Re: Here at last!!!-long, sorry

[Guest guest]

,

Welcome to the best site in the world!!!! I recently got a new computer

too b/c I couldn't afford to be w/o this site. The info., the support, etc.,

is well worth the money you put into the computer. No doubt about that!

My son Christian is 3 years old and weighs just under 22 lbs. (In mommy

language, he is bordering on 18 month clothing.) He was on GHT for a few

months right before he turned two. We qualified for a program through the GHT

company (somebody help me I'm forgetting the name, it starts with a P).

Anyway,

the GHT company set it up so it goes through our insurance and then the

program pays the rest (or a bulk of it). We only decided to take him off b/c we

were a little uneducated at the time and wanted to get his weight for height up.

As far as the stares and comments, we have gotten our fair share.

Especially when Christian was about the same age as your child. It was enough

to

keep me a prisoner in my home. I thought I was protecting him (and myself, a

little). I thought if I heard one more time, " He's so small " I would shoot

myself and them. Needless to say, I became very depressed. Never leaving the

house will do that to you. I also found myself to be on an anti-depressant and

it has changed my outlook entirely. Now, when people ask or comment I just say

that he has a rare growth disorder. That usually shuts them up but if they

continue to ask then I tell them in a way that they might understand. I have

come to realize that I would rather have people ask then stare and not say

anything. And actually I never really notice much anymore. Although, just last

Mon. we had him in the ER and the dr. came over to examine him. I handed her

my blue RSS brochure and she said " Oh, I was wondering what he had. " It had

been awhile since I had had an experience with people asking and I began to feel

like he was looking " normal. " But to think this woman was walking by and

wondering " what my son had " bothered me. Then I put it in perspective and

realized that she's a dr. and it's her job to notice these things. I believe

that,

with time, you become used to it. It bothers you a little less each time.

And, actually now I've got the lady in the deli asking me how he's doing and

what he's been up to, etc. It's like he's touching lives everywhere we go and

that can't be all bad. I've had bad experiences too. Like the lady behind me

at the grocery store asking me how old he was. I answered and she told me she

was a nurse, blah, blah, blah. Then she starts comparing her child who was

the same age as Christian. She starts pointing out how much taller her son is

and blah, blah, blah. Needless to say I wanted to cream the woman. It's

encounters like that that make me want to run and hide, but I don't. I curse

the

woman in my head and move on.

I'm sorry that this has been kinda long, but sometimes I get a little

passionate. Anyway, welcome to the site. It's an awesome group to be a part

of.

(mom to ,6, (non-RSS) and Christian,3, (RSS) 21# 11oz. Zantac and

Periactin