Re: Re: newbie-intro/questions: update

August 16, 2007

I would hate to burst your bubble, however, I had that similar conversation

when my son was 18 mo old. We have been in intensive therapy since he was

3, he is now 4.5. I missed a whole year of doubling up the therapy because

everyone assured me that boys talk late, he is the 2nd child. Etc…

Be sure to schedule the 6 mo re-eval and hope for the best

_____

From:

[mailto: ] On Behalf Of sunriseiz

Sent: Thursday, August 16, 2007 12:59 PM

Subject: [ ] Re: newbie-intro/questions: update

Hi everyone,

Well, we had our evaluation this morning. The good news is that the

SLP says he tests right on track, so maybe we've been worrying for

nothing. I was a little surprised, however, that the signs he has

count as words(is this typical?). He did most of the receptive

language part 'correctly' (i.e., he could point to the picture she

asked for). He also managed to produce one " mamama " while we were

there. This is new from the past few days!

I told my husband I'm not 100% convinced, but I will shelve

worrying/obsessing for a little while. She did say if he wasn't

talking more within the next 6 months to call her back. She also gave

us suggestions on trying to encourage him to use words, so that was

good. He is so young and I know they can change overnight, so I'm

game to see what we can do at home and see how things go.

Thanks for all of the encouragement. I am sure I'll be sticking

around so I can keep learning from you all!

Dawn

>

> Hi all,

>

> I have been lurking here for a month or so and finally decided

> to share our situation. DS is 17 months old and says nothing. He

> used to babble etc when he was 10-12 months, and then stopped. Now

> mostly it's grunting. Obviously, we have been concerned as is our

> ped. We've had his hearing checked and it's fine. His comprehension

> seems fine since he responds and follows " instructions " .

>

> We have a appt next Thurs for a speech development evaluation. Yea!

> My question for you all is what should I expect and are there

> particular questions I should ask?

>

> In the meantime, we have started an omega 3/6/9 supplement, are doing

> some signing and trying to have more verbal on on one time with him (a

> special challenge due to his verbose older sister!).

>

> I have already learned a lot from you guys!

> Any suggestions or comments would be greatly appreciated!

>

> Thanks,

> Dawn

>

August 17, 2007

EI is tricky in different places. I would het the eval but not go on it

100% if you still think there is an issue. In NJ for instance, I think

the rule is they have to be 25% deficient in one area and 33% in anoter

area to get services. My son, who had no words at 20 months, did not

qualify technically but the kind therapists seem to have fudged the #s.

He never did qulify for speech services despite that but the OT made a

call. Not that it matters as he is getting more speech help from me, the

OT, and the fish oil than the speech therapist. The evaluating speech

therapist said to me " He is only 6 months behind, he'll be ok. They all

get there eventually. I was thrilled. Then I realized the significance

of 6 months in a young child's life. Then I read the 84% do not grow out

of it statistic. Then I read The Late Talker. Then I woke up to what was

in front of me and stopped wishing it away.

trmckenna1 wrote:

>Hi Dawn:

>Your son is 17 months old and has no words, but uses sign language is

>that correct? How many signs does he have? I don't want to be the

>one to burst your bubble...and I am sorry to even put bad thoughts

>back into your head. If he is using sign language to communicate with

>you, have you asked yourself the question as why is he signing and

>not speaking? I have never heard of signs being counted as words on

>a speech test...my private therapist didn't even count aproximations

>that couldn't be understood without visual help as true words.

>Pleasee read this link below and visit the links section for other

>great info. If you haven't done it yet, read the Late Talker. If

>this evaluation was through EI, I would get a private evaluation.

>Sometimes you can go to a university and get an evaluation done on a

>sliding scale fee. I would not wait 6 months...I would get him

>speech therapy and you may have to do it privately. Did EI say he

>wasn't eligible for speech? I can't imagine him not being, my son

>started EI at 19 months with 3 words. Therapy won't hurt him and if

>it is a speech disorder like apraxia the earlier therapy starts the

>better off he will be.

>Good luck to you,

>Tina

> /links

>links page

> /message/64508

>Cause for concern in first 12-18 months

>· Lack of communicative gestures · Does not attempt to imitate or

>produce single words

>· Does not persist in communication (may hold hand up for help, but

>gives up if adult does not respond immediately) · Limited

>comprehension (understands less than 50 words) · Limited vocabulary

>(speaks less than 10 words) · Lack of new words between the age of

>12-18 months

>

>>

>>>Hi all,

>>>

>>>I have been lurking here for a month or so and finally decided

>>>to share our situation. DS is 17 months old and says nothing. He

>>>used to babble etc when he was 10-12 months, and then stopped.

