URGENT - tumors & asymmetry

[Guest guest]

I believe that your doctor is incorrect. From what I have

researched and been told, and you can " politely " ask your doctor

this, Wilm's Tumors are more prevalent with children with gosh, I am

searching my RSS Bible and can not find the info. So I can't give

you the " medical lingo " but will give you the layman lingo.

There are two types of asymmetry. The first is like with RSS, where

one side is smaller and the smaller side is ABNORMAL (meaning the

rest of the body is the " correct " size). The other type of

asymmetry is where one side is LARGER (it may appear that one side

is smaller but in actuality, the other is actually larger) -- this

larger side is abnormal. It is in this latter type that Wilm's

Tumors are more prevalent, NOT with RSS/SGA.

If your insurance is willing to pay 100% for these twice-a-year

ultrasounds, I guess it can't hurt. But otherwise....

> Hi,

> Maddison had a routine appointment with her opthopedic lastweek.

We

> were talking to him about asymetry and he said kids with asymetry

> tend to have a chance of getting Wills Tumors??? I don't know even

> know how to spell it, that is probably wrong. So he recommends

she

> have an ultrasound of her abdmonen twice a year. We have been the

> convention twice and I have learned a lot from you guys but I have

> never heard of this before. Has anyone elso heard this? If so

> please fill me in.

>

>

[Guest guest]

hi melissa-

christopher had the ultrasounds done every 3 months for the first

year and half after they discovered his asymmetry. once they decided

that his left side was actually smaller (and not that his right side

was larger) like jenifer said they said it was no longer a risk for

wilm's tumors.they had to figure out which was which. hope that helps

some.

jodie

(nicholas-5 nonrss, christopher-3 on monday rss, johnathon-6 months

nonrss)

> > Hi,

> > Maddison had a routine appointment with her opthopedic lastweek.

> We

> > were talking to him about asymetry and he said kids with asymetry

> > tend to have a chance of getting Wills Tumors??? I don't know

even

> > know how to spell it, that is probably wrong. So he recommends

> she

> > have an ultrasound of her abdmonen twice a year. We have been

the

> > convention twice and I have learned a lot from you guys but I

have

> > never heard of this before. Has anyone elso heard this? If so

> > please fill me in.

> >

> > Meliss