More Questions and a few Answers

[Guest guest]

Hey Folks,

As I was going over my list of questions to ask, and I remembered a

few more. So once again, I will ask the collective wisdom of this

group.

1. What do you do if you child doesn't have a significantly improved

appetite on Periactin? I'm a tad confused. We've been on it since

October but also started the Pediasure at the same time. Yes, we are

on Pediasure and Connor usually consumes between 1.5 and 2 cans a day

including 1/4 or 1/2 servings of pureed table food or crackers or

shredded cheese or a calorie and nutrient dense pumpking bread a I

make. And yes, I'm supposed to give him .5mls three times a day.

He's only gained 1-3 oz's since convention. Mind you, every little

thing will cause him to lose, such as teething, colds, etc. Any

idea's out there?

2. I can't even find Peptimen Jr. in the Lynchburg area. Any

suggestions on how to get this online?

3. Would it be overly aggressive of me to suggest to our Ped. GI

Spec. to do a gastric emptying test on Connor? I mean, once in his

life he took an 8 oz bottle. Only once. What's holding up the show

so to speak in his stomach.

4. What do you do when you other children get tired of the attention

or questions asked about your " special " child. My oldest boy,

Graham, the other day stated, " Connor, Connor, Connor! Why is

everybody looking at Connor! He is not a munchkin Mom! " Help!

5. When your toddler is slow to eat and the pre-school program only

alots 10-15 min for snack time, what do you say or how do you

accomodate your child and school? We haven't placed Connor in a pre-

school setting yet, but this will be the first issue we have to deal

with.

6. To the family in andria. We are in Lynchburg, VA. Dr. ph

Wagstaff made the " tentative " RSS call. Dr. H. wasn't proof positive

so we are coming back to convention in July. I think I met you

actually at the pool party. I was sitting with the family from VA

Beach. Jog your memory any?

7. Today I am starting the laborous process of applying for SSI for

Connor to offset his many Dr. and specialist bills. Wish me luck!

Merry Christmas to you all!

- mother to Graham 6, Cameron 3, Connor, 15 mo; SGA/RSS? IUGR,

Pepcid Sprinkles and Periactin.

[Guest guest]

,

We were on Periactin but just stopped it. Tori wasn't really showing much

improvement in eating with it. Just stopped it last Wed. And now she is eating

more. We were on it since may July/Aug 2003

Contact Nestle they are the company that make Peptimen Jr. It runs about $8 per

can but they do have a program to help you with cost if you qualify. Presently

ins. is covering ours. We are g-tube fed. We switched after the convention

from pediasure to peptimen and it made a HUGE difference.

Let the teacher know to offer snacks at any time. More grazing than an actual

snack time but also encourage to eat at snack time. This is what we are doing

with preschool and it is only three hours long.

We are from Norfolk. We have cousins in Lynchburg that teach at Liberty

College.

Maloy mom to Tori

More Questions and a few Answers

Hey Folks,

As I was going over my list of questions to ask, and I remembered a

few more. So once again, I will ask the collective wisdom of this

group.

1. What do you do if you child doesn't have a significantly improved

appetite on Periactin? I'm a tad confused. We've been on it since

October but also started the Pediasure at the same time. Yes, we are

on Pediasure and Connor usually consumes between 1.5 and 2 cans a day

including 1/4 or 1/2 servings of pureed table food or crackers or

shredded cheese or a calorie and nutrient dense pumpking bread a I

make. And yes, I'm supposed to give him .5mls three times a day.

He's only gained 1-3 oz's since convention. Mind you, every little

thing will cause him to lose, such as teething, colds, etc. Any

idea's out there?

2. I can't even find Peptimen Jr. in the Lynchburg area. Any

suggestions on how to get this online?

3. Would it be overly aggressive of me to suggest to our Ped. GI

Spec. to do a gastric emptying test on Connor? I mean, once in his

life he took an 8 oz bottle. Only once. What's holding up the show

so to speak in his stomach.

4. What do you do when you other children get tired of the attention

or questions asked about your " special " child. My oldest boy,

Graham, the other day stated, " Connor, Connor, Connor! Why is

everybody looking at Connor! He is not a munchkin Mom! " Help!

5. When your toddler is slow to eat and the pre-school program only

alots 10-15 min for snack time, what do you say or how do you

accomodate your child and school? We haven't placed Connor in a pre-

school setting yet, but this will be the first issue we have to deal

with.

6. To the family in andria. We are in Lynchburg, VA. Dr. ph

Wagstaff made the " tentative " RSS call. Dr. H. wasn't proof positive

so we are coming back to convention in July. I think I met you

actually at the pool party. I was sitting with the family from VA

Beach. Jog your memory any?

7. Today I am starting the laborous process of applying for SSI for

Connor to offset his many Dr. and specialist bills. Wish me luck!

Merry Christmas to you all!

- mother to Graham 6, Cameron 3, Connor, 15 mo; SGA/RSS? IUGR,

Pepcid Sprinkles and Periactin.

------------------------------------------------------------------------------

[Guest guest]

You can find Peptemen Junior by calling nestle and have I been able

to find it much more less expensive on ebay.

stella mom of Gaby 14 months RSS, 13.5 lbs.

> Hey Folks,

>

> As I was going over my list of questions to ask, and I remembered

a

> few more. So once again, I will ask the collective wisdom of this

> group.

>

> 1. What do you do if you child doesn't have a significantly

improved

> appetite on Periactin? I'm a tad confused. We've been on it

since

> October but also started the Pediasure at the same time. Yes, we

are

> on Pediasure and Connor usually consumes between 1.5 and 2 cans a

day

> including 1/4 or 1/2 servings of pureed table food or crackers or

> shredded cheese or a calorie and nutrient dense pumpking bread a I

> make. And yes, I'm supposed to give him .5mls three times a day.

> He's only gained 1-3 oz's since convention. Mind you, every

little

> thing will cause him to lose, such as teething, colds, etc. Any

> idea's out there?

>

> 2. I can't even find Peptimen Jr. in the Lynchburg area. Any

> suggestions on how to get this online?

>

> 3. Would it be overly aggressive of me to suggest to our Ped. GI

> Spec. to do a gastric emptying test on Connor? I mean, once in

his

> life he took an 8 oz bottle. Only once. What's holding up the

show

> so to speak in his stomach.

>

> 4. What do you do when you other children get tired of the

attention

> or questions asked about your " special " child. My oldest boy,

> Graham, the other day stated, " Connor, Connor, Connor! Why is

> everybody looking at Connor! He is not a munchkin Mom! " Help!

>

> 5. When your toddler is slow to eat and the pre-school program

only

> alots 10-15 min for snack time, what do you say or how do you

> accomodate your child and school? We haven't placed Connor in a

pre-

> school setting yet, but this will be the first issue we have to

deal

> with.

>

> 6. To the family in andria. We are in Lynchburg, VA. Dr.

ph

> Wagstaff made the " tentative " RSS call. Dr. H. wasn't proof

positive

> so we are coming back to convention in July. I think I met you

> actually at the pool party. I was sitting with the family from VA

> Beach. Jog your memory any?

>

> 7. Today I am starting the laborous process of applying for SSI

for

> Connor to offset his many Dr. and specialist bills. Wish me luck!

>

> Merry Christmas to you all!

>

>

> - mother to Graham 6, Cameron 3, Connor, 15 mo; SGA/RSS?

IUGR,

> Pepcid Sprinkles and Periactin.