Guest guest Posted October 29, 2000 Report Share Posted October 29, 2000 Dear Well, we don't really know if the minocin is working. The reason we don't know is because when we put him on it, he was on 80 mg. of prednisone. He's down to 30 mg. now, and when we drop him below 30 he feels REALLY bad, so we're kind of stuck here for now. Let's say we're in a holding pattern, trying to stabilize him before we drop him again. So you see, we don't know how he would be if he weren't on the minocin. We can't tell one way or the other. He was obviously very, very ill, with high fevers, chills, night sweats, the works. Now he is going to school and leading a relatively normal life but clearly not well enough to play sports which he was doing before. It's been a year since he first got sick. How would I find out more about the vitamin C therapy? Jan > > Message: 12 > Date: Sun, 29 Oct 2000 12:19:43 +0100 (CET) > From: and Chas Adlard <cadlard@...> > Subject: Re: teeth staining > > > Dear Jan, > > The pigmentation from minocycline is harmless but cosmetically > undesirable. How is your son doing on minocycline? If it's working for > him, then he runs the risk of a different antibiotic not working so well > for him. Otherwise he could change to doxycycline at the same dose and see > how he gets on with that. There are other choices of antibiotic also. > > If he stays on minocycline, Dr. Graham Chiu mentioned a study with large > amounts of vitamin C showing reversal of the pigmentation. I think some of > the group have tried this with some success. > > Chris. > > > On Sat, 28 Oct 2000, Jan Gunter wrote: > > > I've heard about teeth staining with minocin, but haven't paid attention to > > the details. My 14-year-old son with sytemic JRA has been on minocin 5 > > months, and his teeth are staining. What do I need to do about this? Is it > > reversible? > > > > Jan Gunter > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 13 > Date: Sat, 28 Oct 2000 19:52:49 +0900 > From: " Patten " <leslie@...> > Subject: Queststrand > > Has anyone heard or used this? That is the trademark name, the generic is > called Colostryramin (sp.?). It is usually used for high colestroral > because fats bind to it. Used on an empty stomach it absorbs toxins and > passes through the system. It is not absorbed into the system. It was > suggested to me for arthritis. > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 14 > Date: Sun, 29 Oct 2000 03:13:34 -0000 > From: Artberg74@... > Subject: Rheumatoid Arthritis 1-24-96 Minocin 6-6-00 > > I was infected R.A. in 1996. Was being treated by my rheume in 1997 with Minocin while living in N.Y. for 4 months and was well on my way to remission. Then I went to Florida for 8 months.You see I am retired and I live 4 months in N.Y. and 8 months in Florida. Well to make a long story short in 1997 when I returned to Florida I had to have my Minocin refilled. I noticed that the pills were a different color,Green instead of Blue & Orange. When I asked my doctor here in Florida he said they were GENERIC and assured me there was no difference. Boy was he ever WRONG I could not figure out why I seemed to be getting Worse and not better. Thats when I went to the library and read The Arthritis Breakthrough from cover to cover. On page 199 it states DO NOT USE GENERIC DUDS DURING YOURE TREATMENT> WELL thank doctor is no longer my doctor he cost me 2 years of pain not mention how much further the disease has progressed.Now with the real Minocin I am slowly getting better. PLEASE TELL EVERYON > E NOT TO USE THE GENER > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 15 > Date: Sat, 28 Oct 2000 22:18:59 -0500 > From: Probert <elbows@...> > Subject: Re: Re: teeth staining > > Hi Jan and > > The other to keep in mind is that some of us get staining which is only on > the surface of the teeth, and can be cleaned off by a dentist or dental > hygienist. > > Mine do this, it just looks like tea or coffee stains, and it comes off with > a professional cleaning. The permanent staining is another matter, it is on > the inside, not the surface, and is as describes-- > > Jean > > > > Dear Jan, > > > > The pigmentation from minocycline is harmless but cosmetically > > undesirable. How is your son doing on minocycline? If it's working for > > him, then he runs the risk of a different antibiotic not working so well > > for him. Otherwise he could change to doxycycline at the same dose and see > > how he gets on with that. There are other choices of antibiotic also. > > > > If he stays on minocycline, Dr. Graham Chiu mentioned a study with large > > amounts of vitamin C showing reversal of the pigmentation. I think some of > > the group have tried this with some success. > > > > Chris. > > > > > > On Sat, 28 Oct 2000, Jan Gunter wrote: > > > >> I've heard about teeth staining with minocin, but haven't paid attention to > >> the details. My 14-year-old son with sytemic JRA has been on minocin 5 > >> months, and his teeth are staining. What do I need to do about this? Is it > >> reversible? > >> > >> Jan Gunter > >> > >> > >> > >> To unsubscribe, email: rheumatic-unsubscribeegroups > >> > >> > > > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > > > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 16 > Date: Sun, 29 Oct 2000 00:20:51 EDT > From: Babs56p@... > Subject: Re: Queststrand > > : I once was prescribed this stuff for cholesterol but my stomache > could not take it. It's a powder that comes in a can and you mix with water; > I think it tasted kind of like Tang. Anyway, gave me upset stomache, gas, > bloat, etc. Yuck. Threw it out even though it was very expensive. I had a > friend who experienced the same. Have no clue about it's affect on arthritis > as I was prescribed this in my pre-RA days. > > Babs > RA 8/98, DX 4/99, AP 11/99 > 200 mg. Doxycycline > 112 mcg. Synthroid > 2 mg. Hytrin > Mestinon > Vits. & Misc. Suplmts. > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 17 > Date: Sun, 29 Oct 2000 00:30:51 EDT > From: Babs56p@... > Subject: Re: New poll for rheumatic > > I sent in, again, for another password to sign in. Have been a member for a > year now. What's up with this? > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 18 > Date: Sat, 28 Oct 2000 22:09:54 -0700 > From: Ann <thunderchicken57@...