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Since my last email a couple of hours ago, Gavin clearly said, " Cheese " . He

was holding the cheese, too! It was appropriate and articulate! WOOHOO!

Mandy Knapp

Creative Memories Unit Leader

(847) 245-4133

(224) 577-8304

www.mycmsite.com/mandyknapp

Your Life | Your Story | Your Way

[ ] Vitamin E Update

> My Gavin has been on Vitamin E for one week and one day now. For the first

> time EVER Gavin was able to pedal his big wheel! I could not believe my

> eyes. He's three and a half and the OT worked with him all summer long on

> it and he was never able to grasp it. It is amazing! Also, today we went

> bowling for my middle son's birthday party and he was so good. He stayed

> right with us, " bowled " a couple of times and was not getting himself into

> trouble like he usually does. I'll let you know when I see more progress

> and what it is. I'm still waiting for that surge in speech since his words

> are " mama " , " hi " , and " yah " . I know, it's never enough ;)

>

>

> Mandy Knapp

> Creative Memories Unit Leader

> (847) 245-4133

> (224) 577-8304

> www.mycmsite.com/mandyknapp

>

> Your Life | Your Story | Your Way

>

>

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Are you giving omega 3 supplement with the vit E? Even though vit E

supplements will eventually increase omega 3 (by protecting it from

oxidation)...that will take time, and many of our kids are deficient

in the omegas. You may see more surging in speach if you are using

both vit E + EFA or EFA and EPA.

> My Gavin has been on Vitamin E for one week and one day now. For

the first time EVER Gavin was able to pedal his big wheel! I could

not believe my eyes. He's three and a half and the OT worked with

him all summer long on it and he was never able to grasp it. It is

amazing! Also, today we went bowling for my middle son's birthday

party and he was so good. He stayed right with us, " bowled " a couple

of times and was not getting himself into trouble like he usually

does. I'll let you know when I see more progress and what it is. I'm

still waiting for that surge in speech since his words

are " mama " , " hi " , and " yah " . I know, it's never enough ;)

>

>

> Mandy Knapp

> Creative Memories Unit Leader

> (847) 245-4133

> (224) 577-8304

> www.mycmsite.com/mandyknapp

>

> Your Life | Your Story | Your Way

>

>

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I didn't post our story until the OT started calling me to figure

out what had happened to ph since he was doing so well. It helps

to have others see what we so want to see - improvement! -

> My daughter Hannah (8 yrs)started EFA's about 3 weeks ago and

vitamin

> E 2 weeks ago. I took her to the doctor Friday because she was

> complaining about her ear hurting! Pointing and SAYING " My ear

hurts " ,

> I was so excited! She has had a few really bad ear infections,

but

> has never complained about her ears hurting, she'd just act like

she

> felt bad and run a fever. When we got to the Dr., it was fluid

built

> up, not an actual infection yet. Her Dr., said " that is probably

> uncomfortable " . Uncomfortable? My daughter complaining about

being

> uncomfortable? Today we went to her LD tutor, and she said Hannah

> was " on fire! " . She kept on task and didn't tire or whine, just

> worked hard! I hadn't told the tutor anything and she was out of

town

> last week, but she noticed a big difference in Hannah from 2 weeks

> ago. I've noticed such a difference as well (I homeschool), but

was

> afraid to think it was real (oh me of little faith!) Getting that

> reassurance from the tutor, really helped! She's also been

running

> around like she has endless energy. The hypotonia (all over) has

> alway made her tire so easily. Praise God and thank you !

>

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  • 2 months later...

Just wanted to post an interesting vitamin E update for Tanner. I

had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

then due to messages here decreased the gamma and increased the

alpha. I noticed a slight regression on Tanner's speech. He didn't

speak as quickly as he was but continued. Then I ran out of the

alpha gamma mix and just had him on the alpha. Tanner started to

stutter -and bad enough that everyone noticed it. I ran out to the

mall and bought two more bottles of the alpha gamma and gave him 3

capsules last night which he quickly swallowed all at once (he

hates " Mr. Bumpy " ) and then this morning went back to 3 of the alpha

gamma mix and only one of the 400IU alpha -and after school today

Tanner's speech is smooth again. Anyone else notice they need the

higher gamma?

