the first strong cream given made it worse. > > > >--------------------------------- > >Take the Internet to Go: Go puts the Internet in your pocket: mail, > >news, photos & more. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. Janice Re: [ ] Red cheeks, red ears, eczema > > > >My son has eczema on his legs and arms. His caused him to lose the color in >those spots where he had it. My dr's says thats normal. My son has >hydrocortisone cream and eurcerin lotion for it. I really don't know what >causes it the drs will not tell me. > >Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote: Is >this a metal thing, a milk thing, or some other thing? Both kids had >this. We thought it was a teething thing (the cheeks) .My reading tells >me it is not a typical teething thing. I think in our case the cheeks >were a metal thing exacerbated by the milk, and then the metal was >trapped from the tylenol given. The red ears I could never get an answer >on. We left those alone. The eczema was left alone in daughter. In son >they gave us, gulp, steroid cream. I now think the big eczemaoutbreak >was an infection from a farm visit. It took a long time to go away and >the first strong cream given made it worse. > >--------------------------------- >Take the Internet to Go: Go puts the Internet in your pocket: mail, >news, photos & more. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 , What are some of the other bio-med boards that you are on? I would be interested in joining those as well. Thanks, Becky McFarland > > , > > I'm not sure if you were annoyed by my post or what, as I can't quite understand the tone of yours. If I am being overly sensitive, I appologize in advance. > > I premised those statements with " most likely " for 3 reasons....1, because of exactly what you say....millions of people do suffer from these issues, and naturally this won't be the cause for everyone...2, because the limited number of people contributing to this thread seem to feel stongly that their children have a metal/yeast/viral/intolerance problem going on and THEY are who I was addressing...and 3, because I don't have the time to get into the entire explanation of why I believe that to be true or site the science to support it. I simply put it out there...If someone wants to pursue that, they are free to research for themselves and/or simply ask. They are also free to completely ignore it. > > I have belonged to this board for 3 years, and I couldn't agree with you more that the tone and topics change all the time. For most who do biomed, it is a springboard to the other boards that go more in depth about it. You seem to be implying that by discussing biomed we are somehow making parents not opting to go that route feel guilty, and should therefore not discuss it? Or that we should censor ourselves more? Please clarify, as I'm not sure what you're saying. > > I do not claim to have all the answers to getting all children well, and I never have. Naturally a child off of milk who isn't benefitting from it probably shouldn't have it restricted. None of these interventions are universal...what works for one child may not work for another. Hence, the word, " likely " . > > But I must say, without the introduction to biomed from this very list, I might never have gotten my own daughter better. It would be a shame to limit our discussions of it to protect people's feelings. I never did anything verbatim based on what anyone here told me, and I never felt guilty for not taking someone's advice. My listmates simply opened the doors for me to do my own research to find what worked for MY child. No parent or list member should do otherwise. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 My dr. prescribed a really good med. for my sons eczema. I applied it one time and made huge difference it is called Triamcinolone and cetaphil mixed. It is a good med is has almost totally cleared up his eczema after only one time of using it. Maybe you guys might want to ask your childs dr for it instead chning your childs diet. I haven't changed my sons and this is working. Janice <jscott@...> wrote: It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. Janice Re: [ ] Red cheeks, red ears, eczema > > > >My son has eczema on his legs and arms. His caused him to lose the color in >those spots where he had it. My dr's says thats normal. My son has >hydrocortisone cream and eurcerin lotion for it. I really don't know what >causes it the drs will not tell me. > >Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote: Is >this a metal thing, a milk thing, or some other thing? Both kids had >this. We thought it was a teething thing (the cheeks) .My reading tells >me it is not a typical teething thing. I think in our case the cheeks >were a metal thing exacerbated by the milk, and then the metal was >trapped from the tylenol given. The red ears I could never get an answer >on. We left those alone. The eczema was left alone in daughter. In son >they gave us, gulp, steroid cream. I now think the big eczemaoutbreak >was an infection from a farm visit. It took a long time to go away and >the first strong cream given made it worse. > >--------------------------------- >Take the Internet to Go: Go puts the Internet in your pocket: mail, >news, photos & more. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 I could have said the exact same statement a year ago, the last time we had eczema. We only ever had it a few times. The thing is, it was not until I worked on diet that I discovered possible celiac, speech improvement, and the loss of a lot of sigificant physical impairments. My child would be kicked out of services at this point if anyone tried. That is why at least looking at doet may be something to consider...or not. For us, it may literally have been a lifesaver....not regarding speech so much as organ development. atwood wrote: >My dr. prescribed a really good med. for my sons eczema. I applied it one time and made huge difference it is called Triamcinolone and cetaphil mixed. It is a good med is has almost totally cleared up his eczema after only one time of using it. Maybe you guys might want to ask your childs dr for it instead chning your childs diet. I haven't changed my sons and this is working. > >Janice <jscott@...