> > Subject: Re: Queststrand > > http://www.chronicneurotoxins.com > > Questran is being used in treating Lyme Disease. I have not heard > of it being used in arthritis but ?? > > Patten wrote: > > > > Has anyone heard or used this? That is the trademark name, the generic is > > called Colostryramin (sp.?). It is usually used for high colestroral > > because fats bind to it. Used on an empty stomach it absorbs toxins and > > passes through the system. It is not absorbed into the system. It was > > suggested to me for arthritis. > > > > > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 19 > Date: Sat, 28 Oct 2000 23:26:30 -0700 > From: Ann <thunderchicken57@...> > Subject: Interesting. > > http://www.telegraph.co.uk:80/et?ac=000118613908976 & rtmo=VPP1u4Gx & atmo=ggggg g3K & pg=/et/00/10/29/narth29.html > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 20 > Date: Sun, 29 Oct 2000 01:24:37 EST > From: Careabxs@... > Subject: Doxycycline & Photosensitivity > > Has anyone experienced photosensitivity reaction while on doxycylcine? I > have been on doxy for almost three years without such a problem--I take 100 > mgs every other day. However, my mother started taking doxy about 4 months > ago--100 mgs, twice a day: she is taking it as an experimental tx for > shrinking an abdominal aneurysm. In the last month she has developed a red > nose and sometimes her face gets very red. She does not sit in the sun but > sometimes while riding in the car or while sitting in a sunny room, she is > exposed to a lot of sun. Her nose is almost always red. Her internist isn't > sure if it is due to doxy and for now just gave her allergy medicine and also > told her to use hydrocortisone for nose: neither appear to be working. If > doxycylcine causes a photosensitive reaction, do you have to stop it or is > there is a way to treat it? Any responses are appreciated--thanks! > Carol E from NY > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 21 > Date: Sun, 29 Oct 2000 07:17:07 GMT > From: " Martha " <marthannon1@...> > Subject: Re: synvisc and oxycontin > > Gloria: > My joints are bone on bone - so I could not get much > worse - actually when I take the synvisc shots they > last about six months - and I have less inflammation > and hurting- but the pain/inflam does not go away - of course not. > Osteo-arthritis is still with me but some relief. It is > a kind of cushioning " meds " I believe - probably more than > fighting inflammation etc. Right now, I can not go through > the knee replacements, so this is about the only alternative > I have right now. Because of asthma so many meds (RA) are > out for me. > Martha > > > >From: finnish1@... > >missgloria@... > >CC: rheumaticegroups > >Subject: Re: rheumatic synvisc and oxycontin > >Date: Sat, 28 Oct 2000 18:11:14 EDT > > > >Hi Gloria, > > > >I'm no authority, but when I did some reading-up on synvisc recently, it > >adamantly said " Do NOT use synvisc if joints are swollen or infected. " > > > >I'm sure there are others here who know more. > > > > > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > > > ________________________________________________________________________ > ________________________________________________________________________ > > Message: 22 > Date: Sun, 29 Oct 2000 07:22:00 GMT > From: " Martha " <marthannon1@...> > Subject: Re: CSPI Wants Government To Limit Antibiotic Use > > It is kind of scary to think that > doctors are SOOO very reluctant now > to use antibiotics. Even my granddaughter > is affected. She had a terrible sinus > infection - way out of control. She is > seven years old. Doctors are so reluctant. > We insisted for WBC and strep throat culture. > Sure enough she had bacterial infection probably > plus virus as well - but she probably would have > gone into meningitis - if we had not been so > persistant to look at this child carefully. > Augmentin was a life-saver for her. > So especially if diseases such as heart disease, > rheumatoid arthritis and other connective tissue > disease are caused by infection - the medical > profession better get with it - or perhaps they > do not want us to get well at all!! > of course that is not all the doctors thank goodness. > Martha P.S> Thanks for your email to everyone > > > >From: Ray Barrett <raybarrett@...