neurontin???

[Guest guest]

Hi all

My neuro doc has just given me a prescription for neurontin, for my

considerable peripheral neuropathy. From what little I've found online so

far, I am concerned.

First, there are listed a number of side effects that are the very things

I'm already suffering from: headache, drowsiness, and fatigue, even seizure

(with MERRF, my myoclonus epilepsy is mild SO FAR). I also have had (for a

year or so) fairly mild chest pains, and only just saw a cardio doc (who did

EKG confirming my right bundle branch block, and chest Xray for heart size,

will be doing echo, and probably, adenosine stress test). So I wonder if the

neurontin will make this worse. Second, although my doctor did give me a

detailed chart for ramping up over nine weeks (eventually to 900 mg. daily),

he didn't say what to do if I have any ill effects. Online, I find I

shouldn't abruptly stop (but I suppose I can ramp down) but my doc didn't

discuss this. Thirdly, this doc has been notoriously difficult to reach (but

getting better), and I wonder how or with whom I will be able to discuss any

problems. Even asking him THIS is problematic, since I forgot to bring it up

myself in my twenty minute window of access.

Any opinions or concerns, or satisfied (or not) users?

Thanks

Steve D.