Jodi

[Guest guest]

Thanks for the info, I love this group for everything we can learn

and share here. I'm still fairly new with learning about RSS as

Olivia wasn't diagnosed until she was 3yrs. 3mo. old, almost a year

ago. She has so many issues against her for being small...

a) Severe IUGR with a 2 vessel cord (umbilical cords have 3 vessels

so she was being starved in utero)

Genetics - I'm only 4'9 " , my husband is only 5'5 "

c) Osteo-genesis imperfecta (Brittle bone disease) a characteristic

of OI is small stature)

d) Premature birth, she was born at 29 weeks.

.... that the Dr's didn't want to diagnosis her with anything but I

kept persisting that they look further because she just wasn't

developing like she should nor was she reaching any mile stones near

the times that she should have been. The biggest " red flag " that I

kept telling them was that her front and back fontanelles were still

open when she was 3 and that her body should still develop normally

even though she was premature. Any way I'm glad for the diagnosis

and the new starting point for our family.

Thanks again!

Leah, Mom to non RSS and Olivia 4yrs 18lbs.