Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 WOW! We could be triplets! I had the same exact pregnancy story with Pippin except I was hospitalized for the last 4 months during my PG. When they admitted me they did an amnio and were sure the baby would be trisomy 18 or triploid. Waiting the 3 weeks for results was terrible. I knew if I was sent home from the hosp without delivering, it would have been bad news and I would be planning my babies funeral. Needless to say I wanted to stay in the hospital. Thankfully the amnio came back with no trisomies but still didn't explain the severe IUGR. I had 3 biophysical profiles a week. Where they check the amnio fluid, hearbeat, blood flow to & from placenta, and check for the baby breathing. Every 3 weeks I had an ultrasound to check for growth. Pippin was born full term at 3lbs 8oz. Can you believe 3 ultrasounds a week for 4 months and we never found out the sex? Will power! We figured we knew enough about this baby we didn't need to know the sex. I also was in several studies using 3D and 4D they were cool. I feel almost " normal " to know that somebody out there has had the SAME emotions and turmoil during what should be such a wonderful time in your life. I'm terrified to have another but I think my dear Husband has talked me into it Team Lapish Jenyfer, Dan, Tully & Pippin (RSS 13 months in 7days) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 To Pippin's mum...she is beautiful isn't she! First please excuse mistakes..my nine year old daughter has somehow managed to turn the entire screen upside down....so I'm typing upside down...I should wait til it's fixed but...I just want to repeat what you said before about not being alone in your experience. I felt like no-one else had gone through that before....and it was simmply because RSS is so rare. I went to one of the finest Drs in England...he's quite well-known...Proff Kypros Nickolaides....don't know if there was much press in the us a few yeras ago about a woman called Mandy Allwood who was expecting 8 babies...he was the doc who was going to try and deliver them all...unfortunately they all died...anyway...he is considered to be a genius in fetal medicibne and I used to see him every fortnight and he had no idea why my baby was so small....yet still she refused to do what he expected her to do which was to die....on one of my last visits before she was born he got one of his minions to fetch a book of syndromes....he read out the caharacteristics of RSS but still couldn't say whether my baby had that condition....so when she was born....this tiny scrap of humanity...I had no idea even how long she had to live!!! One example of my state of mind...for the first few months of her life she was in and out of hospital ...pnemonia...chest infections...on the 31st august 1997 she had just been discharged from a 2 week strech 'inside'...next morning...it was a sunday..i was inbed...like my lie-ins!...my husband comes tearing up the stairs' Eileen!!! Oh my god !! Eileen!!; My first thougt was Imogen has died...she was 3 mopnths old. But she was fine...It was princess diana who had died..... sorry to waffle on...but that's how much the negativity of the docs before she was born STILL was affecting me months after her birth... gosh...this was only sposed to be a short mail...sorry for all the mistakes etc...I'm all upside down!! Eileen (Imogen 6.5 years...various other rugrats..) djlapish teamlapish@...> wrote: WOW! We could be triplets! I had the same exact pregnancy story with Pippin except I was hospitalized for the last 4 months during my PG. When they admitted me they did an amnio and were sure the baby would be trisomy 18 or triploid. Waiting the 3 weeks for results was terrible. I knew if I was sent home from the hosp without delivering, it would have been bad news and I would be planning my babies funeral. Needless to say I wanted to stay in the hospital. Thankfully the amnio came back with no trisomies but still didn't explain the severe IUGR. I had 3 biophysical profiles a week. Where they check the amnio fluid, hearbeat, blood flow to & from placenta, and check for the baby breathing. Every 3 weeks I had an ultrasound to check for growth. Pippin was born full term at 3lbs 8oz. Can you believe 3 ultrasounds a week for 4 months and we never found out the sex? Will power! We figured we knew enough about this baby we didn't need to know the sex. I also was in several studies using 3D and 4D they were cool. I feel almost " normal " to know that somebody out there has had the SAME emotions and turmoil during what should be such a wonderful time in your life. I'm terrified to have another but I think my dear Husband has talked me into it Team Lapish Jenyfer, Dan, Tully & Pippin (RSS 13 months in 7days) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 Jenyfer, Wow, too! ) That is so weird that this has been a trend for Drs to call trisomy 18 or triploidy. I thought I was the only one that went through all that. I keep thinking I need to call my perintologist and tell him 's real diagnosis and to have him go through 's stuff so that if any one else comes to him with a severe IUGR pregnancy, he can think RSS first before scaring the crap out of her. It was hell I must say, and I am sure you and Eileen will atest to this! I can't imagine being in the hospital for 4 months! I really would have lost it then. You are great for going through that. They didn't tell me about the triploidy thing until AFTER was born, because the Dr. was convinced on the trisomy 18 during the pregnancy. So, after his birth we had to wait the three LONG weeks to get the triploidy results back. Terrible! I would have loved to have seen 3D, not to mention 4D. Could you really see her a lot better? That would be so cool. I can't believe you didn't find out the sex. Yes, I must say you have some willpower! I wouldn't have been able to do that! ) Congratulations on the possibility of having another baby. Honestly, I would love to have another one. But, I think my husband has decided against it based on all we went