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Re: rss growth - Amy

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Hi Amy,

Don't want to burst your bubble, but be careful with the weight gain. Dr H

explained to us that RSS kids are prone to insulin resistance, and TypeII

diabetes, and being " over " weight is not good for them.

We were thrilled because was finally on a chart, too. He was

tracking between the 10-25% on the weight-for-height chart in July. When Dr

H calculated his Standard Deviations, and compared his weight SDs and height

SDs she wasn't happy with the ratio, the weight being too different from the

height. She lowered 's feed rates (he is 100% g-tube fed). When we

saw our GI, here at home, she was concerned because was falling off

the chart, but Dr H said that he was doing great, his SDs for weight and

height were coming closer together. Another balancing act for RSS parents to

think about.

Glad to hear the Avery is doing so well, though, and that you worked thing

out with your Ped. Sometimes you just have to let them know where you stand.

KUDOS MOM!! Great job advocating for Avery!

Pat (g-ma to , RSS, 22 months, 19# 13oz, 29.5 " , Prevacid, Zantac,

Singulair, GT)

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