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Re: Growing up with RSS

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- Hi kate I just wanted to comment on this subject I don't have RSS

but my son does ,but we didn't know it till he was 3 which was a

little more than 1 year and a 1/2 ago, anyway .. I was born very tiny

also 4 lbs 14 ozs. and I always remember being tiny so petite and I

remember my mom always telling me to get her stuff and help and I

would climb up on the countertops and help her reach stuff for she is

only 4ft 11 at age 60 I remember in school I had the top locker and

could barley reach it and a really tall guy had the bottom one and

boy what I wanted to do to trade with him but he was to afraid to ask

and I did so we ended up trading and it sure did help out alot!! Well

all I am saying is I am glad I have this experience of being short to

help me with but I still get sad because I know how mean

people and kids are ,but at least I know how to help him deal with

it!! I think we need some shorter guys out here!!! Like you said

about the stools my does the same thing he will drag the

stool around for everything and to reach light switches he came up

with his own neat idea he uses my wooden back scratcher!!!I think it

is so neat watching him learn how to invent new ways to help his

shortness instead of doing everything for him he figures things out

for himself and I feel like this gives him independence!!! I just

wanted to comment on that I liked what you wrote !! I used to could

wear the kids clothes HA HA Until I had kids that is.... not

happening now!! NO WAY!!! HE HE I wish I could fit back in those 12

and 14 and size 1 oh what I would do!! Hugs to Ya

s

mom

-- In RSS-Support , " greenseashells1975 "

wrote:

> Hi, I just wanted to say that having RSS has not affected me in any

> way. I was a full term baby weighting 4 lbs. While I'm not exactly

a

> genius, I have had no learning problems at all. In fact the only

> problem I've ever had with RSS is not being able to reach things.

> Kids made fun of me when I was little. But during the teenage

years,

> it seems the boys didn't want the big hulking girls. They wanted a

> petite little girl. See sometimes being short has its advantages.

My

> parents never treated me any different because of my height. In

fact

> my mother would buy me stools and ladders so I could reach things

for

> myself. I look upon being short as something special. Hey people

> always seem to remember me. The only problem I have being short now

> is that strangers are always telling me how short I am (as if I

> didn't know that). But it's no different than the tall kid who

always

> is asked if they play basketball. I still wear kids clothes and

> believe me it's alot cheaper than what everyone is paying for adult

> clothes. Just wanted to say my opinion. Thanks, Kate

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Thanks Kate for that lovely positive message! I'm guessing from your email addy

you are 28?? and how tall are you? Did you have gh treatment???

Eileen (mum of Imogen RSS 6.5 years 36 " 16lbs non RSS kids lucy 13 twins Owen

and Natasha 9)

greenseashells1975 greenseashells1975@...> wrote:

Hi, I just wanted to say that having RSS has not affected me in any

way. I was a full term baby weighting 4 lbs. While I'm not exactly a

genius, I have had no learning problems at all. In fact the only

problem I've ever had with RSS is not being able to reach things.

Kids made fun of me when I was little. But during the teenage years,

it seems the boys didn't want the big hulking girls. They wanted a

petite little girl. See sometimes being short has its advantages. My

parents never treated me any different because of my height. In fact

my mother would buy me stools and ladders so I could reach things for

myself. I look upon being short as something special. Hey people

always seem to remember me. The only problem I have being short now

is that strangers are always telling me how short I am (as if I

didn't know that). But it's no different than the tall kid who always

is asked if they play basketball. I still wear kids clothes and

believe me it's alot cheaper than what everyone is paying for adult

clothes. Just wanted to say my opinion. Thanks, Kate

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Hi Kate,

My oldest child, , is non-RSS, but only stands 4' 10 " tall, and she

would say she's had the same experiences with being short, that you've had.

It's really evident when she and her cousin get together. They are only 7

weeks apart in age, but stands 6' 4 " ! LOL She was bigger at birth,

but it didn't take him long to out do her! LOL

People are always mentioning just how " short " she is, like she doesn't know

it! LOL We always told her that her height makes that " ocean of guys " all

that much larger! LOL Kids made fun of her height, or lack of it, but then

again, my 17 yr old gets made fun of for being heavy, and my 14 yr old gets

made fun of for being skinny! That's just being a teenager!

Thanks for your reassuring email. All my research shows that if you handle

the complications that go with RSS, like the GI problems, hypo-g, feeding

problems, etc... your kids can grow up to be absolutely " normal " except for

height, and GHT can help with that. As parents/g-parents, we just have to

stay on top of the situation.

Thanks again!

Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac,

Singulair, GT)

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Hi Kate!

thanks for letting us know how it was for you growing up! did you

take any ght and how tall are you. my son is 3 and he is very

outgoing and we hope that his personality will help him as he gets

older and gets teased. i am glad that you are doing well, please

guide us in any way that you can when it comes to questions that you

may be able to answere. have a happy and healthy new year!

jodie

(nicholas-5 nonrss, christopher-3 rss, jihnathon-6 m nonrss)

> Hi, I just wanted to say that having RSS has not affected me in

any

> way. I was a full term baby weighting 4 lbs. While I'm not exactly

a

> genius, I have had no learning problems at all. In fact the only

> problem I've ever had with RSS is not being able to reach things.

> Kids made fun of me when I was little. But during the teenage

years,

> it seems the boys didn't want the big hulking girls. They wanted a

> petite little girl. See sometimes being short has its advantages.

My

> parents never treated me any different because of my height. In

fact

> my mother would buy me stools and ladders so I could reach things

for

> myself. I look upon being short as something special. Hey people

> always seem to remember me. The only problem I have being short

now

> is that strangers are always telling me how short I am (as if I

> didn't know that). But it's no different than the tall kid who

always

> is asked if they play basketball. I still wear kids clothes and

> believe me it's alot cheaper than what everyone is paying for

adult

> clothes. Just wanted to say my opinion. Thanks, Kate

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