>>>

>Now

>

>>>mostly it's grunting. Obviously, we have been concerned as is our

>>>ped. We've had his hearing checked and it's fine. His

>>>

>comprehension

>

>>>seems fine since he responds and follows " instructions " .

>>>

>>>We have a appt next Thurs for a speech development evaluation.

>>>

>Yea!

>

>>>My question for you all is what should I expect and are there

>>>particular questions I should ask?

>>>

>>>In the meantime, we have started an omega 3/6/9 supplement, are

>>>

>doing

>

>>>some signing and trying to have more verbal on on one time with

>>>

>him (a

>

>>>special challenge due to his verbose older sister!).

>>>

>>>I have already learned a lot from you guys!

>>>Any suggestions or comments would be greatly appreciated!

>>>

>>>Thanks,

>>>Dawn

>>>

>

August 17, 2007

I cannot candycoat this: That is not speech. It is communication which

is good but the child cannot go through life hoping those other than you

will understand his grunt and point method. ly, your guy is ahead

of where mine was at that age but you still should be concerned. I have

seen this left unattended. The girl in question is now a 47 year old

woman and still grunting and pointing. You want and can get more for

your boy than that....so much more. I think of her every time I start to

get scared or complacent. Please consider the malabsorption and fish oil

folders. Dr. ' abstract and the malabsorption testing would be a

good thing to discuss with your doc.

Even if your EI is awful, it is a second pair of eyes. I would start the

EI process and consider a neurodevelopmental pediatrician. Your doc

sounds great so I'd bounce it off of her. You have excellent judgment

and have picked up a lot early. The down side to that is that many may

dismiss you because it is " too early. " It is never too early. It just

means you may have the added task of waking others up. So many of us

have been there!

sunriseiz wrote:

>Hi Tina,

>

>She used the mamamama for an approximation. She relied on us heavily,

>but I don't think we overstated anything and he did his usual playing

>while she watched. She also saw him " say " " ssssss " when dh asked him

>to. He signed a fair amount while we were there and the expressive

>language part was where she counted that as having words. We only

>have the summary of the eval right now. We should have the full

>report by the first of next week which I hope has more details on how

>she scored things.

>

>I thought about your question on number of signs and he has at least

>20, so between that and the grunt-n-point method, he communicates

>fairly well. When I looked at the list you gave me earlier, it seems

>like her interpretation was either/or and not both. If you look at it

>that way, I guess she is right. But I don't get how that is speech.

>Language, yes; speech, no.

>

>>Cause for concern in first 12-18 months

>>· Lack of communicative gestures

>>· Does not attempt to imitate or produce single words

>>· Does not persist in communication (may hold hand up for help,

>>but gives up if adult does not respond immediately)

>>· Limited >comprehension (understands less than 50 words)

>>· Limited vocabulary

>>(speaks less than 10 words)

>>· Lack of new words between the age of 12-18 months

>>

>

>I may sit on this for a couple of weeks. He has his 18-month check up

>coming soon and I will definitely talk to his ped about this. She is

>great and has never dismissed any concerns we've had...at least thus far!

>

>Our EI website is awful and I had the idea it might take forever to

>get in, but I may have no choice to at least make the phone call and

>see what happens.

>

>Thanks again for the support!

>Dawn

>

>>>

>>>>Hi Dawn:

>>>>Your son is 17 months old and has no words, but uses sign

>>>>

>>language is

>>

>>>>that correct? How many signs does he have? I don't want to be

>>>>

>>the

>>

>>>>one to burst your bubble...and I am sorry to even put bad

>>>>

>>thoughts

>>

>>>>back into your head. If he is using sign language to communicate

>>>>

>>with

>>

>>>>you, have you asked yourself the question as why is he signing

>>>>

>>and

>>

>>>>not speaking? I have never heard of signs being counted as words

>>>>

>>on

>>

>>>>a speech test...my private therapist didn't even count

>>>>

>>aproximations

>>

>>>>that couldn't be understood without visual help as true words.

>>>>Pleasee read this link below and visit the links section for

>>>>

>>other

>>

>>>>great info. If you haven't done it yet, read the Late Talker.