> wrote: It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. > >Janice > > Re: [ ] Red cheeks, red ears, eczema >> >> >> >>My son has eczema on his legs and arms. His caused him to lose the color in >>those spots where he had it. My dr's says thats normal. My son has >>hydrocortisone cream and eurcerin lotion for it. I really don't know what >>causes it the drs will not tell me. >> >>Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote: Is >>this a metal thing, a milk thing, or some other thing? Both kids had >>this. We thought it was a teething thing (the cheeks) .My reading tells >>me it is not a typical teething thing. I think in our case the cheeks >>were a metal thing exacerbated by the milk, and then the metal was >>trapped from the tylenol given. The red ears I could never get an answer >>on. We left those alone. The eczema was left alone in daughter. In son >>they gave us, gulp, steroid cream. I now think the big eczemaoutbreak >>was an infection from a farm visit. It took a long time to go away and >>the first strong cream given made it worse. >> >>--------------------------------- >>Take the Internet to Go: Go puts the Internet in your pocket: mail, >>news, photos & more. >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Eventually, (as we found out) our son's skin built up a resistance to the prescription meds and the eczema became worse. IMO it is better to figure out the trigger rather than treat the outward symptom. _____ From: [mailto: ] On Behalf Of atwood Sent: Wednesday, August 22, 2007 10:05 AM Subject: RE: [ ] Red cheeks, red ears, eczema My dr. prescribed a really good med. for my sons eczema. I applied it one time and made huge difference it is called Triamcinolone and cetaphil mixed. It is a good med is has almost totally cleared up his eczema after only one time of using it. Maybe you guys might want to ask your childs dr for it instead chning your childs diet. I haven't changed my sons and this is working. Janice <jscottinterbaun (DOT) <mailto:jscott%40interbaun.com> com> wrote: It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. Janice Re: [ ] Red cheeks, red ears, eczema > > > >My son has eczema on his legs and arms. His caused him to lose the color in >those spots where he had it. My dr's says thats normal. My son has >hydrocortisone cream and eurcerin lotion for it. I really don't know what >causes it the drs will not tell me. > >Liz <lizlawoptonline (DOT) <mailto:lizlaw%40optonline.net> net> wrote: Is >this a metal thing, a milk thing, or some other thing? Both kids had >this. We thought it was a teething thing (the cheeks) .My reading tells >me it is not a typical teething thing. I think in our case the cheeks >were a metal thing exacerbated by the milk, and then the metal was >trapped from the tylenol given. The red ears I could never get an answer >on. We left those alone. The eczema was left alone in daughter. In son >they gave us, gulp, steroid cream. I now think the big eczemaoutbreak >was an infection from a farm visit. It took a long time to go away and >the first strong cream given made it worse. > >--------------------------------- >Take the Internet to Go: Go puts the Internet in your pocket: mail, >news, photos & more. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 I will probably have to look into that. I just never thought to change his diet. I will look into it though. Liz <lizlaw@...> wrote: I could have said the exact same statement a year ago, the last time we had eczema. We only ever had it a few times. The thing is, it was not until I worked on diet that I discovered possible celiac, speech improvement, and the loss of a lot of sigificant physical impairments. My child would be kicked out of services at this point if anyone tried. That is why at least looking at doet may be something to consider...or not. For us, it may literally have been a lifesaver....not regarding speech so much as organ development. atwood wrote: >My dr. prescribed a really good med. for my sons eczema. I applied it one time and made huge difference it is called Triamcinolone and cetaphil mixed. It is a good med is has almost totally cleared up his eczema after only one time of using it. Maybe you guys might want to ask your childs dr for it instead chning your childs diet. I haven't changed my sons and this is working. > >Janice <jscott@...> wrote: It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. > >Janice > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2007 Report Share Posted August 22, 2007 Understand, if you do, take it slow, one thing at a time, and two week trials. You'll go nuts otherwise. Milk seems to let you know quickly. atwood wrote: >I will probably have to look into that. I just never thought to change his diet. I will look into it though. > >Liz <lizlaw@...> wrote: I could have said the exact same statement a year ago, the last time we >had eczema. We only ever had it a few times. The thing is, it was not >until I worked on diet that I discovered possible celiac, speech >improvement, and the loss of a lot of sigificant physical impairments. >My child would be kicked out of services at this point if anyone tried. >That is why at least looking at doet may be something to consider...or >not. For us, it may literally have been a lifesaver....not regarding >speech so much as organ development. > > atwood wrote: > > > >>My dr. prescribed a really good med. for my sons eczema. I applied it one time and made huge difference it is called Triamcinolone and cetaphil mixed. It is a good med is has almost totally cleared up his eczema after only one time of using it. Maybe you guys might want to ask your childs dr for it instead chning your childs diet. I haven't changed my sons and this is working. >> >>Janice <jscott@...> wrote: It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. >> >>Janice >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 To put him on this diet what should I watch out for? Liz <lizlaw@...