> > >rheumaticegroups > >Subject: rheumatic CSPI Wants Government To Limit Antibiotic Use > >Date: 28 Oct 00 16:49:17 PDT > > > >Dear Group: > >CSPI is promoting major government intervention to reduce the use of > >antibiotics at all levels. The enclosed URL > >contains their strategic plan: > >http://www.cspinet.org/reports/abiotic.htm > > > >REGARDS, > >ray > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > >. > > > >____________________________________________________________________ > >Get free email and a permanent address at http://www.netaddress.com/?N=1 > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > > > ________________________________________________________________________ > ________________________________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 On Sun, 29 Oct 2000, Jan Gunter wrote: > How would I find out more about the vitamin C therapy? Hi Jan, I just looked up what we have on the subject. The original study was done with rats and it was proposed that the same mechanism might work in people. Dr. Graham Chiu asked this group for a poll on who was experiencing pigmentation and who was taking vitamin C. Several people replied that vitamin C seemed to have made the pigmentation improve although they were still taking minocycline. As this is still experimental, no particular dose has been determined. However, Dr. McPherson Brown used to recommend at least 1000mg of vitamin C per day for his rheumatic patients anyway, so that might be a good dose to start with. We've had some posts here recently on the benefit of taking vitamin C to bowel tolerance and then backing off to a well-tolerated dose. Chris. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 ALA is Alpha Lipoic Acid, you get it at your local health food store. I feel that I and the others here actualy know WAY more than 99.9% of the doctors out there on this subject!!! In fact on Autism in general! The doctors just don't have time!!! Just a little background..... little sis and Bro in law are Doctor's both are afraid to help us try any of this stuff. They say they just don't know enough about it, and feel they are too new of Dr's to try anything that is not " approved " or mainstream. That said we were at their house this week, my sis was out of town taking her boards and my BIL (brother In law) Said " what are you doing to her???? How long has it been since we saw you??? I told him 3 weeks! He wanted to know if there was anything else besides the ALA that we were doing?? I said nope that's it! I guess he has been talking it up with little sis, she says he can't get over how much she has changed in the 3 weeks since we saw them last! We did a heavy metal blood test before starting all of this and while I now know that this is the wrong test to start out with especialy with a sceptical dr, it did give us the information that grace had no mercury floating in her blood to be moved to the brain. We also had been doing zinc supplments for about 6 weeks before starting. In the 5 rounds that we have completed we have seen the following: WONDERFUL eye contact minor interaction with other children Lots of hugs and kisses with her cousins chasing the kids at the playground played at the discovery zone type place swinging on the swings less " stimming " minor spontanious verbalizations will attempt any words requested trying new foods fighting her suppliments ;-) played on the computer actualy trying to manupulate the mouse Sat quietly and helped while getting her hair cut yesterday this was a silent, non verbal, apaxic child who has lately had to be told to be quiet in restraunts. Got loud yesterday trying to wake her cousin up, While Grinning! She knew what she was doing! I had just told Grandma in her hearing that you know Grace she's so quiet she won't wake her up! ;-) Can't think what else is happening right now but we are seeing MAJOR positives!!!!! Any more questions just ask! laurie Mom to Grace 3.11 > Date: 31 Mar 2001 05:01:08 -0000 > > Subject: [ ] Digest Number 1033 > > From: " Bill's TEAM " <teambill@...> > Subject: Re: Digest Number 1032 > > Laurie, > What is ALA and isn't it dangerous to do this without a doctor? > Truly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2001 Report Share Posted March 31, 2001 Thanks Laurie, I just am overwhelmed since joining this list. I don't know where to start with my son. Are you doing this yourself to save expense? I certainly agree with Andy that sometimes us ordinary non-doc types can know just as much as the MDs, at least on some things. Just having an autistic son taught me that ....along with a previous bad medical experience--- Truly Re: Digest Number 1032 > > > > Laurie, > > What is ALA and isn't it dangerous to do this without a doctor? > > Truly > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2001 Report Share Posted April 23, 2001 'oxyplus ' wrote: ==== - OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other alternative self-help subjects. - - THERE IS NO MEDICAL ADVICE HERE! - - This list is the 1st Amendment in action. The things you will find here are for information and research purposes only. We are people sharing information we believe in. If you act on ideas found here, you do so at your own risk. Self-help requires intelligence, common sense, and the ability to take responsibility ...' > Take a look to the attachment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2001 Report Share Posted June 30, 2001 Appreciate all the work has done for our group. I suggest give a link we can just click on to read the 22 entries. Thanks for all your work also. Betty Cleary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 I see at the bottom of this page is a company in Spokane, Washington, but I don't understand what their involvement is. Can someone bring me up to date? Thank you! http://members.tripod.com/tomcolosimo/id35.