Ideas for bedtime?

December 22, 2003

Hi Alison,

It's funny how certain things just become " normal " to us, isn't it? I

couldn't imagine without his g-tube now. It's just part of him.

A friend of mine, that has a child only 3 months older than B, was over the

other night, and she couldn't believe how B would lay there to get his

diaper changed, and get vented. Her son gets changed " on the run " these

days. I tried to explain to her, that B doesn't know anything different. He

did go through some periods where he resented having to lay down to get his

diaper changed, to get vented, or to do meds and nebs, but since it's a

" necessary " thing for him, we had to be firm, and just " make " him do it. We

didn't have the luxury of giving in to his temper tantrums. Then again, her

son can go to bed, and fuss, and she can just leave him in there, and let

him cry it out. We don't have that luxury either. And B has learned it! LOL

If we put him in bed, and he doesn't want to go (a normal 2 yr old thing) we

either have to go in and sit with him, or allow him to get up, because he

will gag and vomit every time he cries. When my friend's had a long rough

day, she can be done at 8pm, we, on the other hand, aren't done until B is

" ready " to be done. It's just a different life.

By the way, have you ever had this problem? Dr H is absolutely against just

letting B " cry it out " . She doesn't want him gagging, or vomiting, for any

reason, which I totally understand, but B is learning to use this for his

benefit. Many a night, he's up until 11pm or midnight, (our day starts at

5am because of our older kids) and we always have to lay down with him at

naptime, to get him to go to sleep. We have a " normal " bedtime routine to

try to signal to him that it's coming. Bath, brushing or massage with

lotion, dressed and vented, meds, nebs, read a couple of books, rock in the

rocking chair, and then nighty night. But most times, he won't go to sleep

until he's had to sit quietly with one of us for a couple of hours. I never

allowed this with any of my kids, or my granddaughter. They all had a betime

routine, but I wasn't rocking anyone to sleep at two years old! LOL

Any ideas?

Pat (g-ma to , RSS, 2 years old!, 20# 5.2oz, 29 " , Prevacid, Zantac,

Singulair, GT)

December 22, 2003

hi pat

we also have long nights with avery. he dosn't go to bed until 10:30pm

and one of us has to lay with him, due to him being hooked up to his

feeding pump. to make sure he doesn't climb out of bed and pull out

his button. i get up at 5 am also. so by the time avery falls asleep,

i already am asleep. corse he wakes me up, poking me. makes for a

long day.

if i think of anything to help i'll let you know. i am still trying

to find a way to get av to bed at a normal time. i am pooped. he

is so full of energy.

have a great christmas

amy pasz averys momma

-- In RSS-Support , " pcpets " wrote:

> Hi Alison,

>

> It's funny how certain things just become " normal " to us, isn't it?

I

> couldn't imagine without his g-tube now. It's just part of

him.

>

> A friend of mine, that has a child only 3 months older than B, was

over the

> other night, and she couldn't believe how B would lay there to get

his

> diaper changed, and get vented. Her son gets changed " on the run "

these

> days. I tried to explain to her, that B doesn't know anything

different. He

> did go through some periods where he resented having to lay down to

get his

> diaper changed, to get vented, or to do meds and nebs, but since

it's a

> " necessary " thing for him, we had to be firm, and just " make " him

do it. We

> didn't have the luxury of giving in to his temper tantrums. Then

again, her

> son can go to bed, and fuss, and she can just leave him in there,

and let

> him cry it out. We don't have that luxury either. And B has learned

it! LOL

>

> If we put him in bed, and he doesn't want to go (a normal 2 yr old

thing) we

> either have to go in and sit with him, or allow him to get up,

because he

> will gag and vomit every time he cries. When my friend's had a long

rough

> day, she can be done at 8pm, we, on the other hand, aren't done

until B is

> " ready " to be done. It's just a different life.

>

> By the way, have you ever had this problem? Dr H is absolutely

against just

> letting B " cry it out " . She doesn't want him gagging, or vomiting,

for any

> reason, which I totally understand, but B is learning to use this

for his

> benefit. Many a night, he's up until 11pm or midnight, (our day

starts at

> 5am because of our older kids) and we always have to lay down with

him at

> naptime, to get him to go to sleep. We have a " normal " bedtime

routine to

> try to signal to him that it's coming. Bath, brushing or massage

with

> lotion, dressed and vented, meds, nebs, read a couple of books,

rock in the

> rocking chair, and then nighty night. But most times, he won't go

to sleep

> until he's had to sit quietly with one of us for a couple of hours.

I never

> allowed this with any of my kids, or my granddaughter. They all had

a betime

> routine, but I wasn't rocking anyone to sleep at two years old! LOL

>

> Any ideas?

>

> Pat (g-ma to , RSS, 2 years old!, 20# 5.2oz, 29 " , Prevacid,

Zantac,

> Singulair, GT)

December 22, 2003