been awhile, question on sudden hearing loss

[Guest guest]

I was suddenly deafened (with loud noises etc) in my right ear....went on

prednisone and carbegin therrapy (enriched oxygen) to no avail.....6 weeks later

I lost hearing in my left ear (other than honks and beeps etc head noise) My

nerologist/ent and neuologist/opthamoligst both cited studies where 20% of the

melas community suffered from hearing loss/deafness.

For 12/ 12 yrs I have worn a cochelar implant. Yours, Vivian

[Guest guest]

Hi guys, havent been keeping up with everyone to well, though doesnt

mean i havent been thinking about yall. I've been dealing with alot of

problems with my lungs and just havent been up to doing much online.

Plus I've had episodes of severe confusion with uncontrollable

movement and an SLE that seems to of affected me permanently. Anyways,

I have a question about hearing loss.....I've had mild hearing loss

mainly in my right ear for several years now but 5 days ago my right

ear just basically shut down, I barely can hear out of it. I also have

ringing and fullness in it. Went to the ENT today finally and the ear

itself looks fine but the tests the audiologist did shows that I do

have significant hearing loss in my right ear and some mild reduction

in my left too. The ENT is putting me on high dose steroids to see if

this might help, he thinks its autoimmune, I'm wondering if its mito

though, does hearing loss happen very sudden with mito often? just

wondering others experience. Thanks for any help or suggestions. Hope

this finds you all as well as possible.

Take care,

Adrienne (MELAS phenotype with complex 1,3 and 4 defects)

[Guest guest]

Adrienne

It is good to hear from you, but I am sorry you have been having such

a rough time of it.

laurie

> I was suddenly deafened (with loud noises etc) in my right ear....went on

> prednisone and carbegin therrapy (enriched oxygen) to no avail.....6 weeks

later

> I lost hearing in my left ear (other than honks and beeps etc head noise) My

> nerologist/ent and neuologist/opthamoligst both cited studies where 20% of the

> melas community suffered from hearing loss/deafness.

> For 12/ 12 yrs I have worn a cochelar implant. Yours, Vivian

>

>

>

[Guest guest]

Concerning confusion episodes, have they checked your ammonia

levels? Have you had antibody testing for an autoimmune condition?

I just had a bunch of tests at the hematologist's office, all normal

for now, thank goodness!

There is an audio evoked potential test (not sure if that is the

right name) that might give some info on where your hearing loss

stems from (has anyone had this done?).

Take care,

RH

> Hi guys, havent been keeping up with everyone to well, though

doesnt

> mean i havent been thinking about yall. I've been dealing with alot

of

> problems with my lungs and just havent been up to doing much

online.

> Plus I've had episodes of severe confusion with uncontrollable

> movement and an SLE that seems to of affected me permanently.

Anyways,

> I have a question about hearing loss.....I've had mild hearing loss

> mainly in my right ear for several years now but 5 days ago my

right

> ear just basically shut down, I barely can hear out of it. I also

have

> ringing and fullness in it. Went to the ENT today finally and the

ear

> itself looks fine but the tests the audiologist did shows that I do

> have significant hearing loss in my right ear and some mild

reduction

> in my left too. The ENT is putting me on high dose steroids to see

if

> this might help, he thinks its autoimmune, I'm wondering if its

mito

> though, does hearing loss happen very sudden with mito often? just

> wondering others experience. Thanks for any help or suggestions.

Hope

> this finds you all as well as possible.

> Take care,

> Adrienne (MELAS phenotype with complex 1,3 and 4 defects)