> wrote: Understand, if you do, take it slow, one thing at a time, and two week trials. You'll go nuts otherwise. Milk seems to let you know quickly. atwood wrote: >I will probably have to look into that. I just never thought to change his diet. I will look into it though. > >Liz <lizlaw@...> wrote: I could have said the exact same statement a year ago, the last time we >had eczema. We only ever had it a few times. The thing is, it was not >until I worked on diet that I discovered possible celiac, speech >improvement, and the loss of a lot of sigificant physical impairments. >My child would be kicked out of services at this point if anyone tried. >That is why at least looking at doet may be something to consider...or >not. For us, it may literally have been a lifesaver....not regarding >speech so much as organ development. > > atwood wrote: > > > >>My dr. prescribed a really good med. for my sons eczema. I applied it one time and made huge difference it is called Triamcinolone and cetaphil mixed. It is a good med is has almost totally cleared up his eczema after only one time of using it. Maybe you guys might want to ask your childs dr for it instead chning your childs diet. I haven't changed my sons and this is working. >> >>Janice <jscott@...> wrote: It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. >> >>Janice >> >> >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I'm trying to figure out how to answer your question of what I meant by my earlier post. I guess, bottom line, is that there are not very many people participating in the threads recently and I was trying to figure out what the list would look like to me if I was brand new to the diagnosis. I would be wondering if all of the kids with apraxia have gut issues (not mine), allergy issues (not mine), metal issues (not mine), or are greatly helped by supplements like E or EFAs (not mine). Every now and then I pipe in with a veiled comment to those parents who do not fit the profile of the children currently being discussed on the list because there are many, many of us out here. We read the list frequently, looking for things that might be relevant to our families and help our children, and sometimes it seems that months go by without my seeing a discussion of any type that mirrors my own experience. I do not mean to assert that you have no right to discuss whatever you wish on the list. But, in the last month, I posted an article from the Journal of Pediatric Neurology about creatine deficiencies causing speech delays and other issues, and barely anyone noticed. I just find it interesting that people aren't asking their doctor for the $300 urine test to look into this, but are running hair,fecal and blood tests for so many other things. > > >The following statements seem a little broad, particularly that they > >are premised by " most likely " . > > > > Eczema/Red cheeks...most likely a yeast problem caused by a metal > >problem. > > Red Ears....most likely a phenol intolerance. > > Black eyes....most likely a leaky gut problem, evidence of food > >intolerances. > > > >Literally tens of millions of people have eczema - worldwide. It > >seems unlikely that they all have metal problems. Maybe dietary > >insufficiencies? For the person who has had their child off of milk > >for a full year but there has been no improvement, is there a good > >reason to then stay off the milk? > > > >Many of these issues - like milk intolerance - make an appearance on > >the boards in regular cycles. One person thinks it has helped their > >child to go off milk, and then many either think they need to go off > >milk or feel guilty because they don't. Being GFCF has been around in > >the autism circles for quite some time - if it were universally > >beneficial, we would certainly know about it. Some children are > >helped, some are not. > > > >When a certain 'tpye' of discussion dominates the board, many begin to > >feel that they are the only ones who are not pursuing a particular > >route. Usually it is the other way around - when a topic is of > >relevance and interest to your child, a small group of people are > >completely engaged in the conversation. The majority are then quiet > >until a new topic starts to gain steam. Right now the topics seem to > >be GFCF, milk, flouride, yeast, gut issues, etc. If past experience > >is any indication, next month, it will probably be something > >completely different. > > > > > > > > Eczema/Red cheeks...most likely a yeast problem caused by a metal > >problem. > > Red Ears....most likely a phenol intolerance. > > Black eyes....most likely a leaky gut problem, evidence of food > >intolerances. > > > > -------------- Original message -------------- > > > > > >>From: Liz <lizlaw@> > >>Is this a metal thing, a milk thing, or some other thing? Both kids had > >>this. We thought it was a teething thing (the cheeks) .My reading tells > >>me it is not a typical teething thing. I think in our case the cheeks > >>were a metal thing exacerbated by the milk, and then the metal was > >>trapped from the tylenol given. The red ears I could never get an > >> > >> > >answer > > > > > >>on. We left those alone. The eczema was left alone in daughter. In son > >>they gave us, gulp, steroid cream. I now think the big eczemaoutbreak > >>was an infection from a farm visit. It took a long time to go away and > >>the first strong cream given made it worse. > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I see your point and figured a thoughtful response to was coming. Here is my take: 1) I am sure all of this is overwhelming to anyone new. I think your specific concern can be addressed by them browsing the folders and ruling in or out what may apply. 