Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Even at his age, Max still has granulation tissue around his button. Well, there is none now because he just had a new button put in a week ago - a g-j button this time. But he has always had this problem and I remember always getting out the silver nitrate to get rid of it. I hated doing it. At our last visit with Dr. H., she did the silver nitrate and missed and got Max's skin. He was in so much pain that he could not even stay in school the next day. His skin blistered and he had a real burn there and in a couple of other spots she must have missed but we did not see. The GI doctor gave us a cream that healed it up really well. Anyway, when Max had the g-j button put in, the nurse told us that it is very important to make sure the button is flush with the skin and does not appear too loose. (When Max had one of the original Mic-keys years ago, they told us to turn the button every day. Now they say that causes granulation tissue to build up, and DON'T do that.) If it does move around and you cannot put more water in the balloon (you can go up to 7cc's, but they prefer you don't go past 6 if possible), then it is recommended that the button be kept immobile with a piece of tape or, as one of my friends does, a belt or gauze wrapped around the whole body (just as wide as the button). I don't know if this is helpful to any of you, but we are all learning together. The FRUSTRATING part is that we have done this for so many years and the rules keep changing. Thank goodness we can all learn from each other. Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 When we have to treat Finlay's granulation tissue with silver nitrate we learned a really good trick ...we spread vaseline on the skin around the stoma- then if the silver nitrate splashes onto the skin the vaseline acts as a barrier - it worked really well for us! - > Even at his age, Max still has granulation tissue around his > button. Well, there is none now because he just had a new button > put in a week ago - a g-j button this time. But he has always had > this problem and I remember always getting out the silver nitrate to > get rid of it. I hated doing it. > > At our last visit with Dr. H., she did the silver nitrate and missed > and got Max's skin. He was in so much pain that he could not even > stay in school the next day. His skin blistered and he had a real > burn there and in a couple of other spots she must have missed but > we did not see. The GI doctor gave us a cream that healed it up > really well. > > Anyway, when Max had the g-j button put in, the nurse told us that > it is very important to make sure the button is flush with the skin > and does not appear too loose. (When Max had one of the original > Mic-keys years ago, they told us to turn the button every day. Now > they say that causes granulation tissue to build up, and DON'T do > that.) If it does move around and you cannot put more water in the > balloon (you can go up to 7cc's, but they prefer you don't go past 6 > if possible), then it is recommended that the button be kept > immobile with a piece of tape or, as one of my friends does, a belt > or gauze wrapped around the whole body (just as wide as the > button). > > I don't know if this is helpful to any of you, but we are all > learning together. The FRUSTRATING part is that we have done this > for so many years and the rules keep changing. Thank goodness we > can all learn from each other. > > Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 > > Even at his age, Max still has granulation tissue around his > > button. Well, there is none now because he just had a new button > > put in a week ago - a g-j button this time. But he has always had > > this problem and I remember always getting out the silver nitrate > to > > get rid of it. I hated doing it. > > > > At our last visit with Dr. H., she did the silver nitrate and > missed > > and got Max's skin. He was in so much pain that he could not even > > stay in school the next day. His skin blistered and he had a real > > burn there and in a couple of other spots she must have missed but > > we did not see. The GI doctor gave us a cream that healed it up > > really well. > > > > Anyway, when Max had the g-j button put in, the nurse told us that > > it is very important to make sure the button is flush with the skin > > and does not appear too loose. (When Max had one of the original > > Mic-keys years ago, they told us to turn the button every day. Now > > they say that causes granulation tissue to build up, and DON'T do > > that.) If it does move around and you cannot put more water in the > > balloon (you can go up to 7cc's, but they prefer you don't go past > 6 > > if possible), then it is recommended that the button be kept > > immobile with a piece of tape or, as one of my friends does, a belt > > or gauze wrapped around the whole body (just as wide as the > > button). > > > > I don't know if this is helpful to any of you, but we are all > > learning together. The FRUSTRATING part is that we have done this > > for so many years and the rules keep changing. Thank goodness we > > can all learn from each other. > > > > Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 > > Even at his age, Max still has granulation tissue around his > > button. Well, there is none now because he just had a new button > > put in a week ago - a g-j button this time. But he has always had > > this problem and I remember always getting out the silver nitrate > to > > get rid of it. I hated doing it. > > > > At our last visit with Dr. H., she did the silver nitrate and > missed > > and got Max's skin. He was in so much pain that he could not even > > stay in school the next day. His skin blistered and he had a real > > burn there and in a couple of other spots she must have missed but > > we did not see. The GI doctor gave us a cream that healed it up > > really well. > > > > Anyway, when Max had the g-j button put in, the nurse told us that > > it is very important to make sure the button is flush with the skin > > and does not appear too loose. (When Max had one of the original > > Mic-keys years ago, they told us to turn the button every day. Now > > they say that causes granulation tissue to build up, and DON'T do > > that.) If it does move around and you cannot put more water in the > > balloon (you can go up to 7cc's, but they prefer you don't go past > 6 > > if possible), then it is recommended that the button be kept > > immobile with a piece of tape or, as one of my friends does, a belt > > or gauze wrapped around the whole body (just as wide as the > > button). > > > > I don't know if this is helpful to any of you, but we are all > > learning together. The FRUSTRATING part is that we have done this > > for so many years and the rules keep changing. Thank goodness we > > can all learn from each other. > > > > Jodi Z. Quote Link to comment Share on other sites More sharing options...
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