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 le, You may have tried this already, but it worked like a charm with my daughter, when I potty trained her. I would put her on the toilet (she didn't like the potty chair) or you can put her on the potty chair. Turn on the faucett & just let the water run for a few minutes. Make sure you think she may need to go to the bathroom, but she doesn't need to be busting to go, so to speak. Within no time Theresia caught on. Make sure you let her know when she does " go " while you're doing this, she get's LOT'S of praise that she done a good thing. As for taking off the clothes, my daughters 12 & still likes to do that. She's not near as bad now, but I couldn't get her to stop when she was younger. Maybe someone else can help with that. I hope this helps. Take Care, > This is kinda off the breast touching subject ,but can anyone give me idea's > too get my 4 year old daughter to stop taking off her clothes , and maybe > someone has the key to potty training she will take of her pull0up after she > uses it or sometimes will pee after she takes it off. I am not in an extreme > hurry ,but if I can find something that may work I would love too stop > changing pull-ups. Thanks for any info! le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 le, You may have tried this already, but it worked like a charm with my daughter, when I potty trained her. I would put her on the toilet (she didn't like the potty chair) or you can put her on the potty chair. Turn on the faucett & just let the water run for a few minutes. Make sure you think she may need to go to the bathroom, but she doesn't need to be busting to go, so to speak. Within no time Theresia caught on. Make sure you let her know when she does " go " while you're doing this, she get's LOT'S of praise that she done a good thing. As for taking off the clothes, my daughters 12 & still likes to do that. She's not near as bad now, but I couldn't get her to stop when she was younger. Maybe someone else can help with that. I hope this helps. Take Care, > This is kinda off the breast touching subject ,but can anyone give me idea's > too get my 4 year old daughter to stop taking off her clothes , and maybe > someone has the key to potty training she will take of her pull0up after she > uses it or sometimes will pee after she takes it off. I am not in an extreme > hurry ,but if I can find something that may work I would love too stop > changing pull-ups. Thanks for any info! le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 My daughter (turned 4 last week) was potty trained by her aide during our home program. It took about 2 weeks. This was done back in May and she has had maybe 2 accidents since. She still wears a pull up at night and is usually wet about half the time. They spent 2 hours a day 5 days a week doing her therapy in or next to the bathroom. The aide would flood her continually with drinks (her favorites coke and juice). When she saw Sydney was acting like she had to go, she would put her on the potty. If she didn't go right away, she would read her a short book while she sat there (usually about two minutes). When she did go, she would get a reward. After she started recognizing her urges and going by herself or with little prompting they moved to the hall outside the bathroom door. They gradually moved further away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 le, We are in the same boat as you. My daughter is the quickest stripper I have even seen. She even takes off overalls. They just don't make one piece outfits anymore !! My daughter loves to put her hands in private areas. I am constantly told her hands down. You can imagine what a mess we have on our hands if she has a dirty diaper. I am at my wits end. We will be attempting to potty train during winter break but I can imagine the outcome when her hands have free access. Re: Digest Number 1033 > This is kinda off the breast touching subject ,but can anyone give me idea's > too get my 4 year old daughter to stop taking off her clothes , and maybe > someone has the key to potty training she will take of her pull0up after she > uses it or sometimes will pee after she takes it off. I am not in an extreme > hurry ,but if I can find something that may work I would love too stop > changing pull-ups. Thanks for any info! le > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 I have heard of people who buying the 'sleeper' pajamas (the kind with the feet), cutting off the feet & having the child wear them backwards (so they can't access the zipper). Good idea at home/night - but can't wear that to school. Good luck Mona Re: Digest Number 1033 le, We are in the same boat as you. My daughter is the quickest stripper I have even seen. She even takes off overalls. They just don't make one piece outfits anymore !! My daughter loves to put her hands in private areas. I am constantly told her hands down. You can imagine what a mess we have on our hands if she has a dirty diaper. I am at my wits end. We will be attempting to potty train during winter break but I can imagine the outcome when her hands have free access. Re: Digest Number 1033 > This is kinda off the breast touching subject ,but can anyone give me idea's > too get my 4 year old daughter to stop taking off her clothes , and maybe > someone has the key to potty training she will take of her pull0up after she > uses it or sometimes will pee after she takes it off. I am not in an extreme > hurry ,but if I can find something that may work I would love too stop > changing pull-ups. Thanks for any info! le > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2002 Report Share Posted October 8, 2002 le my daughter stopped taking her clothes off when we bought or found her nice clothes she loved. Shes into dresses and ruffles. My son however is also a stripper and Ifound nothing that keeps his clothes on except ducktape To Potty train its sort of hard when there strippers. Otherwise a regular pair of underwear with plastic underwear over would work If there strippers well just watch her in the house and as soon as she starts to go somewhere take her to the bathroom. Now when shes outside not much you can do. We do have our son potty trained in the house but he still doesnt want to go to the bathroom he prefers coffee cans and such LOL. He goes where he pleases outside. Its hard when there strippers. charlene -- Re: Digest Number 1033 This is kinda off the breast touching subject ,but can anyone give me idea's too get my 4 year old daughter to stop taking off her clothes , and maybe someone has the key to potty training she will take of her pull0up after she uses it or sometimes will pee after she takes it off. I am not in an extreme hurry ,but if I can find something that may work I would love too stop changing pull-ups. Thanks for any info! le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 In a message dated 4/27/04 3:07:49 AM Mountain Daylight Time, SSRI medications writes: > Something about stuff you can get in the US (minerals etc), but not other > countries or something to that effect They didn't list all 12 suspects, but I've seen the list and most of them are strange herbs that can have deadly consequences. I think Kava was on the list, and a few chinese herbs. Not minerals, and vitamins. Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. An army of sheep led by a lion would defeat an army of lions led by a sheep. - Oriental proverb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 In a message dated 4/27/04 3:07:49 AM Mountain Daylight Time, SSRI medications writes: > why are they so damn hard to withdraw from > -what are the long term effects of such an intense interference > with brain function. > Everyone points their finger to the half-life of Paxil as the culprit for its tenacious withdrawal. I believe it has more to do with the substance from which it is derived -- phenylpiperidine -- a controlled substance in every country in the world. Do a quick google search and you will come up with the same info I did -- it's origins -- nazi germany -- its primary function, a key ingredient in all opioid medication. The long term effects of these drugs are usually categorized in the brain damage column. Memory loss, loss of executive functioning, sensititivity to light and sound, headaches, sleep disturbances -- all brain damage symptoms. Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. An army of sheep led by a lion would defeat an army of lions led by a sheep. - Oriental proverb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 In a message dated 4/27/04 3:07:49 AM Mountain Daylight Time, SSRI medications writes: > However, gene research is changing how we look at a lot of things. > Just like a gene has been found which is linked to PTSD I don't believe this for one second! They also said there was a gene for alcoholism, then disocvered they made a mistake but they never retracted the original genetic component statement so I heard all kinds of people saying " Oh, my alcoholism is genetic " when it was not true at all. I have PTSD, and I got it from taking Paxil, so I don't have any faith in these gene studies. Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. An army of sheep led by a lion would defeat an army of lions led by a sheep. - Oriental proverb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 glitterari@..., Would it be possible for you to switch to individual emails and set up filters in your AOL to put all msgs from SSRI into one folder. Then you could reply to just one email and the subject line would be meaningful. I just got 3 emails from you and they are all reply to digest 1033. I can't tell whther they are duplicates and I certainly can't tell the strue subject. This would greatly help those of us who process > 100 emails/day. you also don't give a name or location or have a signature block. This makes it hard to address you in terms of the country you are from. Just a thought to make live easier for the rest of us. I believe the digest mode is just for lurkers and we are glad that you participate often with your words of wisdom. Bi-polar in remission, PS If this upsets you, blame it on my mental label. glitterari@... wrote: In a message dated 4/27/04 3:07:49 AM Mountain Daylight Time, SSRI medications writes: > Something about stuff you can get in the US (minerals etc), but not other > countries or something to that effect They didn't list all 12 suspects, but I've seen the list and most of them are strange herbs that can have deadly consequences. I think Kava was on the list, and a few chinese herbs. Not minerals, and vitamins. Blind Reason a novel of espionage and pharmaceutical intrigue Think your antidepressant is safe? Think again. An army of sheep led by a lion would defeat an army of lions led by a sheep. - Oriental proverb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 See calender Re: Kirkland soup night Cancell til Feb.. I want to come meet some bandsters! Please tell me the Kirkland Soup night is resuming! N 229/206.5/140ish ________________________________________________________________________ ________________________________________________________________________ February, 2005 is the Seattle Bandster Splash! http://barbooch2.homestead.com/SeattleBandsterSplash.