Guest guest Posted December 10, 2006 Report Share Posted December 10, 2006 Hello Everyone- I am really struggling with a decision regarding my severly global apraxic 6 year old son. We moved in May to a new town with an excellent educational reputation, unfortunately their special ed program is less then desirable from our experiences. I did not realize how bad my son was doing until I did a school visit this past week to help a new aide get acclimated to 's needs. Unfortunately the school has lied to use numerous times about how wonderful is doing and how they have him paired up with another boy (with sever Down Syndrome) all day because they motivate each other. We also fought for a one on one aide for and got it a month ago only to find he is still sharing it with this DS boy. In every PPT since the start of the year they all say what great progress is making, however when I say him in the classroom by heart broke. He is a zombie and spacing out to escape the stressful environment he is in. In addition, he was potty trained since last Feb, but from all the changes of staff and potty protocols he is not crying and refusing the use the bathroom at school. I just found out this week the school never tried my protocol, only theirs which had many steps where did everything on his own. Which is a great long term goal, but to much for a child with motor planning issues at a new school. So bacially from what we have seen, as well as 's private therapist who did a site visit at the school, he is tramatized. The school cannot handle his needs and won't admit it. I even offered to pay to have his private therapist come in and train everyone the way needs to be taught and they will not allow it. There are a lot of other bad things that happened, from being sent home with feces 4 times for the aide to make a point to the school, to the aide and ST saying they do not use his commuication device (which is outlined in his IEP with 3 pages of goals)because it detracts the other kids, to having my son eat a hot dog out of a bun and not eating the bun and pushing the hot dog through the bun to look normal (he usually does not eat the bun and I have them cut it for him, but a child asked if he was a baby, so they taught him this other way to look normal). My husband wants to pull our son out of school right now. I do not want the school to get away without having to pay for anything. We found a private therapist for our son who can develop a day program for that would be all one on one therapy and tutoring in a medical based facility. It would be a 3-5 month deal and then try mainstreaming him back in the district. I think he would make termendous progress as he has with her in the 3 months he has been working with her. But I guess I fear he will have an even harder time adjusting to going back to school, plus I feel guilty taking him away from the typical children he enjoys playing with. It is such a hard decision. My son use to love school and be so confident and social and he is just a different kid. Also has anyone sued a school district before for emotional distress, not following the IEP, risk of injury, or discrimanation? We will probably end up going that route, but then I feel I cannot stay in this town and I hate to move again, especially since change is so hard for . Michele Quote Link to comment Share on other sites More sharing options...
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