i want to talk to another parent of a rss child

[Guest guest]

You have come to the right place. My son Christian just turned 3 and I was

where you are at emotionally not to long ago. Until I found this group. How

old is your son? When was he diagnosed? Where does he live? We are in

Illinois and I know you will find kind and informative people on this listserve.

I

did. My son was unofficially diagnosed when he was approximately 3-4 mos.

old. But we just recently got our definitive diagnosis at the MAGIC convention

this past July by the expert in RSS, Dr. Madeline Harbison. These people are

amazing and can answer almost every question you have. Welcome.

mom to ,6, (non-RSS) and Christian,3, (RSS) 21# Zantac and Pericatin

[Guest guest]

i just want to talk with someone who has been there befor. i have

never met anyone that has rss.(my son has rss) i just feel like

my son and i are like an island with medical facts but no yreu life

facts!

[Guest guest]

Kittykia2002 - We all understand how you feel as we have been

there. HEre you can trade emails with various families and it can

be very comforting. Did you know that MAGIC can also hook you up

with families that can speak with? We can search our database and

find other families in your same town or if you live in a small

town, maybe the same state at least!

> i just want to talk with someone who has been there befor. i have

> never met anyone that has rss.(my son has rss) i just feel

like

> my son and i are like an island with medical facts but no yreu

life

> facts!