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 In response to the pterygium discussion. I agree with you, that educating our FW's is the number one way to prevent this. As it turns out, we just addressed pterygium in our most recent edition of the FW news. For those of you that don't know about the Farmworker News, it is a low literacy, bilingual, free publication for farmworkers produced by NCFH that covers different health issues. It is published every 2 months, and always covers pertinent health topics to the FW population. Our first issue for this year deals with eye diseases such as glaucoma, and pteryium. Please click on the link below to see this issue. For subscription information contact Ramona at: arredondo@... http://ncfh.org/fwnews/06_issue_01.pdf wrote: >There are 2 messages in this issue. > >Topics in this digest: > > 1. RE: Response on behalf of Rebeca Ramos > From: " Dawn M. Lane " <dmlane@...> > 2. unsuccesful attempt at contact through listserv: Att'n Catalina Goss > From: Tina Castañares <tina.castanares@...> > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Fri, 10 Feb 2006 23:19:24 -0800 > From: " Dawn M. Lane " <dmlane@...> >Subject: RE: Response on behalf of Rebeca Ramos > > > >I have been following the pterygium discussion with interest. It is my >understanding that pterygium is not infectious, but is caused by frequent >exposure of the eyes to UV rays (sunlight). I believe that the working >conditions endured by so many Hispanic farm workers, may be the biggest >contributing factor to increased rates of pterygium. Since Hispanic male >farm workers out number females it makes sense that they more often present >with the condition. High quality sunglasses, that block UV rays, is one >preventive measure for people who must work outside, along with a broad >brimmed hat or hats with a bill that provide shade for the face. I don't >know if there is an education program in place that speaks to the need for >eye protection from UV rays during all outside activities. It would be very >important to have one. Not only does exposure of the eyes to UV rays >increase risk for pterygium but it increases the risk for developing >cataracts in later years (not to mention skin cancer). Both of these >diseases may affect sight or cause blindness if left untreated. > > > >There are many questions about this that need to be addressed. Are rates of >pterygium on the increase in all farm workers and if so is there an >environmental change that is causing the increase (such as reduction in the >ozone layer)? Other questions might be are Hispanics at greater risk for >pterygium formation than other groups or do farm workers who must look up to >perform their jobs (stone fruit pickers) have higher rates of pterygium than >farm workers who must bend over to do their jobs (strawberry pickers)? The >last question might be a moot point as many farm workers go where the crops >are mature and probably perform many different tasks. > > > >I would be very interested in any research being done about this condition >in the context of Hispanic farm workers. > > > >Respectfully, > >Dawn M. Lane > >Department of Nursing > >Central Oregon Community College > >Bend, Oregon > > _____ > >From: >[mailto: ] On Behalf Of Rene Quintana >Sent: Friday, February 10, 2006 10:49 AM > >Subject: RE: [ ] Response on behalf of Rebeca Ramos > > > >, its good to hear from you and I agree information available does >state that it is not a contagion. But there is something happening with the >dynamic of this disease. We do have an epidemic on our hands. >Representatives in California are attempting to ignore this common disease >among Hispanic men. I > >am not sure if its fear or just plain stupidity. I have some preliminary >information that can help our research. I need your direct e-mail. You >also need to get a hold of Dr. Twelker, PHD MD who confirms my research. >, the disease is so common that is viewed as the norm among Hispanic >men. They are not > >concerning themselves with it. The disease is far more aggressive than what >is stated in medical documents, painful and I am seeing facial paralysis. >Whether or not this disease has genetically transformed into a contagion is >unknown and cannot be ruled out. However, for medical representatives to >ignore this epidemic > >is unacceptable, it is not going to go away but become worse. We have an >epidemic on our hands and it is plain as day. In my research 70% of Hispanic >men > >are developing some stage of this disease. > > > > > >Sincerely, > > > >Rene Quintana > >ALMA > >Del Norte > > > >-----Original Message----- >From: >[mailto: ]On Behalf Of Arcury - >Family Medicine >Sent: Friday, February 10, 2006 10:01 AM > >Subject: RE: [ ] Response on behalf of Rebeca Ramos > > > >Pterygium is not an infectious disease, so there cannot be an " outbreak. " >However, pterygium is a highly prevalent condition among farmworkers. This >past summer (2005) we examined the eyes (using telemedicine techniques) of >296 farmworkers in eastern North Carolina. Ptergyia were present in one or >both eyes of 69 individuals (23.3%). We are currently writeing the paper >describing these results, and hope to have it submitted for peer-review in >the next month. > > > > A. Arcury, PhD > >Professor and Research Director > >Department of