Re: EILEEN....again! x2

[Guest guest]

Eileen,

The more you post, the more I find in common. They told me once they

learned that didn't have Trisomy 18 that he may have the

Triploidy thing, too. And, they were unsure of my placenta while I

was caring towards the end. From the ultrasounds, they knew

that the umbilical cord was okay. It was a three veinn cord. But,

as soon as they delivered , they took my placenta nad handled

it as to not harm it. They sent it away to be tested, as they did

's cord blood. All of it came back normal.

It killed me everytime to go to the Perinatologist because I would

alway get some kind of bad news. My way of coping with it was I

would get very tired, like depression tired. But, I always had to

pull myself together before I got home (it was a 45 minute drive)

because I have another little boy at home I needed to be mommy to.

He was always asking about what was wrong. He knew that something

wasn't right. His mommy was upset all the time and talking to daddy

about his unborn brother. It was so cute when we would all three lay

in bed at night and focus on in my belly. would say

to my belly, " get some yumyums, little brother so you can grow big. "

It reduced me to tears every time. We would try to play music for

him and talk to him to let him know that there was people here that

loved him. So, I was in love with from the beginning and I

couldn't face the fact that he may not live. Despite what Drs told

me I was putting everything I had in this.

After I had gone through some pretty intense labor, did turn

breach. Like I said, they had to give me a c section. My Dr. came in

and said that this is probably the best way because it is probably a

sign that wouldn't have tolerated a vaginal birth too well.

So, I wish he would have just done it to begin with. To save

any of that stress. Yeah, you are right about the hindsight thing. I

think of a lot of things I would have done differently in hindsight.

did stop growing and I thought getting him out was the best

thing. They said he would do better on the outside. He would thrive

more. Yeah right. Now we know that is not the case. Oh well. You

can't change things now I guess. Sucks though.

Jodi R.

> Eileen,

> I was reading one of your posts where you had said that Imogen was

> born at 36 weeks, and that Drs. told you that your placenta was

> failing and that she had some chormosomal abnormality that would

not

> allow her to live long. THAT IS WHAT THEY TOLD ME! Crap, they

said

> HAD to be delivered ASAP if I wanted to have a live baby,

and

> then they couldn't gaurantee how LONG after birth he would

> live!!!!!!!! So, you see all the exclamation points. I still have

> trouble with all this. I well up with tears every time I talk

about

> it. I was so scared that my baby was going to die. So, of course

I

> we opted to go ahead and let them induce us at 34 weeks. They did

> discover that had not grown with a couple weeks at all, and

> evidently that was very worrysome for the Dr. So, we go to be

> induced and turns breach (which was his position most of the

> pregnanay), and they had to do a c section. He was born weighing 2

> lbs. 12 1/2 oz, and 14 1/4 inches long. Very small. His head was

> large of course. So, during the pregnancy they did label him as

IUGR

> (Intrauterine Growth Retardation), and then they said he was going

to

> have Trisomy 18, which meant if he did make it through the

pregnancy

> he would be serverely affected and he wouldn't live too long. I

> think they say most of these children pass away by one year of age

> roughly. So, we were terribly worried from our 20 week ultrasound

> on. My 20 week u/s was on Valentine's day and I was looking

forward

> to a great day of seeing my beautiful baby and finding out the

> gender. Instead, I get smacked in the face with the fact that he

was

> VERY small and that his body was severely delayed from his

> gestational age, but his head was close to the correct size. It

was

> awful.

>

> Anyway, fast forward back to delivery. After was taken to

the

> NICU, a geneticist came a looked at him and my understanding is she

> told them she was almost positive he did not have Trisomy 18, but

> went ahead and had the blood tests done anyway. They came back

> negative, then they were all stumped as to what " had " . We

did

> not learn about RSS until this past March, and then it was not

> confirmed until we saw Dr. Harbison this Octiber. So, for all

those

> months, we were in limbo, not knowing why he wasn't gaining weight

> and why he could not tolerate his feeds. It was awfaul. Drs. even

> went as far as to tell us that they did not know what " had " ,

> but was sure it wasn't going to be good for him. They told us that

> they weren't sure that he was going to be of normal intelligence.

It

> was their way of telling us that they thought was going to

be

> pretty bad off, in nice terms.

>

> So, like you, I was very worried about my son, and I love him

dearly

> and was goign to do whatever it took to keep him healthy

> and.....HERE. So, I just wanted to let you know that your story

> reminded me so much of mine. I wonder how much better off

> would have been if we hadn't have been induced. I mean, he had

some

> major lung problems, and being in the womb a little longer would

have

> helped them develop a little more. But, we didn't know, we just

took

> the Drs. advice, because, of course we wanted our child born

alive.

> So, I can relate to how you felt when they told you about the

> chromosomal disorder. It's an awful feeling, isn't it? I keep

> saying, I don't know how I haven't had an emotional breakdown yet,

> after all this, and seeing my child go through this hardship. I

have

> tried to be strong, for I have two children to take care of at home

> that I dearly love. Sometimes I am like you though, I have to have

a

> little " shout " at times! ) Good grief. I need some sanity. I

> need a vacation I will never have, too! )

>

> Take care and talk to you soon.

> Jodi Rollison

> 's mom

> IUGR/RSS 18 months old, 13 lbs. 2 oz., 25 1/2 in.

>

>

>

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>