Re: RE: myoclonus links--one more

[Guest guest]

http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm

Steve, This one describes myoclonus as similar to a hiccup. That's the best

description I have seen, especially the jerks that affect the trunk of my

body---those are similar to a very violent hiccup. I can usually feel

exactly where they are centered, the epicenter, so to speak. Sometimes both

shoulders will jerk continuously for a few minutes. Sometimes both arms come

up and jerk inward simultaneously. The whole body jerks are sort of like a

whole body hiccup, and for me they usually occur only when I am lying down.

The fasciculations I would describe more as fine muscle movements, much

smaller. I should add that for me TPN or tube feeding reduces myoclonus by

90% or more. We discovered that accidentally when I was first on TPN. We

have also discovered that a number of drugs lower the threshold for

myoclonus. Zofran is a big offender for me......it always makes my shoulders

jerk for periods of time, up to 30 minutes. My fasciculations are never

triggered by drugs, but do worsen a lot with crashes.

Barbara

[Guest guest]

Barbara

A violent hic-up is a great description. I get them in the area of my

diaphram and it is very much like a hic-up, but very strong. I'm glad

they don't continue as often as hic-ups.

laurie

> http://www.ninds.nih.gov/disorders/myoclonus/detail_myoclonus.htm

>

> Steve, This one describes myoclonus as similar to a hiccup. That's the best

> description I have seen, especially the jerks that affect the trunk of my

> body---those are similar to a very violent hiccup. I can usually feel

> exactly where they are centered, the epicenter, so to speak. Sometimes both

> shoulders will jerk continuously for a few minutes. Sometimes both arms come

> up and jerk inward simultaneously. The whole body jerks are sort of like a

> whole body hiccup, and for me they usually occur only when I am lying down.

> The fasciculations I would describe more as fine muscle movements, much

> smaller. I should add that for me TPN or tube feeding reduces myoclonus by

> 90% or more. We discovered that accidentally when I was first on TPN. We

> have also discovered that a number of drugs lower the threshold for

> myoclonus. Zofran is a big offender for me......it always makes my shoulders

> jerk for periods of time, up to 30 minutes. My fasciculations are never

> triggered by drugs, but do worsen a lot with crashes.

>

> Barbara

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