We need to find a PLS Pediatrician!

[Guest guest]

We recently moved to Port St Lucy, if anyone knows of a good

pediatrician in the area that is familiar with and treats children

with disabilities please let me know! When we moved we transferred to

a new office and have had no luck with the Dr's. When I asked the Dr

if he knew anything about Dyspraxia/Apraxia he told me no. Besides

that I've received better service from a Mcs Drive threw!

Thanks

>

> Hello, my name is . I have 3 boys, Aiden, Conner and

> Darrius. Just before Aiden's 3rd birthday we took him to the Dr's

> because he was not clearly talking, a lot of babbling and a large

> lack of communication. The Dr recommend we call Child Find and take

> him in for an evaluation, which we did. They did the evaluation and

> said the he was 40% delayed and recommended a neurological

screening,

> and started all the paper work for the school board transition. The

> school board recommended enrolling him in a full time pre-K. My

> husband and I did not agree with this, so the school board said if

we

> do not follow their recommendations that they would not help us? We

> then took him to a speech pathologist, she did her own evaluation.

> She believes that Aiden has a Developmental Dyspraxia. His

> comprehension is more than we had imagined. He just does not have

the

> ability to return communication threw speech. We are now learning

> sign language and will be taking him for a neurological screening

and

> an Occupational therapy assessment. He has gone to speech therapy

> twice and learn a dozen new signs, I can't believe the changes in

> him in one week.

>

> A lot of my frustrations come from the lack of support we

> have. My in-laws think that we are doing everything wrong. That if

> he's around more kids, if we do this or that he would be fine? They

> can't comprehend that he could have a neurological disorder that

can

> be disabling and he needs helps. I guess because he has no physical

> signs of a problem they don't see one. If someone was in an

accident

> and lost a leg and needed a wheel chair or crutches, maybe even a

> prosthetic leg, that would be understandable to them, But because

> Aiden doesn't speak and we are teaching him sign language we are

> enabling him? I don't know how to handle them without possibly

> getting angry and telling them off! Any advice?

>

> If anyone has any recommendations of anything that might help

> us to make Aiden's life a little easier I would appreciate any

> feedback.

>

> Thank you,

> -

>