RE: A few q's for those kids that have had the ATTT

[Guest guest]

,

I'm sorry, I have no advice for you, but I just wanted to let you

know I'm feeling for you & Becky. I hope everything turns out okay.

Try not to stress too much. It's amazing what we can cope with &

hide from our kids as parents. As nervous as we may be, always

putting on a happy face for them! :-) Not that this compares, but it

reminds of the plane ride we just took--my first trip in a plane

since I was 6--we had some turbulence on the way home, but I was so

determined not to show my kids I was nervous I sat and colored the

whole time with my 2 yr. old, even though I was DYING inside! He

thought it was just GREAT!!

So be strong! Tell her about the great balloons and stuffed animals

she's going to get! And we're here for you!

, mommy of:

Guinevere, on, Ava 8/4/04 right CF DBB 16-18/7

>

> I am just found out on Monday that Becky is going to be needing the

> ATTT. We are going to have it done in Iowa with Dr.Morocunde in

July

> and I have a few questions.....

>

> 1. How is it with an older one in casts?

> 2. Car seats.... Any particular ones better than another? How

did

> you support the legs in the car?

> 3. Can they crawl with the casts after the surgery or do they

have

> to stay off their feet the whole 6 weeks?

> 4. After the surgery how often do they need a checkup? I have

heard

> 6 weeks and then again at 6 mos post op.... are there any more?

> 5. What would you reccomend for getting around a stroller or a

small

> wheelchair?

>

> Any advice would be greatly appreciated.

>

> Thank you!!!

>

> and Becky 3yrs., bilateral clubfoot

[Guest guest]

How old will Becky be when the operation occurs?

My son had it at 25 months old, maybe I can help.

s.

A few q's for those kids that have had the ATTT

I am just found out on Monday that Becky is going to be needing the

ATTT. We are going to have it done in Iowa with Dr.Morocunde in July

and I have a few questions.....

1. How is it with an older one in casts?

2. Car seats.... Any particular ones better than another? How did

you support the legs in the car?

3. Can they crawl with the casts after the surgery or do they have

to stay off their feet the whole 6 weeks?

4. After the surgery how often do they need a checkup? I have heard

6 weeks and then again at 6 mos post op.... are there any more?

5. What would you reccomend for getting around a stroller or a small

wheelchair?

Any advice would be greatly appreciated.

Thank you!!!

and Becky 3yrs., bilateral clubfoot

[Guest guest]

She will be about 3 1/2..... a very strong willed 3 1/2 at that LOL

I am stressing about this big time as we have no insurance..... I will

do what has to be done of course but I know we have a bit of hard

times coming our way.

-, mom to Becky

> How old will Becky be when the operation occurs?

>

> My son had it at 25 months old, maybe I can help.

> s.

>

> A few q's for those kids that have had

the ATTT

>

>

>

>

> I am just found out on Monday that Becky is going to be needing the

> ATTT. We are going to have it done in Iowa with Dr.Morocunde in July

> and I have a few questions.....

>

> 1. How is it with an older one in casts?

> 2. Car seats.... Any particular ones better than another? How did

> you support the legs in the car?

> 3. Can they crawl with the casts after the surgery or do they have

> to stay off their feet the whole 6 weeks?

> 4. After the surgery how often do they need a checkup? I have heard

> 6 weeks and then again at 6 mos post op.... are there any more?

> 5. What would you reccomend for getting around a stroller or a small

> wheelchair?

>

> Any advice would be greatly appreciated.

>

> Thank you!!!

>

> and Becky 3yrs., bilateral clubfoot

>

>

>

>

>

>

>

[Guest guest]

She will be about 3 1/2..... a very strong willed 3 1/2 at that LOL

I am stressing about this big time as we have no insurance..... I will

do what has to be done of course but I know we have a bit of hard

times coming our way.

-, mom to Becky

> How old will Becky be when the operation occurs?

>

> My son had it at 25 months old, maybe I can help.

> s.

>

> A few q's for those kids that have had

the ATTT

>

>

>

>

> I am just found out on Monday that Becky is going to be needing the

> ATTT. We are going to have it done in Iowa with Dr.Morocunde in July

> and I have a few questions.....

>

> 1. How is it with an older one in casts?

