To Sharon

[Guest guest]

Hi Sharon,

I am so glad you responded. Once again, you had me just smiling to

tears. You have such a great personality from what I can tell. Your

very funny, anyway.....and ugly as sin....hee,hee! Do I get points

for that comment??? )

It does sound like you were able to deal with childhood pretty well.

You know, I am pretty short myself, a little less than 5'2 " , and I

was always the shortest in my class and thus first in line. And, I

didn't really get a break even if they put us in line by alphabetical

order. My maiden name was Brothers, and that usually had me first in

line that way, too!!! Are you feeling sorry for me yet?? ) Ha,

ha.

That really must have been hard on your parnets, not really knowing

your true diagnosis for so many years. It was hard on my husband and

I during 's first 15 months because the Dr.s here didn't have a

diagnosis for him. They put him through every test imaginable, but

everything was " normal " . They were stumped. Finally, his genticist

did mention RSS, but said that the test they had would only show up

in 10% of the cases. Of course, 's was NORMAL!! He went to a

metabolic specialist who asked if anyone had said anything about the

possibility of having RSS. He gave me Dr. Harbison's number,

and she confirmed the RSS diagnosis just a couple of weeks ago. So,

now we finally now, but I am so worried about now knowing enough to

give the proper care. I worry about him getting sick,

hypoglycemia, ear infections, etc. He has already had two ear

infections in six months. I am here trying to learn more and get to

know other parents of RSS children and RSS adults. I am so glad I

hooked up with you, because you seem like a great person to talk to.

I would love to email privately if you want to. I don't know how

busy you are, but let me know if you want to. I have a couple others

I am emailing privately, and it is easier for me that way. I feel it

is a better environment to share more private info. Anyway, I hope

that you have a great Thanksgiving and I hope you don't eat too

much! ) I hope you don't have to sit at the table for an hour

with turkey stuck in between your cheeks. Hee, hee. The hot dog

thing was so funny. I could just see it.

Take care, Sharon.

Jodi Rollison

's mommy