>>>>

>>If

>>

>>>>this evaluation was through EI, I would get a private

>>>>

>>evaluation.

>>

>>>>Sometimes you can go to a university and get an evaluation done

>>>>

>>on a

>>

>>>>sliding scale fee. I would not wait 6 months...I would get him

>>>>speech therapy and you may have to do it privately. Did EI say he

>>>>wasn't eligible for speech? I can't imagine him not being, my

>>>>

>>son

>>

>>>>started EI at 19 months with 3 words. Therapy won't hurt him and

>>>>

>>if

>>

>>>>it is a speech disorder like apraxia the earlier therapy starts

>>>>

>>the

>>

>>>>better off he will be.

>>>>Good luck to you,

>>>>Tina

>>>> /links

>>>>links page

>>>>

>> /message/64508

>>

>>>>Cause for concern in first 12-18 months

>>>>· Lack of communicative gestures · Does not attempt to imitate or

>>>>produce single words

>>>>· Does not persist in communication (may hold hand up for help,

>>>>

>>but

>>

>>>>gives up if adult does not respond immediately) · Limited

>>>>comprehension (understands less than 50 words) · Limited

>>>>

>>vocabulary

>>

>>>>(speaks less than 10 words) · Lack of new words between the age of

>>>>12-18 months

>>>>

>

August 17, 2007

Just keep reading. You need not do it all in a day. Let's hope I am all

wet. I'd love nothing more. Just post your questions and you will get

the full benefits of this board and more than one opinion. Lots of ideas

and thoughts but in the end, you, with your intelligence and intuition,

will know what path to follow. Fear not...we will all support you!

sunriseiz wrote:

>Thanks for the encouragement. I will definitly take a look at those

>folders. I am sure I will have questions after I do the reading. I

>am baffled.....

>

>>>>>

>>>>>>Hi Dawn:

>>>>>>Your son is 17 months old and has no words, but uses sign

>>>>>>

>>>>language is

>>>>

>>>>>>that correct? How many signs does he have? I don't want to be

>>>>>>

>>>>the

>>>>

>>>>>>one to burst your bubble...and I am sorry to even put bad

>>>>>>

>>>>thoughts

>>>>

>>>>>>back into your head. If he is using sign language to communicate

>>>>>>

>>>>with

>>>>

>>>>>>you, have you asked yourself the question as why is he signing

>>>>>>

>>>>and

>>>>

>>>>>>not speaking? I have never heard of signs being counted as words

>>>>>>

>>>>on

>>>>

>>>>>>a speech test...my private therapist didn't even count

>>>>>>

>>>>aproximations

>>>>

>>>>>>that couldn't be understood without visual help as true words.

>>>>>>Pleasee read this link below and visit the links section for

>>>>>>

>>>>other

>>>>

>>>>>>great info. If you haven't done it yet, read the Late Talker.

>>>>>>

>>>>If

>>>>

>>>>>>this evaluation was through EI, I would get a private

>>>>>>

>>>>evaluation.

>>>>

>>>>>>Sometimes you can go to a university and get an evaluation done

>>>>>>

>>>>on a

>>>>

>>>>>>sliding scale fee. I would not wait 6 months...I would get him

>>>>>>speech therapy and you may have to do it privately. Did EI say he

>>>>>>wasn't eligible for speech? I can't imagine him not being, my

>>>>>>

>>>>son

>>>>

>>>>>>started EI at 19 months with 3 words. Therapy won't hurt him and

>>>>>>

>>>>if

>>>>

>>>>>>it is a speech disorder like apraxia the earlier therapy starts

>>>>>>

>>>>the

>>>>

>>>>>>better off he will be.

>>>>>>Good luck to you,

>>>>>>Tina

>>>>>> /links

>>>>>>links page

>>>>>>

>>>> /message/64508

>>>>

>>>>>>Cause for concern in first 12-18 months

>>>>>>· Lack of communicative gestures · Does not attempt to imitate or

>>>>>>produce single words

>>>>>>· Does not persist in communication (may hold hand up for help,

>>>>>>

>>>>but

>>>>

>>>>>>gives up if adult does not respond immediately) · Limited

>>>>>>comprehension (understands less than 50 words) · Limited

>>>>>>

>>>>vocabulary

>>>>

>>>>>>(speaks less than 10 words) · Lack of new words between the age of

>>>>>>12-18 months

>>>>>>

>>>

August 17, 2007

If that slp does Kauffman she may be the best one to go to at 2 and she

will see either a decline or increase in abilities and then the testing

would be very helpful.

sunriseiz wrote:

>I took a look at the Kaufman test info. It looks like it starts at

>age 2. I will definitely keep this in mind however. If we end up

>back with the same slp at that time, maybe I could request it.