BTW -this is the one I use

High Gamma Tocopherol Softgels

http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69

Speaking of vitamins -does anyone use the new Nordic

Naturals " Nordic Berries " ?

Also just took Tanner about a week ago for his blood testing as per

's advice -12 vials of blood! They were really good about

it -and so was Tanner. They used a butterfly needle or something

hooked up to a tube so that when they switched the vials Tanner

wouldn't feel it. So only one needle went in and out. All the

tests were ordered by his pediatrician -and without any issues. In

fact his pediatrician's office found it " very exciting " to be

involved in some way to something that could possibly be a cutting

edge discovery by an awesome medical researcher/Mom -Dr.

. Will let you guys know the results when I find out!

=====

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Good Evening ,

I have been giving my daughter the Nordic Naturals Nordic Berries for a

while, they seem to be fine. I don't like the sugaryness ( I know that is not a

word). If they were in a chewable hard tablet it would be better on their

teeth.

I can't wait to read about Tanner's results because I was just about to make

an appointment with Faith's Dev. Peds for her blood test. I guess I will order

some Vit. E gamma and start her on that.

Thanks again for all of your continued help.

Bonnye - Faith's mommy

kiddietalk <kiddietalk@...> wrote:

Just wanted to post an interesting vitamin E update for Tanner. I

had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

then due to messages here decreased the gamma and increased the

alpha. I noticed a slight regression on Tanner's speech. He didn't

speak as quickly as he was but continued. Then I ran out of the

alpha gamma mix and just had him on the alpha. Tanner started to

stutter -and bad enough that everyone noticed it. I ran out to the

mall and bought two more bottles of the alpha gamma and gave him 3

capsules last night which he quickly swallowed all at once (he

hates " Mr. Bumpy " ) and then this morning went back to 3 of the alpha

gamma mix and only one of the 400IU alpha -and after school today

Tanner's speech is smooth again. Anyone else notice they need the

higher gamma?

BTW -this is the one I use

High Gamma Tocopherol Softgels

http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69

Speaking of vitamins -does anyone use the new Nordic

Naturals " Nordic Berries " ?

Also just took Tanner about a week ago for his blood testing as per

's advice -12 vials of blood! They were really good about

it -and so was Tanner. They used a butterfly needle or something

hooked up to a tube so that when they switched the vials Tanner

wouldn't feel it. So only one needle went in and out. All the

tests were ordered by his pediatrician -and without any issues. In

fact his pediatrician's office found it " very exciting " to be

involved in some way to something that could possibly be a cutting

edge discovery by an awesome medical researcher/Mom -Dr.

. Will let you guys know the results when I find out!

=====

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Share on other sites

I have.it's weird you wrote this ..I thought we were doing great on the

E-400 alpha mixed 3 times a day but decided to add the gamma E 300 at the

middle of the day dosage and we see better ease of 3 and 4 word sentences

she (my daughter) just seems more animated and alert with this combination

??? I have thought about whether we need to add more gamma but was waiting

for others to notice improvements with added gamma and the amt they were

using?????? I guess I am using a different mix than you 3 E-400 ( NOW brand

mainly alpha with traces of the other Es) and 1 gamma E-300 (Jarrow

formulas) curious if others are on this ratio

Roxanne

_____

From:

[mailto: ] On Behalf Of kiddietalk

Sent: Wednesday, November 29, 2006 5:29 PM

Subject: [ ] Vitamin E update

Just wanted to post an interesting vitamin E update for Tanner. I

had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

then due to messages here decreased the gamma and increased the

alpha. I noticed a slight regression on Tanner's speech. He didn't

speak as quickly as he was but continued. Then I ran out of the

alpha gamma mix and just had him on the alpha. Tanner started to

stutter -and bad enough that everyone noticed it. I ran out to the

mall and bought two more bottles of the alpha gamma and gave him 3

capsules last night which he quickly swallowed all at once (he

hates " Mr. Bumpy " ) and then this morning went back to 3 of the alpha

gamma mix and only one of the 400IU alpha -and after school today

Tanner's speech is smooth again. Anyone else notice they need the

higher gamma?