Family and Community Medicine > >Wake Forest University School of Medicine > >Winston-Salem, NC 27157-1084 > > > >phone: 336-716-9438 > >fax: 336-716-3206 > >e-mail: tarcury@... > > > > > > _____ > >From: >[mailto: ] On Behalf Of Rene Quintana >Sent: Friday, February 10, 2006 11:41 AM > >Subject: RE: [ ] Response on behalf of Rebeca Ramos > > Ruby, > > > > There is a serious outbreak of the disease pterygium among >Hispanic men. It is a serious eye disease and I need to get > > the word out to collaborator organizations. Contact me at (707) >464-7441 ext 292. > > > > Sincerely, > > > > Rene Quintana > > ALMA > > Del Norte > > > > > >-----Original Message----- >From: >[mailto: ]On Behalf Of Ruby Marentes >Sent: Friday, February 10, 2006 8:12 AM > >Subject: [ ] Response on behalf of Rebeca Ramos > > > >-----Original Message----- >From: Rebeca L. Ramos [mailto:rebeca@...] >Sent: Friday, February 10, 2006 7:29 AM > >Cc: Colon-Cartagena, A. >Subject: Promotoras > > > > > >These articles are either available or will soon be available (two in the > >process of being published) > > > >Ramos RL, and Ferreira-Pinto JB, (2005) A Transcultural Approach to Peer > >Case Management: a case control study of cost effectiveness. Submitted for > >publication, being edited. > > > >Ramos RL, et al (2005) Promovision: Designing a Promotores Capacity-Building > >Program. Health Promotion Practice (scheduled for publication) Journal of > >the Society for Public Health Education > > > >Ramos R.L. Et al (2002) A Tested Model for Organizational and Community > >Capacity-Building in AIDS Prevention Programs AIDS Education and Prevention > >May 14(3) 196-205 > > > >The USMBHA has all the training manual that were used in the above mentioned > >tested model for capacity building, the target audience are Promotoras. In > >addition with CDC funding we are now expanding our capacity building model > >from an individual and organizational one to a more structural approach, > >working with groups of Promotoras. Please let me know how else I can be of > >service. > > > >Saludos, > > > >Rebeca > >______________________ > > > >Rebeca L. Ramos, MS, MPH > >Technical Director > >US Mexico Border Health Association > > > > > >E-mail: rebeca@... > > > > > > > > > > > > > >Ruby A. Marentes > >US-Mexico Border Health Association > >PROMOVISION (Focus Area 3) > >5400 Suncrest Dr. Ste. C-5 > >El Paso, TX 79912 > >Tel. (915) 833-6450 ext. 27 > >Fax (915) 833-7840 > > > > > > > > >To Post a message, send it to: Groups > >To Unsubscribe, send a blank message to: > -unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 , Pterygium is a serious problem and I encourage you to share this information with all collaborators. The message I'm getting from California is Hispanic Men don't count and they don't matter. Here we have an epidemic of a blinding disease and they are making no effort what so ever to get the word out. Its very disturbing. Rene Quintana Adelante Del Norte -----Original Message----- From: [mailto: ]On Behalf Of Saavedra-Embesi Sent: Monday, February 13, 2006 9:11 AM Subject: Re: [ ] Digest Number 1033 In response to the pterygium discussion. I agree with you, that educating our FW's is the number one way to prevent this. As it turns out, we just addressed pterygium in our most recent edition of the FW news. For those of you that don't know about the Farmworker News, it is a low literacy, bilingual, free publication for farmworkers produced by NCFH that covers different health issues. It is published every 2 months, and always covers pertinent health topics to the FW population. Our first issue for this year deals with eye diseases such as glaucoma, and pteryium. Please click on the link below to see this issue. For subscription information contact Ramona at: arredondo@... http://ncfh.org/fwnews/06_issue_01.pdf wrote: >There are 2 messages in this issue. > >Topics in this digest: > > 1. RE: Response on behalf of Rebeca Ramos > From: " Dawn M. Lane " <dmlane@...> > 2. unsuccesful attempt at contact through listserv: Att'n Catalina Goss > From: Tina Castañares <tina.castanares@...> > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Fri, 10 Feb 2006 23:19:24 -0800 > From: " Dawn M. Lane " <dmlane@...> >Subject: RE: Response on behalf of Rebeca Ramos > > > >I have been following the pterygium discussion with interest. It is my >understanding that pterygium is not infectious, but is caused by frequent >exposure of the eyes to UV rays (sunlight). I believe that the working >conditions endured by so many Hispanic farm workers, may be the biggest >contributing factor to increased rates of pterygium. Since Hispanic male >farm workers out number females it makes sense that they more often present >with the condition. High quality sunglasses, that block UV rays, is one >preventive measure for people who must work outside, along with a broad >brimmed hat or hats with a bill that provide shade for the face. I don't >know if there is an education program in place that speaks to the need for >eye protection from UV rays during all outside activities. It would be very >important to have one. Not only does exposure of the eyes to UV rays >increase risk for pterygium but it increases the risk for developing >cataracts in later years (not to mention skin cancer). Both of these >diseases may affect sight or cause blindness if left untreated. > > > >There are many questions about this that need to be addressed. Are rates of >pterygium on the increase in all farm workers and if so is there