Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Hello , was dxd 0ctober last year. Part of his treatment included DNA testing to see if the problem was hereditary. I asked the geneticist if Alcoholism could be factor, or indeed if it was hereditary as 's father was a serious alcoholic(thankfully is not!!!!) and my son has a problem. He agreed that alcoholism is hereditary, but said that it is not a contributory factor in MSA. Hope that helps JILL Re: My mom , Thank you for your kind words. My mother is being treated by a neurologist at Stanford and she has treated several patients with this disease. My mom takes Zoloft for depression. What medications, exercise, and diet is your husband on? My heart goes out to him for having to deal with this horrible disease at 37. Did your husband have a lifetime of trauma? Regards, Navneet > Greetings Navneet, > > I am so sorry you have had to find us, but welcome to the group! It > sounds very much like your mom suffers from depression, which is > common in MSA patients. As far as I know, there is no conclusive > evidence of the causes of MSA. It is not hereditary. Some feel that > it may be envoronmentally related, but there has not been enough > research or evidence to prove this. Is you mom being treated for > depression? Does she have a doctor who has a basic understanding of > this disease and how to treat the symptoms. With the proper > combination of medications, exercise, and diet, your mother could > have a decent quality of life. My husband, Jeff has been diagnosed > with MSA, and he is 37. At 57 your mom may be strong enough to fight > this. Keep us posted on her progress and if you can, encourage your > sister to join the group. We will keep you in our prayers. > > Regards, > > Maciejewski, caregiver to husband Jeff If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2002 Report Share Posted November 6, 2002 Hello , was dxd 0ctober last year. Part of his treatment included DNA testing to see if the problem was hereditary. I asked the geneticist if Alcoholism could be factor, or indeed if it was hereditary as 's father was a serious alcoholic(thankfully is not!!!!) and my son has a problem. He agreed that alcoholism is hereditary, but said that it is not a contributory factor in MSA. Hope that helps JILL Re: My mom , Thank you for your kind words. My mother is being treated by a neurologist at Stanford and she has treated several patients with this disease. My mom takes Zoloft for depression. What medications, exercise, and diet is your husband on? My heart goes out to him for having to deal with this horrible disease at 37. Did your husband have a lifetime of trauma? Regards, Navneet > Greetings Navneet, > > I am so sorry you have had to find us, but welcome to the group! It > sounds very much like your mom suffers from depression, which is > common in MSA patients. As far as I know, there is no conclusive > evidence of the causes of MSA. It is not hereditary. Some feel that > it may be envoronmentally related, but there has not been enough > research or evidence to prove this. Is you mom being treated for > depression? Does she have a doctor who has a basic understanding of > this disease and how to treat the symptoms. With the proper > combination of medications, exercise, and diet, your mother could > have a decent quality of life. My husband, Jeff has been diagnosed > with MSA, and he is 37. At 57 your mom may be strong enough to fight > this. Keep us posted on her progress and if you can, encourage your > sister to join the group. We will keep you in our prayers. > > Regards, > > Maciejewski, caregiver to husband Jeff If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Dear , I am sorry. I left out the answer to your question. There is no definitive test for RSS, unfortunately. There is one test that they can run, but it only comes up positive for 10% of our kids. The truth is that there are probably several causes for RSS, some genetic and some environmental, related to the environment in the uterus. We can see that in the cases of identical twins where one is affected by RSS and the other is average. So, has had no genetic tests at all. The diagnosis of RSS must be made as a clinical judgement call. Conny Quote Link to comment Share on other sites More sharing options...
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