> 2. Car seats.... Any particular ones better than another? How did

> you support the legs in the car?

> 3. Can they crawl with the casts after the surgery or do they have

> to stay off their feet the whole 6 weeks?

> 4. After the surgery how often do they need a checkup? I have heard

> 6 weeks and then again at 6 mos post op.... are there any more?

> 5. What would you reccomend for getting around a stroller or a small

> wheelchair?

>

> Any advice would be greatly appreciated.

>

> Thank you!!!

>

> and Becky 3yrs., bilateral clubfoot

>

>

>

>

>

>

>

[Guest guest]

Then it's probably going to be a rough adjustment period for her. It's late

here but tomorrow I will write out what I learned going through it with my son

that might help you out. Try not to stress.....this too shall pass.

good night,

shawnee

A few q's for those kids that have had

the ATTT

>

>

>

>

> I am just found out on Monday that Becky is going to be needing the

> ATTT. We are going to have it done in Iowa with Dr.Morocunde in July

> and I have a few questions.....

>

> 1. How is it with an older one in casts?

> 2. Car seats.... Any particular ones better than another? How did

> you support the legs in the car?

> 3. Can they crawl with the casts after the surgery or do they have

> to stay off their feet the whole 6 weeks?

> 4. After the surgery how often do they need a checkup? I have heard

> 6 weeks and then again at 6 mos post op.... are there any more?

> 5. What would you reccomend for getting around a stroller or a small

> wheelchair?

>

> Any advice would be greatly appreciated.

>

> Thank you!!!

>

> and Becky 3yrs., bilateral clubfoot

>

>

>

>

>

>

>

[Guest guest]

- our son Henry is going to have to have the ATTT, we think, and

he will be 3 and a half as well. Any advice from other Mums (and Dads)

would be much appreciated!!!

Pete and

>

>

>

>

> She will be about 3 1/2..... a very strong willed 3 1/2 at that LOL

> I am stressing about this big time as we have no insurance..... I will

> do what has to be done of course but I know we have a bit of hard

> times coming our way.

>

> -, mom to Becky

>

>

>> How old will Becky be when the operation occurs?

>>

>> My son had it at 25 months old, maybe I can help.

>> s.

>>

>> A few q's for those kids that have had

> the ATTT

>>

>>

>>

>>

>> I am just found out on Monday that Becky is going to be needing the

>> ATTT. We are going to have it done in Iowa with Dr.Morocunde in July

>> and I have a few questions.....

>>

>> 1. How is it with an older one in casts?

>> 2. Car seats.... Any particular ones better than another? How did

>> you support the legs in the car?

>> 3. Can they crawl with the casts after the surgery or do they have

>> to stay off their feet the whole 6 weeks?

>> 4. After the surgery how often do they need a checkup? I have heard

>> 6 weeks and then again at 6 mos post op.... are there any more?

>> 5. What would you reccomend for getting around a stroller or a small

>> wheelchair?

>>

>> Any advice would be greatly appreciated.

>>

>> Thank you!!!

>>

>> and Becky 3yrs., bilateral clubfoot

>>

>>

>>

>>

>>

>>

>>

[Guest guest]

Hi ,

Sorry that Becky has to go through this. Dr. Morcuende performed the ATTT on

our daughter Emma in November of 2003 when she was 4. They will allow you to

hold Becky when they put her under which was a real comfort (it was for both

Emma and I).

To answer your questions:

1. Giving her alot more attention than usual will help as she adjusts to

being restricted. We also took Emma to alot of places that she liked. She

loves animals and bugs so we made frequent visits to pet stores, local

animal sanctuary, and insectarium. We also bought all sorts of craft making

stuff and spent hours making necklaces, gluing things, etc.

2. We put a small stool on the car floor but a box would be just as good.

3. Some kids walk on them a few days after the surgery. Emma wasn't that

adventurous and scooted on her bum.

4. We sent videos every 4 - 6 months, including one today.

5. We found it ok to get around in a stroller but Emma enjoyed a wheelchair

whenever we could get one. Overall it was more comfortable for her.

