Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 , Welcome to you and all the other newbies that have joined our " family " recently. My name is and I have a functional Complex I & II defect. Also effected in my family is my 15 year old daughter, sister Laurie (on list) most likely our two brothers and Laurie's two sons. Our mother that passed away last year was also dx'ed. Please feel free to ask questions even if you happen to not have a dx yet. You are all part of the family no matter what part of the journey you are currently on. Van Verst wrote: >, > >Are you seeing Cohen or Parikh? I took my kids to >Parikh after we waited over a year to see Cohen. >Parikh did a very poor exam and said that you have to >be DD or MR to have mito. I think he'd also diagnose >for known genetic mutations but that's about it. I'm a >nurse and asked another nurse whose kids saw Parikh >what she thought. She compared him to a resident who >didn't do his reading. He is not an attending but is a >fellow. > >By the way, I'm new to . My name is . My >DH and I have two children, 16 and 7, both with >issues. > >Both kids are about to get service dogs. will >get one for mobility and alerts and will get one >to alert to her alarms. > > > > > >Mom to the two best kids in the world! >http://www.caringbridge.org/visit/thomasandkatie > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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