2) I no longer agree that not mine applies to all of these without further inquiry. My children had no known allergies(and both were tested) to milk yet off milk my daughter who was getting problems resolved and my dyspraxic son came alive in ways that rival the fih oil stories. I found my daughter's gut issues by accident when I took my son to the GI and hers may actually be worse than his. Fish oil seems to be helping my kids, daughter more than son and in the end I think fish oil became part of a better dietary effort rather than the panacea (I started it late and give it casually to son and he is thriving). I think metal is an issue based on history but have yet to prove it. No one mirrored my kids experience. He was mild in comparison to most, had no lung stuff and I initially left the group only to return after reading more of the Late Talker and seeing my son in there. We all have to do what is right for our own kids. The right therapy in the right kid, the right diet in the right kid, the right toxin removal in the right kid, and the right allergen removal in the right kid can do wonders. It is my personal opinion that neurological issues are complex and we can't know it all but must shoot at different targets. I do believe that is what is going on here. It is overwhelming for newcomers, tedious for those who have seen it all and don't think it relevant and both helpful and alarming for others. I am just thankful for the forum. Had I not come here my own health as well as my family's would have been in jeopardy. I have presented my pediatrician with journal articles, 's abstract and more. I can't get the necessary tests so I am stuck with the alternative. I am not happy about it. I did notice, read and use your post but could not get the help I needed. Only after taking my child off milk and seeing the results did anyone, therapists, drs, say it was a consideration. Life is not fair, sometimes you have to blaze your own trail when traditional methods fail you. I would much rather be in the passenger's seat with my child's issues but the drivers so far were going in reverse. It was time to move forward. Does that mean I try to be his dr...no. It means I get labs on my own to present to good drs in the hopes they will take me seriously. And yes, when they don't I send my quiet, thoughtful and dyspraxic husband in with a list and they listen to him because he talks less. Story of my life. Who else but a smart dyspraxic guy could live with a loudmouth like me? I did not make these rules. I am just working around roadblocks best I can, gaining a sense of humor and diplomacy skills in the interim and seeing bits and pieces of my boy return to me daily. It is a blessing, as are all the posts, even those that may imply I am doing strange or interesting things. With genuine best wishes, Liz karen_peikert wrote: >I'm trying to figure out how to answer your question of what I meant >by my earlier post. I guess, bottom line, is that there are not very >many people participating in the threads recently and I was trying to >figure out what the list would look like to me if I was brand new to >the diagnosis. > >I would be wondering if all of the kids with apraxia have gut issues >(not mine), allergy issues (not mine), metal issues (not mine), or >are greatly helped by supplements like E or EFAs (not mine). Every now >and then I pipe in with a veiled comment to those parents who do not >fit the profile of the children currently being discussed on the list >because there are many, many of us out here. We read the list >frequently, looking for things that might be relevant to our families >and help our children, and sometimes it seems that months go by >without my seeing a discussion of any type that mirrors my own >experience. > >I do not mean to assert that you have no right to discuss whatever you >wish on the list. But, in the last month, I posted an article from the >Journal of Pediatric Neurology about creatine deficiencies causing >speech delays and other issues, and barely anyone noticed. I just >find it interesting that people aren't asking their doctor for the >$300 urine test to look into this, but are running hair,fecal and >blood tests for so many other things. > > > > > >> >> >> >>>The following statements seem a little broad, particularly that they >>>are premised by " most likely " . >>> >>>Eczema/Red cheeks...most likely a yeast problem caused by a metal >>>problem. >>>Red Ears....most likely a phenol intolerance. >>>Black eyes....most likely a leaky gut problem, evidence of food >>>intolerances. >>> >>>Literally tens of millions of people have eczema - worldwide. It >>>seems unlikely that they all have metal problems. Maybe dietary >>>insufficiencies? For the person who has had their child off of milk >>>for a full year but there has been no improvement, is there a good >>>reason to then stay off the milk? >>> >>>Many of these issues - like milk intolerance - make an appearance on >>>the boards in regular cycles. One person thinks it has helped their >>>child to go off milk, and then many either think they need to go off >>>milk or feel guilty because they don't. Being GFCF has been around in >>>the autism circles for quite some time - if it were universally >>>beneficial, we would certainly know about it. Some children are >>>helped, some are not. >>> >>>When a certain 'tpye' of discussion dominates the board, many begin to >>>feel that they are the only ones who are not pursuing a particular >>>route. Usually it is the other way around - when a topic is of >>>relevance and interest to your child, a small group of people are >>>completely engaged in the conversation. The majority are then quiet >>>until a new topic starts to gain steam. Right now the topics seem to >>>be GFCF, milk, flouride, yeast, gut issues, etc. If past experience >>>is any indication, next month, it will probably be something >>>completely different. >>> >>> >>> >>>Eczema/Red cheeks...most likely a yeast problem caused by a metal >>>problem. >>>Red Ears....most likely a phenol intolerance. >>>Black eyes....most likely a leaky gut problem, evidence of food >>>intolerances. >>> >>>-------------- Original message -------------- >>> >>> >>> >>> >>>>From: Liz <lizlaw@> >>>>Is this a metal thing, a milk thing, or some other thing? Both >>>> >>>> >kids had > > >>>>this. We thought it was a teething thing (the cheeks) .My reading >>>> >>>> >tells > > >>>>me it is not a typical teething thing. I think in our case the cheeks >>>>were a metal thing exacerbated by