In Iowa they will want to put some sort of rubber taping on the inside part

of the casts closest to the groin. It's done to prevent urine from reaching

the casts but we wished they hadn't used it. It ended up causing a rash on

Emma's thighs because it caused the skin to sweat more easily and chafe. It

also ends up smelling. And there was never a problem with urine reaching the

casts, we just made sure that Emma sat the right way on the toilet.

How are Becky's feet now?

Dan

A few q's for those kids that have had the

ATTT

I am just found out on Monday that Becky is going to be needing the

ATTT. We are going to have it done in Iowa with Dr.Morocunde in July

and I have a few questions.....

1. How is it with an older one in casts?

2. Car seats.... Any particular ones better than another? How did

you support the legs in the car?

3. Can they crawl with the casts after the surgery or do they have

to stay off their feet the whole 6 weeks?

4. After the surgery how often do they need a checkup? I have heard

6 weeks and then again at 6 mos post op.... are there any more?

5. What would you reccomend for getting around a stroller or a small

wheelchair?

Any advice would be greatly appreciated.

Thank you!!!

and Becky 3yrs., bilateral clubfoot

[Guest guest]

Dan,

Well her feet are pretty good now.... it is just the tendon problem

all other parts of the deformity are corrected. They said as long

as she keeps wearing her FAB that they won't need to put her in casts

before surgery.

Becky just started potty training a few mos ago..... I am worried

about that being a problem. Did Emma need any sort of PT after the

casts came off? ANd were they fiberglass or plaster casts? Becky

had plaster casts at about 1 1/2 and she managed to crack them at the

ankles and the knees, so I am hoping that these will be a little

stronger since she is a little more adventurous and daring now LOL

Did you all go home after the surgery or did you stay in Iowa the

whole 6 weeks? We are thinking of staying.... as this parranoid mom

is afraid that we will get back to California and there will be a

problem.

Sorry for so many questions.... I really just don't know how we are

going to handle this. The insurance is the biggest issue as we have

none and the cost of the surgery is so high. At least I have

some time to get everything lined up.

THanks!

> Hi ,

>

> Sorry that Becky has to go through this. Dr. Morcuende performed the

ATTT on

> our daughter Emma in November of 2003 when she was 4. They will

allow you to

> hold Becky when they put her under which was a real comfort (it was

for both

> Emma and I).

>

> To answer your questions:

>

> 1. Giving her alot more attention than usual will help as she adjusts to

> being restricted. We also took Emma to alot of places that she

liked. She

> loves animals and bugs so we made frequent visits to pet stores, local

> animal sanctuary, and insectarium. We also bought all sorts of craft

making

> stuff and spent hours making necklaces, gluing things, etc.

>

> 2. We put a small stool on the car floor but a box would be just as

good.

>

> 3. Some kids walk on them a few days after the surgery. Emma wasn't that

> adventurous and scooted on her bum.

>

> 4. We sent videos every 4 - 6 months, including one today.

>

> 5. We found it ok to get around in a stroller but Emma enjoyed a

wheelchair

> whenever we could get one. Overall it was more comfortable for her.

>

> In Iowa they will want to put some sort of rubber taping on the

inside part

> of the casts closest to the groin. It's done to prevent urine from

reaching

> the casts but we wished they hadn't used it. It ended up causing a

rash on

> Emma's thighs because it caused the skin to sweat more easily and

chafe. It

> also ends up smelling. And there was never a problem with urine

reaching the

> casts, we just made sure that Emma sat the right way on the toilet.

>

> How are Becky's feet now?

>

> Dan

>

>

>

> A few q's for those kids that have had the

> ATTT

>

>

>

>

> I am just found out on Monday that Becky is going to be needing the

> ATTT. We are going to have it done in Iowa with Dr.Morocunde in July

> and I have a few questions.....

>

> 1. How is it with an older one in casts?

> 2. Car seats.... Any particular ones better than another? How did

> you support the legs in the car?

> 3. Can they crawl with the casts after the surgery or do they have

> to stay off their feet the whole 6 weeks?

> 4. After the surgery how often do they need a checkup? I have heard

> 6 weeks and then again at 6 mos post op.... are there any more?

> 5. What would you reccomend for getting around a stroller or a small

> wheelchair?

>

> Any advice would be greatly appreciated.

>

> Thank you!!!

>

> and Becky 3yrs., bilateral clubfoot

>

>

>

>

>

>

>