Re: Olivia's Dental Surgery and other Great News!!

[Guest guest]

hey leah!!!

what great news!!! i am so glad that her dental surgery went well

and that you found a new ped that is interested in helping her as

well!!!! as far as the tape and what it did to her skin, i've had

that happen to me as well (after my first c-section when they took

the bandage off, and ouch!!!) put neosporin (sp) on it to heal it

heal and hopefully it wont scar (i dont me to scare yoiu with that)

and the next time (if she needs any surgery) tell them about her

tape reaction, then can use a different type on her instead. hope to

talk to you soon!!

jodie

(nicholas-6 nonrss, christopher-3 rss 23lbs 8.5oz 33 " periactin, ght

(on hold until july appt), ADHD (possible), johathon-11m nonrss)

[Guest guest]

Hi Leah,

Sounds like it was an overall positive experience and you found a

new Dr too! Congratulations.

On Olivia's skin tears - if she has to have tape on her skin again,

especially on her face to hold tubes in, ask the Dr or nurse to use

duoderm under the tape. It is a pectin based barrier that is very

gentle on skin and prevents the tape touching the skin. When a

breathing tube (endotracheal tube) is used, they have to use strong,

very adhesive tape to make sure it doesn't easily peel away from the

skin. It's a safety issue. I've used duoderm for years on preemies

who have very sensitive and friable skin. It's also good to put

under tape to hold a naso gastric tube in place. hope Olivia's skin

heals fast!

Best wishes,

(Mom to Ethan 5 and Jillian 2 (RSS))

>

> Olivia's procedure went great! The Dr's were very open to RSS

and

> only needed a bit of coaxing with admitting her the night before

for

> an IV. In order to admit her she needed a Ped. Dr to do it so

they

> found one that they really liked. One nurse came in and raved

about

> him (her son goes to this Dr.). One of the nurses said that he

had

> dealt with RSS before so I was excited to meet him. He inserted

her

> IV with lightening speed and Olivia was just starting to cry when

> she realized he was done, so it was not a bad experience for her!

> He has one RSS patient in northern Alberta and has done a consult

on

> a case in British Columbia. He's also the Osteogenesis Imperfecta

> (OI) specialist in western Canada and told us that there is now IV

> treatment for kids with OI. He currently has 40 OI patients right

> now. To top it all off he asked us if we would see him at his

> office!!! I asked if he was willing to take us on, RSS, OI and

all

> the issues of the two combined and he said he would LOVE to!!! He

> said he loveslearning and especially likes rare cases. Did we

luck

> out or what!!!!!!!! I was floored!!! So he pulled some strings

for

> us and we'll see him in his office on the 31st of May! We're

> excited to learn more about the PAM IV treatments that can make

> Olivia's bones stronger.

> Back to the surgery, although she didn't go under very well the

> Dentist got her teeth fixed and she didn't need as much work as we

> first thought. Only 2 crowns and 4 cavities filled. Olivia is

VERY

> proud of her " teeth painted silver " . Her recovery was uneventful

> and she ate a little bit 4 hours after so we were glad to be

> discharged. Although her lips are terribly swollen she's in

pretty

> good spirits. The worst part is from the tape they used on her

face

> to hold the tubes in place. When they took it off they tore 4

> patches of her cheeks off. The monitoring patches on her chest

also

> tore 3 circles of skin off. Theses will heal in a while and the

> don't seem to be too sore, the just look nasty!

> I've rambled on long enough, we're just so excited with finding

> this Dr!!!!!!

>

> Have a great day, (((hugs))) to all.

>

> Leah, mom to Ash 9 and Olivia 4.5, RSS, OI, 19 lbs(SHE'S GAINED A

> POUND) 33 " , lactulose, senokot, zantac, cyproheptadine (periactin)