the milk, and then the metal was >>>>trapped from the tylenol given. The red ears I could never get an >>>> >>>> >>>> >>>> >>>answer >>> >>> >>> >>> >>>>on. We left those alone. The eczema was left alone in daughter. In >>>> >>>> >son > > >>>>they gave us, gulp, steroid cream. I now think the big eczemaoutbreak >>>>was an infection from a farm visit. It took a long time to go away >>>> >>>> >and > > >>>>the first strong cream given made it worse. >>>> >>>> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I am a mom, not a doc and don't know your kid or how you will approach the diet so I can't tell you that. I swiftly took both kids and myself off gluten and milk except for once cheat a day, a cookie, so they'd have some in for celiac test. Understand, these kids ate nothing but gluten and milk before: Lots of pee, big solid stool, great behavior but tantrums but so much less than we had before. As I understand it though we got lucky. I did not plan ahead, did not get proper vitamins in them etc. It all worked out in the end but weaning sounds safer and that would be my method of choice. After a few days of what I described, bliss, son woke up, etc. The thing is, we then had trouble with substitutes, reduced to veggies, organic meat, and Bob's red mill pancakes and specical GFCF oats for cookies and bliss again. It has been a long haul with good results because I may have hit on good targets for my kids, specifically an allergin. I also did some other stuff so who really knows. atwood wrote: >To put him on this diet what should I watch out for? > >Liz <lizlaw@...> wrote: Understand, if you do, take it slow, one thing at a time, and two week >trials. You'll go nuts otherwise. Milk seems to let you know quickly. > > atwood wrote: > > > >>I will probably have to look into that. I just never thought to change his diet. I will look into it though. >> >>Liz <lizlaw@...> wrote: I could have said the exact same statement a year ago, the last time we >>had eczema. We only ever had it a few times. The thing is, it was not >>until I worked on diet that I discovered possible celiac, speech >>improvement, and the loss of a lot of sigificant physical impairments. >>My child would be kicked out of services at this point if anyone tried. >>That is why at least looking at doet may be something to consider...or >>not. For us, it may literally have been a lifesaver....not regarding >>speech so much as organ development. >> >> atwood wrote: >> >> >> >> >> >>>My dr. prescribed a really good med. for my sons eczema. I applied it one time and made huge difference it is called Triamcinolone and cetaphil mixed. It is a good med is has almost totally cleared up his eczema after only one time of using it. Maybe you guys might want to ask your childs dr for it instead chning your childs diet. I haven't changed my sons and this is working. >>> >>>Janice <jscott@...> wrote: It is the casien in milk that affects our kids not necessarily the lactose (which is a sugar). Lactaid and all of those other products do absolutely nothing to help. The only thing that I find that helps is digestive enzymes that specifically target casien. In addition, we still have reactions when we have enzymes with milk products but they are less severe not eliminated entirely. Each child is different and each response is different but that is the case with us. >>> >>>Janice >>> >>> >>> >>> >>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I understand where you're coming from. The speech related topics are few and far between. I hesitated a couple of days ago to refer a mom to the group because she would probably feel like she is in the wrong place. I read very few posts anymore. > > > > >The following statements seem a little broad, particularly that they > > >are premised by " most likely " . > > > > > > Eczema/Red cheeks...most likely a yeast problem caused by a metal > > >problem. > > > Red Ears....most likely a phenol intolerance. > > > Black eyes....most likely a leaky gut problem, evidence of food > > >intolerances. > > > > > >Literally tens of millions of people have eczema - worldwide. It > > >seems unlikely that they all have metal problems. Maybe dietary > > >insufficiencies? For the person who has had their child off of milk > > >for a full year but there has been no improvement, is there a good > > >reason to then stay off the milk? > > > > > >Many of these issues - like milk intolerance - make an appearance on > > >the boards in regular cycles. One person thinks it has helped their > > >child to go off milk, and then many either think they need to go off > > >milk or feel guilty because they don't. Being GFCF has been around in > > >the autism circles for quite some time - if it were universally > > >beneficial, we would certainly know about it. Some children are > > >helped, some are not. > > > > > >When a certain 'tpye' of discussion dominates the board, many begin to > > >feel that they are the only ones who are not pursuing a particular > > >route. Usually it is the other way around - when a topic is of > > >relevance and interest to your child, a small group of people are > > >completely engaged in the conversation. The majority are then quiet > > >until a new topic starts to gain steam. Right now the topics seem to > > >be GFCF, milk, flouride, yeast, gut issues, etc. If past experience > > >is any indication, next month, it will probably be something > > >completely different. > > > > > > > > > > > > Eczema/Red cheeks...most likely a yeast problem caused by a metal > > >problem. > > > Red Ears....most likely a phenol intolerance. > > > Black eyes....most likely a leaky gut problem, evidence of food > > >intolerances. > > > > > > -------------- Original message -------------- > > > > > > > > >>From: Liz <lizlaw@> > > >>Is this a metal thing, a milk thing, or some other thing? Both > kids had > > >>this. We thought it was a teething thing (the cheeks) .My reading > tells > > >>me it is not a typical teething thing. I think in our case the cheeks > > >>were a metal thing exacerbated by the milk, and then the metal was > > >>trapped from the tylenol given. The