BTW -this is the one I use

High Gamma Tocopherol Softgels

http://www.vitaminw

<http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69>

orld.com/pages/Categories.asp?xs= & CID=69

Speaking of vitamins -does anyone use the new Nordic

Naturals " Nordic Berries " ?

Also just took Tanner about a week ago for his blood testing as per

's advice -12 vials of blood! They were really good about

it -and so was Tanner. They used a butterfly needle or something

hooked up to a tube so that when they switched the vials Tanner

wouldn't feel it. So only one needle went in and out. All the

tests were ordered by his pediatrician -and without any issues. In

fact his pediatrician's office found it " very exciting " to be

involved in some way to something that could possibly be a cutting

edge discovery by an awesome medical researcher/Mom -Dr.

. Will let you guys know the results when I find out!

=====

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I think its interesting. There is also some alpha in the gamma 300

(100IU I think). Hard to say just " what " of the components are

helping.

Right now ph gets a pure alpha-d-tocophorol (more than I'll

admit here)...and an additional gamma 300. I tried to switch to the

soy free brand that my other son is on...just to simplify the

complicated combo of supplements we are on (ie they've been on zinc

and probiotics for years because of their gut issues) and its all

confusion for my babysitter.

When I switched ph to the Ron's ultra pure...he regressed

noticably within 48 hours. I went back over all the dosages, and

because the Ron's ultra pure is a combo of tocophorol components

including both alpha and gamma, I had basically decreased his alpha

component by 100 IU a day (that he had been getting in the Jarrow

gamma 300)...while increasing his gamma a bit. So I took that as a

sign that it was really the alpha...even at what seemed a small

amount compared to how much he gets now. But remember...the

additional 15 iu of vitamin E in each omega capsule made enough of a

difference that we figured out vit E was helping when we did the

liquid to capsule switch. I think some of these kids are just very

sensitive. So I went back to what was working for ph. It

really is trial and error. It is also quite possible that some

children will respond to the anti-inflammatory effects of the

gamma. Giving a second dose of gamma is probably fine to try even

if you are giving 1200 IU of the alpha tocophorol. You are still

below 1500 iu. But there is even less info on the effects of gamma

in children...so honestly I can't say its safe or not. -

> I have.it's weird you wrote this ..I thought we were doing great

on the

> E-400 alpha mixed 3 times a day but decided to add the gamma E 300

at the

> middle of the day dosage and we see better ease of 3 and 4 word

sentences

> she (my daughter) just seems more animated and alert with this

combination

> ??? I have thought about whether we need to add more gamma but was

waiting

> for others to notice improvements with added gamma and the amt

they were

> using?????? I guess I am using a different mix than you 3 E-400 (

NOW brand

> mainly alpha with traces of the other Es) and 1 gamma E-300 (Jarrow

> formulas) curious if others are on this ratio

>

> Roxanne

>

>

>

> _____

>

> From:

> [mailto: ] On Behalf Of

kiddietalk

> Sent: Wednesday, November 29, 2006 5:29 PM

>

> Subject: [ ] Vitamin E update

>

>

>

> Just wanted to post an interesting vitamin E update for Tanner. I

> had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

> then due to messages here decreased the gamma and increased the

> alpha. I noticed a slight regression on Tanner's speech. He didn't

> speak as quickly as he was but continued. Then I ran out of the

> alpha gamma mix and just had him on the alpha. Tanner started to

> stutter -and bad enough that everyone noticed it. I ran out to the

> mall and bought two more bottles of the alpha gamma and gave him 3

> capsules last night which he quickly swallowed all at once (he

> hates " Mr. Bumpy " ) and then this morning went back to 3 of the

alpha

> gamma mix and only one of the 400IU alpha -and after school today

> Tanner's speech is smooth again. Anyone else notice they need the

> higher gamma?

>

> BTW -this is the one I use

> High Gamma Tocopherol Softgels

> http://www.vitaminw

> <http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69>

> orld.com/pages/Categories.asp?xs= & CID=69

>

> Speaking of vitamins -does anyone use the new Nordic

> Naturals " Nordic Berries " ?

