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Hi Alison...hope you don't mind my butting in! Jakes diet sounds fine to me. I'm

not a doc but I reckon you can whip that tube out asap! you'll probably find he

eats even better! Our daughter Imogen who is now 6 had the tube from 16 months-

3 years...and that was because she ate NOTHING.She started eating in her third

year...our consultant asked us to leave the tube in (but not use it) for 3

months to moniter her weight incase she lost...but she didn't....so we got rid

of it. And yes, she's a picky eater...but a lot of ordinary kids are too...she

likes to eat mini pizzas, cheese, weetabix, fishfingers,crisps,spaghetti

bolognaise,tangerines,bananas, and she would live entirely off ketchup if I

would let her!

We absolutley hating the 'tie' literally of the tube...tho I can understand how

it can be a comfort......but listen to your Dr H!!!

Eileen

alisontonyhoward alisonhoward@...> wrote:

,

So good to hear from you. Jake seems to have a very similar diet to

Jordan. He eats: cheese, crackers, eggplant, meatballs, cereal,

cream cheese, butter, pancakes, chicken nuggets, fries, stouffer's

macaroni and cheese, spaghetti, english muffins, bagels, turkey,

stuffing, mashed potatoes, rice, fish sticks, crab cakes. His

teacher has been able to get him to eat corn, peas, carrots, green

beans (but only one or two of each at a sitting). He loves gravy,

dipping sauces and ketchup......so often we try to disguise food that

way. I know I am forgetting a few items, but that is the bulk of

it. Not the healthiest diet.......but that is when I am thankful

that he has a feeding tube and I can pump in a nutrious liquid diet

at night!!!!! (Actually Dr. H mentioned last summer, that if he

kept up his weight he might be able to get it in the near future

soon......I looked at her like she was crazy and she said, " OK Mom,

we will leave it in until you are ready for it to come out! " It was

funny! I think of it as his lifeline, and the thought of it coming

out scares me!

I can't wait to hear how Jordan does on gh. I am sure you are

looking forward to your next appointmnent with Dr. H.

Alison

> Hi Alison, just out of curiosity what types of foods is Jake

eating? Jordan

> likes to eat American cheese slices, chicken nuggets, rice, fish

sticks (the

> inner portion only), thin slice turkey, French fries, squash (the

jar of baby

> food), noodles ( lo mein, sphagetti - no sauce though). As you can

see his

> diet is lacking fruits and veggies. Hope all is well. Merry

Christmas and Happy

> New Year. Jordan is doing OK. He started GH Nov 20th. We still

have to

> hold him down to give the injection but he's fine afterwards. Take

care

> Lacey

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Hi all,

To stick my 2 cents in... also loves gravy and ketchup. The

problem is, if I put ketchup on his plate he will dip his french

fries in it and then lick off the ketchup without ever eating the

food!!

Actually, he has hardly eaten in about 3 days now due to being sick.

Thank god for that pump!

Judith, Steve, (RSS) and (non RSS) 3 yr 10 mo twins

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