red ears I could never get an > > >> > > >> > > >answer > > > > > > > > >>on. We left those alone. The eczema was left alone in daughter. In > son > > >>they gave us, gulp, steroid cream. I now think the big eczemaoutbreak > > >>was an infection from a farm visit. It took a long time to go away > and > > >>the first strong cream given made it worse. > > >> > > >> > > >> > > >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I am not sure I totally get it. Is the concern that this is no longer just a therapy or fish oil discussion? Tina has set up folders on nearly every aspect so the board is good not just for current messages but for folders of things that affect all of us. elmccann wrote: >I understand where you're coming from. The speech related topics are >few and far between. I hesitated a couple of days ago to refer a mom >to the group because she would probably feel like she is in the wrong >place. I read very few posts anymore. > > > > > >>> >>> >>> >>>>The following statements seem a little broad, particularly that >>>> >>>> >they > > >>>>are premised by " most likely " . >>>> >>>>Eczema/Red cheeks...most likely a yeast problem caused by a >>>> >>>> >metal > > >>>>problem. >>>>Red Ears....most likely a phenol intolerance. >>>>Black eyes....most likely a leaky gut problem, evidence of food >>>>intolerances. >>>> >>>>Literally tens of millions of people have eczema - worldwide. It >>>>seems unlikely that they all have metal problems. Maybe dietary >>>>insufficiencies? For the person who has had their child off of >>>> >>>> >milk > > >>>>for a full year but there has been no improvement, is there a >>>> >>>> >good > > >>>>reason to then stay off the milk? >>>> >>>>Many of these issues - like milk intolerance - make an >>>> >>>> >appearance on > > >>>>the boards in regular cycles. One person thinks it has helped >>>> >>>> >their > > >>>>child to go off milk, and then many either think they need to go >>>> >>>> >off > > >>>>milk or feel guilty because they don't. Being GFCF has been >>>> >>>> >around in > > >>>>the autism circles for quite some time - if it were universally >>>>beneficial, we would certainly know about it. Some children are >>>>helped, some are not. >>>> >>>>When a certain 'tpye' of discussion dominates the board, many >>>> >>>> >begin to > > >>>>feel that they are the only ones who are not pursuing a >>>> >>>> >particular > > >>>>route. Usually it is the other way around - when a topic is of >>>>relevance and interest to your child, a small group of people are >>>>completely engaged in the conversation. The majority are then >>>> >>>> >quiet > > >>>>until a new topic starts to gain steam. Right now the topics >>>> >>>> >seem to > > >>>>be GFCF, milk, flouride, yeast, gut issues, etc. If past >>>> >>>> >experience > > >>>>is any indication, next month, it will probably be something >>>>completely different. >>>> >>>> >>>> >>>>Eczema/Red cheeks...most likely a yeast problem caused by a >>>> >>>> >metal > > >>>>problem. >>>>Red Ears....most likely a phenol intolerance. >>>>Black eyes....most likely a leaky gut problem, evidence of food >>>>intolerances. >>>> >>>>-------------- Original message -------------- >>>> >>>> >>>> >>>> >>>>>From: Liz <lizlaw@> >>>>>Is this a metal thing, a milk thing, or some other thing? Both >>>>> >>>>> >>kids had >> >> >>>>>this. We thought it was a teething thing (the cheeks) .My >>>>> >>>>> >reading > > >>tells >> >> >>>>>me it is not a typical teething thing. I think in our case the >>>>> >>>>> >cheeks > > >>>>>were a metal thing exacerbated by the milk, and then the metal >>>>> >>>>> >was > > >>>>>trapped from the tylenol given. The red ears I could never get >>>>> >>>>> >an > > >>>>> >>>>> >>>>> >>>>> >>>>answer >>>> >>>> >>>> >>>> >>>>>on. We left those alone. The eczema was left alone in daughter. >>>>> >>>>> >In > > >>son >> >> >>>>>they gave us, gulp, steroid cream. I now think the big >>>>> >>>>> >eczemaoutbreak > > >>>>>was an infection from a farm visit. It took a long time to go >>>>> >>>>> >away > > >>and >> >> >>>>>the first strong cream given made it worse. >>>>> >>>>> >>>>> >>>>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I don't think the problem is that it is no longer a therapy or fish oil discssion, but that most days it barely seems like an apraxia discussion. I think that when the discussions get heavily weighted toward biomed interventions, the people who have been there/done that feel that the list doesn't belong to them any more and they find other places to go. The discussions that have dominated this list for the past few months could have easily been from an autism board or a GFCF board, etc. When someone asks a question about an IEP or traditional therapy, there is almost no one around to answer them because, as suggested, those people have (probably temporarily) stopped reading. So , and people like me, must get most of our " live " information that is relevant to our kids elsewhere. But the group belongs to everyone, so it can go in whichever way the most vocal people want it to. > > >I understand where you're coming from. The speech related topics are > >few and far between. I hesitated a couple of days ago to refer a mom > >to the group because she would probably feel like she is in the wrong > >place. I read very few posts anymore. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 Can't say much other than, the folders have plenty of IEP, Advocacy info, as does s Law and the therapy folder is also helpful. There are many tentacles to the octupus that is apraxia. karen_peikert wrote: >I don't think the problem is that it is no longer a therapy or fish >oil discssion, but that most days it barely seems like an apraxia >discussion. > >I think that when the discussions get heavily weighted toward biomed >interventions, the people who have been there/done that feel that the >list doesn't belong to them any more and they find other places to go. > The discussions that have dominated this list for the past few months >could have easily been from an autism board or a GFCF board, etc. >When someone asks a question about an IEP or traditional therapy, >there is almost no one around to answer them because, as >suggested, those people have (probably temporarily) stopped reading. > >So , and people like me, must get most of our " live " information >that is relevant to our kids elsewhere. But the group belongs to >everyone, so it can go in whichever way the most vocal people want it to. > > > > > > > >> >> >> >>>I understand where you're coming from. The speech related topics are >>>few and far between. I hesitated a couple of days ago to refer a mom >>>to the group because she would probably feel like she is in the wrong >>>place. I read very few posts anymore. >>> >>> >>> >>> >>> >>> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I love talking about therapy! I really believe in it in particular if you do it daily and repetitively. We could open up a discussion about different items people are doing in speech... Believe me, if its dyspraxia/apraxia based, I'm willing to talk about it. The problem can often be that often our children are in different 'places' in their therapy and it must be up to the parents to decide if their child is ready for an exercise or not. For instance we are doing this exercise right now that really is working and I quite like how Mark is responding to it. I didn't realize that Mark was using his jaw instead of his tongue for many of his mouth movements so we have been working the tongue but this one exercise is so simple and works the back of the throat. For this you need a speaking child who can make these sounds. First, have the child say the pu sound. Breath in deep and then as fast has he can go on the out breath in a smooth steady beat. pu, pu, pu, pu, pu, pu .... etc. Do the same with the ke sound, ke, ke, ke, ke, ke, ke .... fast as he can go in a steady beat using up all of the air in the breath. Again with the te (not teee but ta ) do te, te, te, te, te, te, te, Now try have your child take in another deeeeeep breath and say this rythmicly, cup of tea, cup of tea, cup of tea throuhout the whole breath while maintaining a steady rhythem. You try it. Do you feel what is happening to the back of your throat? How it is opening and closing along with the movement of the tongue to the front of the mouth? It is a good workout for the throat muscles and coordination. If you practice this, try getting faster each time you do it but be sure to keep a steady rhythem that is controlled and use the whole breath of air while you're doing it. We have been doing this simple exercise before each meal (along with others) and man, has it really helped with overall articulation. I didn't realize how terrible Mark's airflow was. A fun airflow game is to get a ping-pong ball and play 'air' hockey (using the diaphram) for 10 minutes a day. You blow it accross the table and the child blows it back. Fun and works airflow. Another good tongue exercise is to get a bite block and place it at the back of the child's mouth between the two back molars. I don't have a bite block so just use the handle end of a wooden spoon. You need to see the two molars of the side you are working on. Have the child reach over and touch the spoon with the tip of their tongue for a count of 5. Remove spoon from the mouth and do this again from the beginning. Do this on each side for 5 times. Once they can easily and quickly touch the molar with their tongue, have them tickle the end of the bite block with their tongue. This exercise works the ability to cross the midline with their tongue and overall tongue motor planning. Have more... want some? Janice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2007 Report Share Posted August 23, 2007 I've been a member of this list for many years (I think 6), but only recently started reading. I just didn't find much helpful information here before. Janice and Kim, just for starters, have been great in sharing their awesome therapy knowledge. BTW, one of my friends didn't know that her sons red ears could be a sign of food intolerance until I gave her a copy of Dr Rapp's book " Is this your child? " She was really glad to find this out after 11 years! Vicki > > From: > [mailto: ] On Behalf Of > julieobradovic@... > Sent: Tuesday, August 21, 2007 12:43 PM > > Subject: Re: [ ] Re: Red cheeks, red ears, eczema > > > > , > > I'm not sure if you were annoyed by my post or what, as I can't quite > understand the tone of yours. If I am being overly sensitive, I appologize > in advance. > > I premised those statements with " most likely " for 3 reasons....1, because > of exactly what you say....millions of people do suffer from these issues, > and naturally this won't be the cause for everyone...2, because the limited > number of people contributing to this thread seem to feel stongly that their > children have a metal/yeast/viral/intolerance problem going on and THEY are > who I was addressing...and 3, because I don't have the time to get into the > entire explanation of why I believe that to be true or site the science to > support it. I simply put it out there...If someone wants to pursue that, > they are free to research for themselves and/or simply ask. They are also > free to completely ignore it. > > I have belonged to this board for 3 years, and I couldn't agree with you > more that the tone and topics change all the time. For most who do biomed, > it is a springboard to the other boards that go more in depth about it. You > seem to be implying that by discussing biomed we are somehow making parents > not opting to go that route feel guilty, and should therefore not discuss > it? Or that we should censor ourselves more? Please clarify, as I'm not sure > what you're saying. > > I do not claim to have all the answers to getting all children well, and I > never have. Naturally a child off of milk who isn't benefitting from it > probably shouldn't have it restricted. None of these interventions are > universal...what works for one child may not work for another. Hence, the > word, " likely " . > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 Thanks for those exercises to try. My son can say just about any word, but the pronounciation/articulation