Jodi Z

[Guest guest]

Thank you for your response. It is very nice meeting you. I'm not a

very good communicator--don't know if I was clear about 's speech

problem. He understands extremely well and tries hard to express

himself. He just can't verbalize words well--but does a pretty good

job of expressing himself. I think he needs on medication (or some

tests done on him) because he sleeps so very little. All of us stay

so worn out. My daughter never gets over 2-3 hours of sleep at a

time. also has the hemi-hypertrophy that goes with RSS. His

reflux is horrible. He gags and throws up so easily--like when

feeding himself a piece of cheese. Getting a jar of baby food down

him sometimes takes an hour--and he eats absolutely NO table food.

All he will eat is cheese, cheese puffs, m&m's, and cookies. She has

started putting his baby food in his bottle of milk to get it down

him. My one year old is so hyper that I stay tired and am not as

available to help them as I would like to be. I am an LPN and woked a

lot of years in our small town hospital--but have not been working now

for the last couple of years(since my mother died--can't stand to do

it anymore.) I'm happy to stay home with Lane and get to take him to

therapy,etc. Got Lane's one year check-up yesterday and he now weighs

18lbs. 8oz. and is 271/2 inches tall (good considering he started at

3lbs. 7oz.and 16 inches.) Do you mind sharing what size your son is

now?? Did you have all these feeding and lack of sleep problems??

Yes, I joined the Magic foundation and my daughter has been a member

for over a year now. One place won some of his national titles

was in Chicago(with New Star Discovery). I think my daughter plans to

go to the convention this summer and I MAY go with her. Would love to

meet some of you. It certainly is nice to know that someone

understands exactly what you are talking about. It seems sort of

strange that my 2 grandsons are EXACTLT opposite. While is

short, chunky light complexion,won't eat or anything, Lane is lean,

long, dark and will eat anything he sees. Each of us is unique in our

own way, I guess. Both boys are friendly, loving and happy and are a

great joy!! I feel blessed in so many ways--good family, good

friends, and excellent therapists to work with the boys. Thank

you again for sharing with me. Grandma Fran