>

>Thanks!

>

August 17, 2007

The feeding thing you describe is identical to what I had with son.

Every time I was asked I answered no to feeding and texture issues but I

should have answered yes. It did resolve but the speech did not. What

concerns me most is that your son " passed " on the fish oil and not off

and the things she counted as words. We had and still have intermittent

diaper change rebellion. I believe it is related to yeast, sometimes

obvious and sometimes not.

Not trying to burst bubbles. Just FYI stuff to consider.

L

sunriseiz wrote:

>Hey Tina,

>

>Fortunately, we don't seem to have any other issues. No feeding

>problems, nursed fine. He just really started walking with any

>consistency last week, so a little late there. I haven't noticed any

>sensory issues other sometimes he spits out new food if it has an

>unusual texture. Usually, after a few tries, it's not a problem. He

>does hate having his diaper changed, but I can't blame him on that one.

>

>I wish the testing link were working. I will have to try again later.

> I looked up the Kaufman test that mentioned and it gave an age

>range of 2-6, so I guess we aren't quite ready for that one. Thanks

>for the other links as well. I think I have a lot more reading to do!

>

>Dawn

August 17, 2007

Please know that I in no way want to scare you. I have concerns from

being there and the most persuaive thing is your own concerns. I did not

trust my own judgment to mother my own kids and accepted a number of

lame explanations from caring and intelligent people, doctors even, whom

I love and trust. In the end, my instinct was right. I wish it was not

so and that those exuses were right. I will take input from everywhere

but I will also trust my mommy gut in new ways I neglected to before.

That's what I want for you and if that means you think my ideas are

nuts...I trust you over me every day of the week with your kid and what

you see. Make sure you do.

Lastly, did the evaluator see your kid eat? We learned a lot that

way...long after the eval.

sunriseiz wrote:

>Thanks Liz. I'll take all of the input I can get!

>

>>

>>>Hey Tina,

>>>

>>>Fortunately, we don't seem to have any other issues. No feeding

>>>problems, nursed fine. He just really started walking with any

>>>consistency last week, so a little late there. I haven't noticed any

>>>sensory issues other sometimes he spits out new food if it has an

>>>unusual texture. Usually, after a few tries, it's not a problem. He

>>>does hate having his diaper changed, but I can't blame him on that

>>>

>one.

>

>>>I wish the testing link were working. I will have to try again later.

>>>I looked up the Kaufman test that mentioned and it gave an age

>>>range of 2-6, so I guess we aren't quite ready for that one. Thanks

>>>for the other links as well. I think I have a lot more reading to do!

>>>

>>>Dawn

>>>

>

August 17, 2007

As I understand it, the big thing for them to view is swallowing,

preferably a thick drink (shake-like).

sunriseiz wrote:

>Don't worry. No offense taken. The whole reason I'm on this board is

>to learn from the groups' experiences since I have no experience of my

>own with this. I am going to do some more reading and take it up with

>our ped. I appreciate all of your comments!!! She did see wilson

>eat, but only crackers...a no brainer at this point. That is an

>interesting thought.

>

>I don't want to miss anything important. So keep the comments coming!!!

>

>dawn

>

>>>>

>>>>>Hey Tina,

>>>>>

>>>>>Fortunately, we don't seem to have any other issues. No feeding

>>>>>problems, nursed fine. He just really started walking with any

>>>>>consistency last week, so a little late there. I haven't noticed any

>>>>>sensory issues other sometimes he spits out new food if it has an

>>>>>unusual texture. Usually, after a few tries, it's not a problem. He

>>>>>does hate having his diaper changed, but I can't blame him on that

>>>>>

>>>one.

>>>

>>>>>I wish the testing link were working. I will have to try again later.

>>>>>I looked up the Kaufman test that mentioned and it gave an age

>>>>>range of 2-6, so I guess we aren't quite ready for that one. Thanks

>>>>>for the other links as well. I think I have a lot more reading

>>>>>

>to do!

>

>>>>>Dawn

>>>>>

>>>

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