Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi Eileen, I just wanted to say that all of the things you've listed as side effects of GHT, I've found to be side effects of SGA, and because all RSS kids are SGA, our kids at risk for these various problems anyway. Everyone that I've talked to, that has tried GHT, hasn't had any problems with side effects. They've only found GHT to be of benefit healthwise. They've noticed increased appetite, increased muscle tone, less problems with hypo-g, and better health in general. I hope this helps with your decision. Secondly, one of the things that came up at the convention this year was that adult women needs to reach a certain " size " to be able to sustain a pregnancy. I wasn't able to attend this particular seminar, but I know that many did, so maybe someone else can elaborate on this subject again? From what I understood, if a women is too short, there is not enough room for the fetus to grow. I know that the OB my daughter had when she was pregnant with my g-daughter was concerned, and monitored her very carefully because she is only 4'10 " tall. Happy Holidays Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Thanks Pat......I'm coming around to the idea of gh treatment for Imogen again thanks to talking to you and other people on the site. Imogen certainly is going to be very small if she isn't treated. I just really really hated injecting her.....but I suppose it's a neccersary evil. Sorry Pat...I'm a bit thick...what's SGA? There are a few abbrevations that people use that I don't recognise (spelling sorry..) Eileen pcpets pcpets@...> wrote: Hi Eileen, I just wanted to say that all of the things you've listed as side effects of GHT, I've found to be side effects of SGA, and because all RSS kids are SGA, our kids at risk for these various problems anyway. Everyone that I've talked to, that has tried GHT, hasn't had any problems with side effects. They've only found GHT to be of benefit healthwise. They've noticed increased appetite, increased muscle tone, less problems with hypo-g, and better health in general. I hope this helps with your decision. Secondly, one of the things that came up at the convention this year was that adult women needs to reach a certain " size " to be able to sustain a pregnancy. I wasn't able to attend this particular seminar, but I know that many did, so maybe someone else can elaborate on this subject again? From what I understood, if a women is too short, there is not enough room for the fetus to grow. I know that the OB my daughter had when she was pregnant with my g-daughter was concerned, and monitored her very carefully because she is only 4'10 " tall. Happy Holidays Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi Eileen, SGA stands for Small for Gestational Age. And about the shots, isn't there a new way of injecting the kids without needles? I thought I read something about that. Anyone have any info on that? I kind of look at all of this from a different angle. If was diabetic, and needed insulin, would I bulk at giving him daily shots? Of course not. I would do whatever was necessary to insure his health. And GHT is the same way. suffers from very low muscle tone, and severe hypo-g. He can drop 30 BSLs in 30 minutes off feeds. GHT will help all of this, and improve his immune system to boot. I know a lot of people look at girls and say that it's ok if they're small. (ask my 23 yr old daughter about that one. She hates the " cute " comments, having to ask for help reaching things, having nicknames like squirt, smurf, or munchkin, etc...) And more parents consider GHT for boys because they really " need " to be taller. I don't see it that way. If doing GHT would give my daughter enough added inches to possibly allow her to carry a child to term, then it would be worth it. This is all a VERY personal decision, but I think it needs to be an informed one as well. As long as you can say " I did what I thought was best " in the end, then you've made the right decision for you, and your family. Take care, and Happy Holidays! Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac, Singulair, GT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Ahhh...in England it's IUGR(intra-uterine growth retardation) or just simply Small for Dates. I can see your point of view but Imogen at the moment has no health problems to be sorted She is just a miniture 6 year old girl. I hadn't thought all that much about her having babies in the future. I did think that she would probably have to have an early c.section which she will probably have to have whether she has gh treatment or not because gh treatment will not make her 'normal' There is a young lady on the site called Teri who is now 28 and she had gh treatment which she thinks added 5 inches to her height which is pretty impressive . Imogen is severe RSS so I think without help she probably will only just about clear 4 feet...If only those extra 5 inches could be guareenteed I'd be so much happier about resuming the treatment! The future implications of this relatively new treatment still worries me tho' I'm a mum....I can't help it!!! We will definately be talking to our endo again in the new year I think. Teri was only on the treatment for about 3 years which is ok. My endo said Immi would have to have treatment til she was 15!!! We'll see....... thanks for your imput....much appreciated Eileen x pcpets pcpets@...