Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Hi, guys! I have posted on here before, but not for awhile. I am related to and am Conny's daughter. I am an achondoplastic or achondorplasia dwarf. Whichever you prefer. Dwarfism is considered anyone under 4'8 " where that is not considered norm for the family. Obviously there are some families as well as cultures in which that standard is not appropriate. However, in the matter of RSS being considered a form of dwarfism it is. If you go to www.lpaonline.org you will find a definition of RSS as well as many other forms of dwarfism. There are over 150,000 different forms as well as some people actually being there own unique type that has never shown up before. I know someone personally who is in that category. He doesn't fit into any other form of dwarfism, but he is obviously a dwarf. Achon is predominant is just predominant. Achon can occur in families of achon, but often occurs as a mutation among a family where dwarfism is not hereditary. That happens in about 1 in 20,000 births. And those achons will now pass it on to their children. So more common than some think. That is a statistic for everyone. LPA might be an organization to consider joining if you would like your children to know adults of short stature who are successful and happy. Most chapters throughout the US have monthly meetings and are a great deal of fun. However, I have known people on this listserve who have said they didn't feel welcome due to the type of dwarfism their child had and others who have. I think it depends on how you look at it. At first they may ask you a lot of questions on RSS or not ask at all because that is not the type of dwarfism generally represented at the meetings. And also, please remember, it has happened in the past where people have " crashed " our meetings to meet a dwarf or what have you. But I think if you are friendly, open and explain all you know you will most likely find many friends. Especially among the parents of dwarves because they are often going through the " culture shock " that you are. I grew up being lucky enough to know lp's and during those trying times of accepting and acknowledging my own dwarfism (which everyone goes through at different periods in their life) LPA was a help and knowing others my age was a huge help. Anyway, sorry for going on so long. Just my two cents. Hope all of you have a wonderful day and a fantastic holiday season!!!!! Quote Link to comment Share on other sites More sharing options...
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