needs a lot of work yet. Usually most of what he says isn't clearly spoken. It kind of sounds to me like he is talking without working his tongue much or his lips. I think esp. the lips. Like for the word (and friends/the trains.. loves em) he'll say tholas.. I think it is really hard for him to get those two lips together.. well, on the other hand he has no trouble with saying mommy the right way.. guess it's the nature of apraxia.. My son is not able to make the " v " or the " f " sound. In fact I've only every heard him say the f sound once, maybe twice. he said golf. He will always substitute a constanant to replace a v or f in any and every word. Any suggestions for those. Does anyone else's child have this or something similiar. I've been curious about that for a long time. thank you, ************************************** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 That Red ears thing puzzles me. My doctors and my research (yes I have always been this way) came up with nothing. It did not happen often so I let it go until it dawned on me recently nothing can be overlooked. fridgudare2003 wrote: >I've been a member of this list for many years (I think 6), but only >recently started reading. I just didn't find much helpful >information here before. >Janice and Kim, just for starters, have been great in sharing their >awesome therapy knowledge. >BTW, one of my friends didn't know that her sons red ears could be a >sign of food intolerance until I gave her a copy of Dr Rapp's >book " Is this your child? " She was really glad to find this out >after 11 years! > >Vicki > > > >>From: >>[mailto: ] On Behalf Of >>julieobradovic@... >>Sent: Tuesday, August 21, 2007 12:43 PM >> >>Subject: Re: [ ] Re: Red cheeks, red ears, eczema >> >> >> >>, >> >>I'm not sure if you were annoyed by my post or what, as I can't >> >> >quite > > >>understand the tone of yours. If I am being overly sensitive, I >> >> >appologize > > >>in advance. >> >>I premised those statements with " most likely " for 3 reasons....1, >> >> >because > > >>of exactly what you say....millions of people do suffer from these >> >> >issues, > > >>and naturally this won't be the cause for everyone...2, because the >> >> >limited > > >>number of people contributing to this thread seem to feel stongly >> >> >that their > > >>children have a metal/yeast/viral/intolerance problem going on and >> >> >THEY are > > >>who I was addressing...and 3, because I don't have the time to get >> >> >into the > > >>entire explanation of why I believe that to be true or site the >> >> >science to > > >>support it. I simply put it out there...If someone wants to pursue >> >> >that, > > >>they are free to research for themselves and/or simply ask. They >> >> >are also > > >>free to completely ignore it. >> >>I have belonged to this board for 3 years, and I couldn't agree >> >> >with you > > >>more that the tone and topics change all the time. For most who do >> >> >biomed, > > >>it is a springboard to the other boards that go more in depth about >> >> >it. You > > >>seem to be implying that by discussing biomed we are somehow making >> >> >parents > > >>not opting to go that route feel guilty, and should therefore not >> >> >discuss > > >>it? Or that we should censor ourselves more? Please clarify, as I'm >> >> >not sure > > >>what you're saying. >> >>I do not claim to have all the answers to getting all children >> >> >well, and I > > >>never have. Naturally a child off of milk who isn't benefitting >> >> >from it > > >>probably shouldn't have it restricted. None of these interventions >> >> >are > > >>universal...what works for one child may not work for another. >> >> >Hence, the > > >>word, " likely " . >> >> >> >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2007 Report Share Posted August 24, 2007 Hi Liz, Re: The red ear thing. The only time gets red ears is when he's tired. They are our little guage to just how tired he is! just my 2 cents!! sandy Re: [childrensapraxiane t] Re: Red cheeks, red ears, eczema >> >> >> >>, >> >>I'm not sure if you were annoyed by my post or what, as I can't >> >> >quite > > >>understand the tone of yours. If I am being overly sensitive, I >> >> >appologize > > >>in advance. >> >>I premised those statements with " most likely " for 3 reasons....1, >> >> >because > > >>of exactly what you say....millions of people do suffer from these >> >> >issues, > > >>and naturally this won't be the cause for everyone...2, because the >> >> >limited > > >>number of people contributing to this thread seem to feel stongly >> >> >that their > > >>children have a metal/yeast/ viral/intoleranc e problem going on and >> >> >THEY are > > >>who I was addressing.. .and 3, because I don't have the time to get >> >> >into the > > >>entire explanation of why I believe that to be true or site the >> >> >science to > > >>support it. I simply put it out there...If someone wants to pursue >> >> >that, > > >>they are free to research for themselves and/or simply ask. They >> >> >are also > > >>free to completely ignore it. >> >>I have belonged to this board for 3 years, and I couldn't agree >> >> >with you > > >>more that the tone and topics change all the time. For most who do >> >> >biomed, > > >>it is a springboard to the other boards that go more in depth about >> >> >it. You > > >>seem to be implying that by discussing biomed we are somehow making >> >> >parents > > >>not opting to go that route feel guilty, and should therefore not >> >> >discuss > > >>it? Or that we should censor ourselves more? Please clarify, as I'm >> >> >not sure > > >>what you're saying. >> >>I do not claim to have all the answers to getting all children >> >> >well, and I > > >>never have. Naturally a child off of milk who isn't benefitting >> >> >from it > > >>probably shouldn't have it restricted. None of these interventions >> >> >are > > >>universal. ..what works for one child may not work for another. >> >> >Hence, the > > >>word, " likely " . >> >> >> >> > > > > > Quote Link to comment Share on other sites More sharing options...
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