Re: what happened after I came here

March 24, 2005

Hello everybody

Congratulations for soccer player family!

I think I'd flood with tears if my daughter would dance on points some day .

Basically we all pass through the same emotions, don't we?

I have seen Ms. in Manchester , the round journey took us 18 hours but

the reassurance worse it.

After I asked you about AFOs my daughter was put into for 3 weeks I asked our

doctor for FAB and it was fitted very readily at the same appointment " You want

it - get it " . It was put at 45 degrees and when I asked about it I was told that

was how they used it. Never mind, I put them on 70 at home although I was afraid

of doing it since some of correction was lost already if you remember.

We had NO problem at all with that bar. So now after 3 weeks in recquested FAB

the Ponsetti trained doctor seen us and told everythyng was OK with feet

correction and that our doctor done a good job. Small bad thing - tightness of

one Achille tendon presumably due to those 3 weeks in AFOs. all togather I'm

releived and I thank God we were put in the right hands for beginning.

Thank you for guidance.

'antiphospholipidos' gave a coherent explanation what is bad in AFOes in one

of the latest posts here.

Cross your fingers we do not get any blisters in boots and bar that Ms

gave us (they are slightly different from what we had).

And could you advise me how to speak to our doctor so not to ofend him at all

because he's done the great job at the time we were vulnerable since we had no

info about cf at all.

Also if someone knows forums similar to this one where parents treated by

non-Ponsetti methods discuss, could you give me a link please.

Thanks

By the way I do not think anyone should feel gilty because our children we not

treated the best. It takes time to realise there are other options and it is

difficult in medicine since often there are no set rools as in math eg so

every doctor says " we are doing this and we are getting good results with this " .

Oooo and one more question: my daughter goes to sleep at 11 pm more or less, she

is 4,5 month old. We were told by Ms. we had to change her rootine so she

goes to bed at 8 pm otherwise we'd have problems when she'll be at night only

regime. Anyone has the same problem?

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