Re: Why Dr. H -

[Guest guest]

Hi ,

As Amy said, I know this was directed towards , but I though I would

pipe up too! LOL

We saw her in NY a year ago Sept, and I have to say she was AMAZING! She

walked into the examining room, looked at , and said " That baby is

refluxing " . The Drs here would only look at test results, and not at the

child himself! This caused them to misdiagnosed his problems repeatedly, and

in the long run, had a hand in creating more problems than they solved.

Dr H ran a Delayed Gastric Emptying study, upper GI, and an Endoscopy. With

these tests she determined that her diagnosis was correct, and that

needed a pyloroplasty and a fundo done, along with the g-tube. She KNEW that

he needed these things, but she did run the tests to prove that she was

correct.

will have to let you know if you can consult with her directly,

even if your child is not one of her " official " patients.

Hope this helps.

Pat (g-ma to , RSS, 22.5 months, 20# 1oz, 29.8 " , Prevacid, Zantac,

Singulair, GT)

[Guest guest]

,

I'd like to chime in here, too. Max was Dr. H's third RSS patient

and now she has almost 200! She has come so far in the 15 years we

have known her.

If you are unable to go to NYC to see Dr. H., there are several ways

to have her advice and be in touch with her. One is to go to the

MAGIC convention in July. She offers free consultations and you

would get a half hour with her as a " first-timer. " There are

financail aid programs to help with the cost. can let you

know more about that, but she is away for a couple of more days.

Her husband " kidnapped " her for a nice getaway. Basically, you try

to fundraise some of the money and then MAGIC matches what you

raise, I believe. Or something like that. There are also people

who donate money specifically to help people attend the convention

who would otherwise not be able to. Once Dr. H. sees you there,

then you can email her in NYC and she will offer advice.

The other alternative is to have your doctor email Dr. H. If you

email me privately, I can give you that address. But that is only

for your doctor to use for now, okay? (magicrss @hotmail.com)

Dr. H. does not believe in doing unnecessary testing. She can LOOK

at a child and know what is going on, but has to do the testing of

some sort just for insurance purposes and to cover her own butt, you

know? She is a very special person in our lives.

Jodi