>

> Also just took Tanner about a week ago for his blood testing as

per

> 's advice -12 vials of blood! They were really good about

> it -and so was Tanner. They used a butterfly needle or something

> hooked up to a tube so that when they switched the vials Tanner

> wouldn't feel it. So only one needle went in and out. All the

> tests were ordered by his pediatrician -and without any issues. In

> fact his pediatrician's office found it " very exciting " to be

> involved in some way to something that could possibly be a cutting

> edge discovery by an awesome medical researcher/Mom -Dr.

> . Will let you guys know the results when I find out!

>

> =====

>

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Share on other sites

> Just wanted to post an interesting vitamin E update for

Tanner. I

> had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

> then due to messages here decreased the gamma and increased the

> alpha. I noticed a slight regression on Tanner's speech. He didn't

> speak as quickly as he was but continued. Then I ran out of the

> alpha gamma mix and just had him on the alpha. Tanner started to

> stutter -and bad enough that everyone noticed it. I ran out to the

> mall and bought two more bottles of the alpha gamma and gave him 3

> capsules last night which he quickly swallowed all at once (he

> hates " Mr. Bumpy " ) and then this morning went back to 3 of the

alpha

> gamma mix and only one of the 400IU alpha -and after school today

> Tanner's speech is smooth again. Anyone else notice they need the

> higher gamma?

>

> BTW -this is the one I use

> High Gamma Tocopherol Softgels

> http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69

>

> Speaking of vitamins -does anyone use the new Nordic

> Naturals " Nordic Berries " ?

>

> Also just took Tanner about a week ago for his blood testing as

per

> 's advice -12 vials of blood! They were really good about

> it -and so was Tanner. They used a butterfly needle or something

> hooked up to a tube so that when they switched the vials Tanner

> wouldn't feel it. So only one needle went in and out. All the

> tests were ordered by his pediatrician -and without any issues. In

> fact his pediatrician's office found it " very exciting " to be

> involved in some way to something that could possibly be a cutting

> edge discovery by an awesome medical researcher/Mom -Dr.

> . Will let you guys know the results when I find out!

>

> =====

>

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There is still some alpha tocophorol in the Jarrow gamma

preparation. So its impossible to say if it truly is addition of

gamma, or additional alpha (100 IU)...that is making the difference.

When we added an alpha/gamma combo in exchange for the separate

alpha and gamma preparations (to simplify things) we saw some

regression. The only difference was that by eliminating the

separate Jarrow Gamma 300 using the more complete vit E formula...we

decreased alpha by 100 IU a day. Seems trivial compared to the high

doses we are using...but it made a difference. We returned to the

previous dosing and regained losses. It is trial and error, so go

with what seems to be working. But also good if we can figure out

just what really is working. -

> I have.it's weird you wrote this ..I thought we were doing great

on the

> E-400 alpha mixed 3 times a day but decided to add the gamma E 300

at the

> middle of the day dosage and we see better ease of 3 and 4 word

sentences

> she (my daughter) just seems more animated and alert with this

combination

> ??? I have thought about whether we need to add more gamma but was

waiting

> for others to notice improvements with added gamma and the amt

they were

> using?????? I guess I am using a different mix than you 3 E-400 (

NOW brand

> mainly alpha with traces of the other Es) and 1 gamma E-300 (Jarrow

> formulas) curious if others are on this ratio

>

> Roxanne

>

>

>

> _____

>

> From:

> [mailto: ] On Behalf Of

kiddietalk

> Sent: Wednesday, November 29, 2006 5:29 PM

>

> Subject: [ ] Vitamin E update

>

>

>

> Just wanted to post an interesting vitamin E update for Tanner. I

> had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

> then due to messages here decreased the gamma and increased the

> alpha. I noticed a slight regression on Tanner's speech. He didn't

> speak as quickly as he was but continued. Then I ran out of the

> alpha gamma mix and just had him on the alpha. Tanner started to

> stutter -and bad enough that everyone noticed it. I ran out to the

> mall and bought two more bottles of the alpha gamma and gave him 3

> capsules last night which he quickly swallowed all at once (he

> hates " Mr. Bumpy " ) and then this morning went back to 3 of the

alpha

> gamma mix and only one of the 400IU alpha -and after school today

> Tanner's speech is smooth again. Anyone else notice they need the

> higher gamma?