> wrote: Hi Eileen, SGA stands for Small for Gestational Age. And about the shots, isn't there a new way of injecting the kids without needles? I thought I read something about that. Anyone have any info on that? I kind of look at all of this from a different angle. If was diabetic, and needed insulin, would I bulk at giving him daily shots? Of course not. I would do whatever was necessary to insure his health. And GHT is the same way. suffers from very low muscle tone, and severe hypo-g. He can drop 30 BSLs in 30 minutes off feeds. GHT will help all of this, and improve his immune system to boot. I know a lot of people look at girls and say that it's ok if they're small. (ask my 23 yr old daughter about that one. She hates the " cute " comments, having to ask for help reaching things, having nicknames like squirt, smurf, or munchkin, etc...) And more parents consider GHT for boys because they really " need " to be taller. I don't see it that way. If doing GHT would give my daughter enough added inches to possibly allow her to carry a child to term, then it would be worth it. This is all a VERY personal decision, but I think it needs to be an informed one as well. As long as you can say " I did what I thought was best " in the end, then you've made the right decision for you, and your family. Take care, and Happy Holidays! Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac, Singulair, GT) --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi Eileen, has had all those labels applied to him. IUGR, SGA, etc... The only one that really matters to us right now is RSS. Dr H has called " one of my most complicated and fragile RSS children " , and his health problems have been many. He's done remarkably well this last year, and that gives a person a lot of hope. Maybe we're passed the worst of his problems. I think any sane person would worry over the " future implications " of GHT! We all try SO hard to do what is " best " for our kids, whether they have RSS or not, and I think we all questions things down the road. Did I do the " right' thing? At least I know that I have. If I had done things differently with my older kids, would that have changed whatever it is they're having problems with now? It's all just part of parenting. I think Jen S said that her was tracking an even larger gain of inches than Teri got, but I'm not sure. From what I've heard the results can be amazing. Hope this helps! Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac, Singulair, GT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi Pat....you see.....we were led to believe that the treatment would oonly gain Imogen a few centimetres. Our endo is very cagey....will never tell us what he thought her final height would be....or exactly how much extra height she would gain with gh. So we were always left to guess!! But I'm coming round to the idea of gh treatment again....you're winning Pat!! I really hope those painless shots you were talking about are available in the UK........are you talking about the pens that shoot air at a very high powered rate which gets the stuff under the skin? What does have? pcpets pcpets@...> wrote: Hi Eileen, has had all those labels applied to him. IUGR, SGA, etc... The only one that really matters to us right now is RSS. Dr H has called " one of my most complicated and fragile RSS children " , and his health problems have been many. He's done remarkably well this last year, and that gives a person a lot of hope. Maybe we're passed the worst of his problems. I think any sane person would worry over the " future implications " of GHT! We all try SO hard to do what is " best " for our kids, whether they have RSS or not, and I think we all questions things down the road. Did I do the " right' thing? At least I know that I have. If I had done things differently with my older kids, would that have changed whatever it is they're having problems with now? It's all just part of parenting. I think Jen S said that her was tracking an even larger gain of inches than Teri got, but I'm not sure. From what I've heard the results can be amazing. Hope this helps! Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac, Singulair, GT) --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 Hi Eileen, I wanted to apologize if you thought I was trying to push GHT on you. It truly is a very personal decision, and one only YOU can make for your daughter. I didn't mean to sound pushy. will probably be starting GHT in Feb... not quite sure yet. Dr H wants certain tests run, and the endo here doesn't seem to think they're necessary. As soon as that is straightened out, he'll start on GHT. For it won't be just to gain a few cms though. He really need it for increased muscle tone, and help controlling his BSLs. Happy Holidays Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac, Singulair, GT) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Hi Pat...please don't apologize!! There's nothing to apologize for! I welcome different opinions from those for and against the treatment. It helps me to make my decision!!I just wish I wasn't so wishy washy about everything! Have a lovely holiday season Eileen pcpets pcpets@...> wrote: Hi Eileen, I wanted to apologize if you thought I was trying to push GHT on you. It truly is a very personal decision, and one only YOU can make for your daughter. I didn't mean to sound pushy. will probably be starting GHT in Feb... not quite sure yet. Dr H wants certain tests run, and the endo here doesn't seem to think they're necessary. As soon as that is straightened out, he'll start on GHT. For it won't be just to gain a few cms though. He really need it for increased muscle tone, and help controlling his BSLs. Happy Holidays Pat (g-ma to , RSS, 2 years old!!, 20# 5.2oz, 29 " , Prevacid, Zantac, Singulair, GT) --------------------------------- Quote Link to comment Share on other sites More sharing options...
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