an >environmental change that is causing the increase (such as reduction in the >ozone layer)? Other questions might be are Hispanics at greater risk for >pterygium formation than other groups or do farm workers who must look up to >perform their jobs (stone fruit pickers) have higher rates of pterygium than >farm workers who must bend over to do their jobs (strawberry pickers)? The >last question might be a moot point as many farm workers go where the crops >are mature and probably perform many different tasks. > > > >I would be very interested in any research being done about this condition >in the context of Hispanic farm workers. > > > >Respectfully, > >Dawn M. Lane > >Department of Nursing > >Central Oregon Community College > >Bend, Oregon > > _____ > >From: >[mailto: ] On Behalf Of Rene Quintana >Sent: Friday, February 10, 2006 10:49 AM > >Subject: RE: [ ] Response on behalf of Rebeca Ramos > > > >, its good to hear from you and I agree information available does >state that it is not a contagion. But there is something happening with the >dynamic of this disease. We do have an epidemic on our hands. >Representatives in California are attempting to ignore this common disease >among Hispanic men. I > >am not sure if its fear or just plain stupidity. I have some preliminary >information that can help our research. I need your direct e-mail. You >also need to get a hold of Dr. Twelker, PHD MD who confirms my research. >, the disease is so common that is viewed as the norm among Hispanic >men. They are not > >concerning themselves with it. The disease is far more aggressive than what >is stated in medical documents, painful and I am seeing facial paralysis. >Whether or not this disease has genetically transformed into a contagion is >unknown and cannot be ruled out. However, for medical representatives to >ignore this epidemic > >is unacceptable, it is not going to go away but become worse. We have an >epidemic on our hands and it is plain as day. In my research 70% of Hispanic >men > >are developing some stage of this disease. > > > > > >Sincerely, > > > >Rene Quintana > >ALMA > >Del Norte > > > >-----Original Message----- >From: >[mailto: ]On Behalf Of Arcury - >Family Medicine >Sent: Friday, February 10, 2006 10:01 AM > >Subject: RE: [ ] Response on behalf of Rebeca Ramos > > > >Pterygium is not an infectious disease, so there cannot be an " outbreak. " >However, pterygium is a highly prevalent condition among farmworkers. This >past summer (2005) we examined the eyes (using telemedicine techniques) of >296 farmworkers in eastern North Carolina. Ptergyia were present in one or >both eyes of 69 individuals (23.3%). We are currently writeing the paper >describing these results, and hope to have it submitted for peer-review in >the next month. > > > > A. Arcury, PhD > >Professor and Research Director > >Department of Family and Community Medicine > >Wake Forest University School of Medicine > >Winston-Salem, NC 27157-1084 > > > >phone: 336-716-9438 > >fax: 336-716-3206 > >e-mail: tarcury@... > > > > > > _____ > >From: >[mailto: ] On Behalf Of Rene Quintana >Sent: Friday, February 10, 2006 11:41 AM > >Subject: RE: [ ] Response on behalf of Rebeca Ramos > > Ruby, > > > > There is a serious outbreak of the disease pterygium among >Hispanic men. It is a serious eye disease and I need to get > > the word out to collaborator organizations. Contact me at (707) >464-7441 ext 292. > > > > Sincerely, > > > > Rene Quintana > > ALMA > > Del Norte > > > > > >-----Original Message----- >From: >[mailto: ]On Behalf Of Ruby Marentes >Sent: Friday, February 10, 2006 8:12 AM > >Subject: [ ] Response on behalf of Rebeca Ramos > > > >-----Original Message----- >From: Rebeca L. Ramos [mailto:rebeca@...] >Sent: Friday, February 10, 2006 7:29 AM > >Cc: Colon-Cartagena, A. >Subject: Promotoras > > > > > >These articles are either available or will soon be available (two in the > >process of being published) > > > >Ramos RL, and Ferreira-Pinto JB, (2005) A Transcultural Approach to Peer > >Case Management: a case control study of cost effectiveness. Submitted for > >publication, being edited. > > > >Ramos RL, et al (2005) Promovision: Designing a Promotores Capacity-Building > >Program. Health Promotion Practice (scheduled for publication) Journal of > >the Society for Public Health Education > > > >Ramos R.L. Et al (2002) A Tested Model for Organizational and Community > >Capacity-Building in AIDS Prevention Programs AIDS Education and Prevention > >May 14(3) 196-205 > > > >The USMBHA has all the training manual that were used in the above mentioned > >tested model for capacity building, the target audience are Promotoras. In > >addition with CDC funding we are now expanding our capacity building model > >from an individual and organizational one to a more structural approach, > >working with groups of Promotoras. Please let me know how else I can be of > >service. > > > >Saludos, > > > >Rebeca > >______________________ > > > >Rebeca L. Ramos, MS, MPH > >Technical Director > >US Mexico Border Health Association > > > > > >E-mail: rebeca@... > > > > > > > > > > > > > >Ruby A. Marentes > >US-Mexico Border Health Association > >PROMOVISION (Focus Area 3) > >5400 Suncrest Dr. Ste. C-5 > >El Paso, TX 79912 > >Tel. (915) 833-6450 ext. 27 > >Fax (915) 833-7840 > > > > > > > > >To Post a message, send it to: Groups > >To Unsubscribe, send a blank message to: > -unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
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