>

> BTW -this is the one I use

> High Gamma Tocopherol Softgels

> http://www.vitaminw

> <http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69>

> orld.com/pages/Categories.asp?xs= & CID=69

>

> Speaking of vitamins -does anyone use the new Nordic

> Naturals " Nordic Berries " ?

>

> Also just took Tanner about a week ago for his blood testing as

per

> 's advice -12 vials of blood! They were really good about

> it -and so was Tanner. They used a butterfly needle or something

> hooked up to a tube so that when they switched the vials Tanner

> wouldn't feel it. So only one needle went in and out. All the

> tests were ordered by his pediatrician -and without any issues. In

> fact his pediatrician's office found it " very exciting " to be

> involved in some way to something that could possibly be a cutting

> edge discovery by an awesome medical researcher/Mom -Dr.

> . Will let you guys know the results when I find out!

>

> =====

>

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I've been out for a week on an much needed vacation and it is

interesting that this gamma topic came up because I was going to post

something I saw 2 weeks ago with the addition of gamma.

I increased his dosage from 200IU per day to 400IU per day. Let me

note that I saw regression (sensory issues) daily giving him just

200IU in the morning. Everyday - 9 hours after I gave it to him. It

was like clock-work.

I was using the Vitamin World High Gamma Tocopherol with 200IU alpha

and 200 mg gamma. I was giving him two of those per day with

wonderful results (no daily regression) but decided to try giving him

one of those in am then another dose of just straight alpha in the pm

(to avoid giving him too much gamma). The first day I tried it we

had regression - it was like I had not given him the 2nd dose. So I

went back to using the High Gamma mix for a couple of days. Tried it

again - had regression again. So after that 2nd try I have been back

to giving him High Gamma twice per day and it is working beautifully

with no regression. For him, it appears he needs the gamma.

>

>

> There is still some alpha tocophorol in the Jarrow gamma

> preparation. So its impossible to say if it truly is addition of

> gamma, or additional alpha (100 IU)...that is making the

difference.

> When we added an alpha/gamma combo in exchange for the separate

> alpha and gamma preparations (to simplify things) we saw some

> regression. The only difference was that by eliminating the

> separate Jarrow Gamma 300 using the more complete vit E

formula...we

> decreased alpha by 100 IU a day. Seems trivial compared to the high

> doses we are using...but it made a difference. We returned to the

> previous dosing and regained losses. It is trial and error, so go

> with what seems to be working. But also good if we can figure out

> just what really is working. -

>

> > I have.it's weird you wrote this ..I thought we were doing great

> on the

> > E-400 alpha mixed 3 times a day but decided to add the gamma E

300

> at the

> > middle of the day dosage and we see better ease of 3 and 4 word

> sentences

> > she (my daughter) just seems more animated and alert with this

> combination

> > ??? I have thought about whether we need to add more gamma but

was

> waiting

> > for others to notice improvements with added gamma and the amt

> they were

> > using?????? I guess I am using a different mix than you 3 E-400 (

> NOW brand

> > mainly alpha with traces of the other Es) and 1 gamma E-300

(Jarrow

> > formulas) curious if others are on this ratio

> >

> > Roxanne

> >

> >

> >

> > _____

> >

> > From:

> > [mailto: ] On Behalf Of

> kiddietalk

> > Sent: Wednesday, November 29, 2006 5:29 PM

> >

> > Subject: [ ] Vitamin E update

> >

> >

> >

> > Just wanted to post an interesting vitamin E update for Tanner. I

> > had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

> > then due to messages here decreased the gamma and increased the

> > alpha. I noticed a slight regression on Tanner's speech. He

didn't

> > speak as quickly as he was but continued. Then I ran out of the

> > alpha gamma mix and just had him on the alpha. Tanner started to

> > stutter -and bad enough that everyone noticed it. I ran out to

the

> > mall and bought two more bottles of the alpha gamma and gave him

3

> > capsules last night which he quickly swallowed all at once (he

> > hates " Mr. Bumpy " ) and then this morning went back to 3 of the

> alpha

> > gamma mix and only one of the 400IU alpha -and after school today

> > Tanner's speech is smooth again. Anyone else notice they need the

> > higher gamma?

