Re: low diffusion(dlco) on pft's

[Guest guest]

,

I have had low diffusion pulmonary tests for about 20 years now. I

have Sarcoidosis in addition to Mitochrondrial Myopathy and my lung

x rays show intersitial changes and my lung volume is also low. My

Neurologist thinks weak diapghram muscles are part of the problem.

I use oxygen at night and when I am doing anything strenous. I have

often thought they were related.

Be sure and get a pneumonia vaccine and keep up the flu vaccines.

Jim

L

> Does anyone have a low diffusion on their pulmonary function tests

> (pft's)? I had pft's in January which were abnormal in regards to

> muscle weakness and asthma and also low diffusion. I had the dlco

> repeated this week and it was low again- about the same as in

January

> but still markedly reduced. I am waiting to hear from my pulmo doc

and

> hoping he has some answers. I had a high resloution chest ct done

in

> feb or march which showed mild interstitial changes vs scarring in

both

> bases. Any thoughts??? From what I have read, there are usually

only a

> few reasons for a low dlco(diffusion)-interstitial lung disease,

> pulmonary fibrosis,emphysema among a few. I am just concerned as I

have

> never smoked etc. Maybe it is something autoimmune as I have a

positive

> ANA. Thanks!

>

>

[Guest guest]

Jim,

Thanks for replying. I have just been puzzled as to why it is consistently low.

Hopefully, my pulmo doc will have some answers. Unfortunatley,I cannot take the

flu shot because I am allergic to eggs. Thanks agian.

jacvietnam jacolman@...> wrote:

,

I have had low diffusion pulmonary tests for about 20 years now. I

have Sarcoidosis in addition to Mitochrondrial Myopathy and my lung

x rays show intersitial changes and my lung volume is also low. My

Neurologist thinks weak diapghram muscles are part of the problem.

I use oxygen at night and when I am doing anything strenous. I have

often thought they were related.

Be sure and get a pneumonia vaccine and keep up the flu vaccines.

Jim

L

> Does anyone have a low diffusion on their pulmonary function tests

> (pft's)? I had pft's in January which were abnormal in regards to

> muscle weakness and asthma and also low diffusion. I had the dlco

> repeated this week and it was low again- about the same as in

January

> but still markedly reduced. I am waiting to hear from my pulmo doc

and

> hoping he has some answers. I had a high resloution chest ct done

in

> feb or march which showed mild interstitial changes vs scarring in

both

> bases. Any thoughts??? From what I have read, there are usually

only a

> few reasons for a low dlco(diffusion)-interstitial lung disease,

> pulmonary fibrosis,emphysema among a few. I am just concerned as I

have

> never smoked etc. Maybe it is something autoimmune as I have a

positive

> ANA. Thanks!

>

>

Medical advice, information, opinions, data and statements contained herein are

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[Guest guest]

I also can't take flu shots, nobody knows why since I don't show an

allergy to eggs...

Take care,

RH

> > Does anyone have a low diffusion on their pulmonary function tests

> > (pft's)? I had pft's in January which were abnormal in regards to

> > muscle weakness and asthma and also low diffusion. I had the dlco

> > repeated this week and it was low again- about the same as in

> January

> > but still markedly reduced. I am waiting to hear from my pulmo

doc

> and

> > hoping he has some answers. I had a high resloution chest ct done

> in

> > feb or march which showed mild interstitial changes vs scarring

in

> both

> > bases. Any thoughts??? From what I have read, there are usually

> only a

> > few reasons for a low dlco(diffusion)-interstitial lung disease,

> > pulmonary fibrosis,emphysema among a few. I am just concerned as

I

> have

> > never smoked etc. Maybe it is something autoimmune as I have a

> positive

> > ANA. Thanks!

> >

> >

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends

one is automatically moderated or removed depending on the severity

of the attack.

>

>

>

>

>