Maxi's latest surgery update...a little long

[Guest guest]

Hi Everyone,

I really haven't meant to be away from the computer so much, it is

just hard to get on here, with everything that has been going on.

Also, my husband's job search and a teenager who thinks i should be

prohibited from my own keyboard, on top of Maxi....well, you get the

idea.

On to Maxi, surgery was last thursday, they took 2/3s of the

adenoids, left some behind because of his high and weak palate. He

sounds fine, just a bit congested at the moment. He seems to be

draining alot still. The ears were more involved that the doc had

thought, so that took a little onger, they had to not only remove

gel, but some scar tissue as well, before replacing the tubes. He

has some swelling there as well as in the throat/palate area, and

his hearing still appears to be compromised, but I will wait for

full healing before pronouncing that there is a problem. He just

stopped running a fever this morning and is ona five day course of

zithromax. His eating and weight are another thing entirely. He was

very nauseas when he woke up and just kept gagging. Now, he seems to

have a memory of that and is leery of food. He is now down to 27

pounds. He is drinking, and will eat a little something every few

hours, but nothing by way of the volume that this kid can usually

eat. He now is getting the big bellied, stick like arms look, that

he had when he was two(amazing, that he weighed 32 pounds at the

conference this summer and that 5 pounds(three from that previous

fever like thing and an adittional two from this) can make this much

difference, eh?). His blood sugars are a bit off, but that is

nothing new.

They still don't know what causes his acidosis. His energy is a

little less now too, he seems to tire faster( I blame that on the

weight loss, and we are starting his favorite shakes and peanut

butter fudge again). We are just kind of taking it one day at a time

here giving him lots of love, support and electrolytes, waiting for

him to bounce back, he usually does. Still there is that part of

being a mom, ever watchful, waiting to make sure, uneasy that things

still aren't right... Wish I had a Dr. H to look at him and tell me

in her exasperated voice " That child needs...now go do it " . Lol,

really, I do. On the up side, he still is Maxi, very funny, and very

ready for whatever mischief he can find, and still smiling.

Thanks for such a long sharing, hugs to all!

Amy Marie,

mom to Maxi 4 and 3/4 yrs, with WKW(who knows what), 37 inches and

27 pounds, Breanna 14 (who just got student of the month for the

first time ever!), and Will a.k.a. Woody 20 - my star on the rise!