> >

> > BTW -this is the one I use

> > High Gamma Tocopherol Softgels

> > http://www.vitaminw

> > <http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69>

> > orld.com/pages/Categories.asp?xs= & CID=69

> >

> > Speaking of vitamins -does anyone use the new Nordic

> > Naturals " Nordic Berries " ?

> >

> > Also just took Tanner about a week ago for his blood testing as

> per

> > 's advice -12 vials of blood! They were really good about

> > it -and so was Tanner. They used a butterfly needle or something

> > hooked up to a tube so that when they switched the vials Tanner

> > wouldn't feel it. So only one needle went in and out. All the

> > tests were ordered by his pediatrician -and without any issues.

In

> > fact his pediatrician's office found it " very exciting " to be

> > involved in some way to something that could possibly be a

cutting

> > edge discovery by an awesome medical researcher/Mom -Dr.

> > . Will let you guys know the results when I find out!

> >

> > =====

> >

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Anyone else notice they need the

> higher gamma?

YES! I have tried adding on Vitamin E here as well. We have only

used up to 400 IU, but I have noticed more fussiness, more moodiness

and of course not as many speech sounds/attempts on the regular E.

When I recently switched back to High Gamma, I am seeing wonderful

improvements after just 4 days,including the ability to mimic hand

movements and gestures/signs, more easily without stressing. He is

also attempting speech and getting cues by looking at our mouths.

Participation in his Kindermusik class has been awesome for the past

two classes and things are looking way up. Only new things are the

High Gamma and the addition of 1 Evening Primrose Oil to the ProEfa

and ProEPA mix.

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Hi everyone,

I am an oldtimer to childrensapraxia group but have left for various

reasons, but have since returned because I am back to giving my

daughter minimal supplementation, no hard core medicines like the

DMSA that I tried when I left the first time. That approach was a

disaster for my dd. Anyway, I wanted to ask about the combination

of Omega 3's and vitamin E. My dd is currently taking Nordic

Naturals Omega 3 and extra DHA, I am very interested in possible

adding vitamin E. Can someone tell me or give me a good, in lamens

terms, link to the benefits of vitamin E with children with

apraxia. Thanks for all of your support.

Regards,

Traci

>

> Just wanted to post an interesting vitamin E update for Tanner. I

> had Tanner on the alpha gamma mix 400 IUs from Vitamin World and

> then due to messages here decreased the gamma and increased the

> alpha. I noticed a slight regression on Tanner's speech. He

didn't

> speak as quickly as he was but continued. Then I ran out of the

> alpha gamma mix and just had him on the alpha. Tanner started to

> stutter -and bad enough that everyone noticed it. I ran out to

the

> mall and bought two more bottles of the alpha gamma and gave him 3

> capsules last night which he quickly swallowed all at once (he

> hates " Mr. Bumpy " ) and then this morning went back to 3 of the

alpha

> gamma mix and only one of the 400IU alpha -and after school today

> Tanner's speech is smooth again. Anyone else notice they need the

> higher gamma?

>

> BTW -this is the one I use

> High Gamma Tocopherol Softgels

> http://www.vitaminworld.com/pages/Categories.asp?xs= & CID=69

>

> Speaking of vitamins -does anyone use the new Nordic

> Naturals " Nordic Berries " ?

>

>

> Also just took Tanner about a week ago for his blood testing as

per

> 's advice -12 vials of blood! They were really good about

> it -and so was Tanner. They used a butterfly needle or something

> hooked up to a tube so that when they switched the vials Tanner

> wouldn't feel it. So only one needle went in and out. All the

> tests were ordered by his pediatrician -and without any issues.

In

> fact his pediatrician's office found it " very exciting " to be

> involved in some way to something that could possibly be a cutting

> edge discovery by an awesome medical researcher/Mom -Dr.

> . Will let you guys know the results when I find out!

>

> =====

>

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