through with and what we are dealing with now. He is scared that the next one may end up with RSS, too, or something else. When do you think you will start trying? The fun part! ) Take care, Jodi R. > WOW! > We could be triplets! I had the same exact pregnancy story with > Pippin except I was hospitalized for the last 4 months during my PG. > When they admitted me they did an amnio and were sure the baby would > be trisomy 18 or triploid. Waiting the 3 weeks for results was > terrible. I knew if I was sent home from the hosp without > delivering, it would have been bad news and I would be planning my > babies funeral. Needless to say I wanted to stay in the hospital. > Thankfully the amnio came back with no trisomies but still didn't > explain the severe IUGR. I had 3 biophysical profiles a week. Where > they check the amnio fluid, hearbeat, blood flow to & from placenta, > and check for the baby breathing. Every 3 weeks I had an ultrasound > to check for growth. Pippin was born full term at 3lbs 8oz. Can you > believe 3 ultrasounds a week for 4 months and we never found out the > sex? Will power! We figured we knew enough about this baby we > didn't need to know the sex. I also was in several studies using 3D > and 4D they were cool. > I feel almost " normal " to know that somebody out there has had the > SAME emotions and turmoil during what should be such a wonderful time > in your life. I'm terrified to have another but I think my dear > Husband has talked me into it > > Team Lapish > Jenyfer, Dan, Tully & Pippin (RSS 13 months in 7days) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2003 Report Share Posted December 21, 2003 Hi Jenyfer and Jodi (from the 3rd triplet!) Yep...they scared the crap out of us cos they had no idea what they were dealing with RSS being so rare. I went to the finest doc in england and he didn't know! They all convinced me my baby would die so much so that when my lovely eldest daughter who is now 13 but was 6 when I was preg with Immi said to me' Mummy, I'm going to make a card for the new baby' I said to her' The baby is going straight to heaven..' I couldn't have her saying things like that because I knew she was going to die. That's awful isn't it? But that's the state I was in! And when she was born alive and kicking I didn't love her and was terribly depressed when I should have been happy. The special care nurses said it was cos they had told me my baby would die amd I had distanced myself as a self preservatory thing. Love her to bits now don't worry!! Also....I have 3 older children...immi is my youngest...had I not had a 4th child I would never have known that this gene was floating about. The geneticist and Great Ormand Street hospital in London said to me that if I was to go on to have another child the risk of having another RSS child was 5% which is virtually negliable. Same with my kids...chances are 5% of them having an RSS child. So fer.....I really wouldn't worry...go and try for another one!!! Plus...I work in a primary school for spec needs kids.....after work I go home and feel lucky that Immi ONLY has RSS!! Eileenxx Jodi Rollison rssboy2002@...> wrote: Jenyfer, Wow, too! ) That is so weird that this has been a trend for Drs to call trisomy 18 or triploidy. I thought I was the only one that went through all that. I keep thinking I need to call my perintologist and tell him 's real diagnosis and to have him go through 's stuff so that if any one else comes to him with a severe IUGR pregnancy, he can think RSS first before scaring the crap out of her. It was hell I must say, and I am sure you and Eileen will atest to this! I can't imagine being in the hospital for 4 months! I really would have lost it then. You are great for going through that. They didn't tell me about the triploidy thing until AFTER was born, because the Dr. was convinced on the trisomy 18 during the pregnancy. So, after his birth we had to wait the three LONG weeks to get the triploidy results back. Terrible! I would have loved to have seen 3D, not to mention 4D. Could you really see her a lot better? That would be so cool. I can't believe you didn't find out the sex. Yes, I must say you have some willpower! I wouldn't have been able to do that! ) Congratulations on the possibility of having another baby. Honestly, I would love to have another one. But, I think my husband has decided against it based on all we went through with and what we are dealing with now. He is scared that the next one may end up with RSS, too, or something else. When do you think you will start trying? The fun part! ) Take care, Jodi R. > WOW! > We could be triplets! I had the same exact pregnancy story with > Pippin except I was hospitalized for the last 4 months during my PG. > When they admitted me they did an amnio and were sure the baby would > be trisomy 18 or triploid. Waiting the 3 weeks for results was > terrible. I knew if I was sent home from the hosp without > delivering, it would have been bad news and I would be planning my > babies funeral. Needless to say I wanted to stay in the hospital. > Thankfully the amnio came back with no trisomies but still didn't > explain the severe IUGR. I had 3 biophysical profiles a week. Where > they check the amnio fluid, hearbeat, blood flow to & from placenta, > and check for the baby breathing. Every 3 weeks I had an ultrasound > to check for growth. Pippin was born full term at 3lbs 8oz. Can you > believe 3 ultrasounds a week for 4 months and we never found out the > sex? Will power! We figured we knew enough about this baby we > didn't need to know the sex. I also was in several studies using 3D > and 4D they were cool. > I feel almost " normal " to know that somebody out there has had the > SAME emotions and turmoil during what should be such a wonderful time > in your life. I'm terrified to have another but I think my dear > Husband has talked me into it > > Team Lapish > Jenyfer, Dan, Tully & Pippin (RSS 13 months in 7days) Quote Link to comment Share on other sites More sharing options...
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